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update on my sister; very sad


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My sister 20 weeks pregnant, had her appointment with the obstetrician today.

It appears that her baby only has half a brain. though the doctor said that there si a lot of fluid in the brain that makes it hard to tell.

 

It is very sad.

thank you everyone who sent positive thoughts and kind wishes.

 

She is trying to get into a specialist in this field, but they are few and far between, and the obstetrician doesn't think that there is much to be done.

The baby is very active and appears to have able to feel. They had her drink ice water while having an ultrasound, and the baby responded.

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I may not be very educated on this, but is this what they call hydrocephlous?? I ask because my cousin has that. If it is, I might be able to put your sister in touch with my aunt. Let me know if it and you'd like that... and I am very sorry for what she is going through :( If it is what my cousin has though, she is doing very well.

 

((((HUGS))))

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:grouphug: to you and your sister.

 

I know from experience that sometimes a prenatal diagnosis is wrong and sometimes it is right. Unfortunately, sometimes only time will tell which is which.

 

Praying that your sister is able to get into the specialist and that she will have peace during the waiting period.

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I have read of several instances of someone being born with half of a brain and turning out normal (or above) in intelligence and function so...

 

Never Give Up :grouphug:

 

I met a mother with a dd age 5-6 some years ago who had half a brain. She had gotten a lousy prediction by doctors and all that, but was a fully functioning, normal looking little kid. I believe she had some fine motor skills, but she was just a lovely little person that my kids played with. I think the brain can compensate and while you might lose some ability in specific skill-areas, then life has lots of different things to offer.

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I have read of several instances of someone being born with half of a brain and turning out normal (or above) in intelligence and function so...

 

Never Give Up :grouphug:

 

This!! There is always hope. Stay strong. :grouphug::grouphug:

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I know a young woman, adult, with half a brain. Besides having a slightly smaller arm and leg on one side, and a face that curves to one side a little, and real trouble doing math, she is a bright, sweet, funny, very intelligent young woman. She drives, she learns a second language, and she was almost numerical enough to become a pharmacist's assistant. (The final was too hard, number-wise)

 

She had a stroke in utero. Her brain developed with this limitation, rather than developing normally and then having a stroke. The half that was there had learned a lot!

 

I know it is often fatal to have such an abnormality, but I would have found this lady a delightful daughter.

 

:grouphug::grouphug:

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I am so very sorry for your sister -- we are experiencing this with my dd31 - she delivered their baby the day before Thanksgiving.

 

ETA: Having read the other posts, now, the news shared by others has been hopeful.

 

Prayers -- :grouphug::grouphug::grouphug: -- for strength.

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:grouphug: to you and your sister.

 

I know from experience that sometimes a prenatal diagnosis is wrong and sometimes it is right. Unfortunately, sometimes only time will tell which is which.

Praying that your sister is able to get into the specialist and that she will have peace during the waiting period.

 

I started to respond in the wee hours of the morning but don't want to say anything "wrong." The above is true. I know someone who was told after an amnio that their baby was mentally retarded. I was told after an ultrasound my baby had Downs Syndrome. In fact, I was encouraged to abort my baby. My friend was told her baby had a brain tumor and had other things wrong and they didn't know if the baby would survive delivery. ALL three babies are 100% normal.

 

The diagnosis may be accurate, but it may not be. Also, I have seen shows on people who live normal lives with half a brain.

 

The news is devastating but really, time will tell. It's so awful to have to wait this one out. I pray for comfort and peace for you all, and especially for your sister.

:grouphug::grouphug::grouphug:

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:grouphug::grouphug::grouphug:

 

I am so very sorry for your sister -- we are experiencing this with my dd31 - she delivered their baby the day before Thanksgiving.

 

:grouphug::grouphug::grouphug:

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Years ago, I saw a show or read an article on a girl (an adult by then) who had half of her brain removed at, I think, 8 or 9, to control her severe epilepsy. Her mother was at a loss as to what to do until she got a hold of a neurologist who just said, "Stimulate, stimulate, stimulate," and that is what she did. My recollection is that about the only thing the girl, as a grown woman, couldn't do was drive, so she was resigned to living in a city with public transportation.

 

Obviously, Choice No. 1 is for the diagnosis to be wrong, but please track down some of these success stories (Google pulled up several, not necessarily the one I'm thinking of) if it will be a comfort to your sister.

 

Terri

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