MariannNOVA Posted August 9, 2010 Share Posted August 9, 2010 (edited) has been complaining on and off last week that he has a headache, and I DO believe him b/c he does not complain about that kind of stuff. I give him ibuprofen and it helps -- same complaint next day, same ibuprofen, same result. This began on Tuesday and the last headache he complained about was Saturday. On Wednesday, he acts like the starch is taken out of him -- this is NOT like him at all. He is lying down on the couch for stretches at a time on Wednesday and Thursday. He goes to bed early (for him) (8:30pm) and sleeps straight through for 12 hours. He complains about being achy and asks if we can make an appointment to see Dr. R (a D.O.) who he sees about 4 times a year for OMT and from whom we have wonderful results. He says he feels all stiff. On Friday, we are out running around like crazy, and he seems fine, but he is still rather subdued, no appetite. On Saturday, he is busy - he goes to a Lego Fair with dh, and comes home and is content ot play with Lego for hours - which is what I expected. Yesterday, we are at the pool, and he comes over to me to tell me that I have ALOT of gray hairs (I need a touch-up) and as he is reaching to my head, I see a 'mark' on his arm about halfway between his elbow and wrist (on the underside). And if you are still with me, thank you. The mark is round, the size of a dime, and looks like a bruise - 'that' color, the color of a bruise. Inside the bruise-colored, dime size circle it is white and in the center, it looks like a scratch or a splinter. It doesn't hurt if I touch it, I ask him if he remembers when this appeared, and he doesn't, but he says he knows he had it the day before b/c he and dh noticed it at the Lego Fair. Because we have been battling chronic Lyme Disease with dd30 for 7 years now, the alarms go off: headache, achiness, lack of appetite, fatigue. This morning, the mark looks like a dime sized bruise - different from yesterday but it is there. I am going to call the peds office and speak to the nurse about ds being seen by our ped in the practice as I like her and she at least pretends that she doesn't think I am a nut job.:tongue_smilie: I don't think I am over-reacting, but I am so tired of being pooh-poohed as far as Lyme disease - especially since we are already living with dd's nightmare. Am I over-reacting? (be kind) Thanks ETA: We are going today at 3:30 and we will see our regular ped. We could have seen 'Dr. I don't think it's anything, let me tell you how folks get too worked up over Lyme's' but thankfully our ped does the afternoon and evening today so we will see her. THANK YOU all for your reponses -- do you know, my dd30 told me yesterday that she now remembers at the beginning of med school, she had two dime-sized bruises on her legs and she thought they were from her bicycle or something and she ignored them. THANK YOU for your encouragement. Edited August 9, 2010 by MariannNOVA update Quote Link to comment Share on other sites More sharing options...
SproutMamaK Posted August 9, 2010 Share Posted August 9, 2010 Absolutely not. Those are all classic symptoms. Push for the test, then push harder, and if they won't give you one, go somewhere else. Quote Link to comment Share on other sites More sharing options...
PuddleJumper1 Posted August 9, 2010 Share Posted August 9, 2010 Absolutely not. Those are all classic symptoms. Push for the test, then push harder, and if they won't give you one, go somewhere else. :iagree: Quote Link to comment Share on other sites More sharing options...
HappyGrace Posted August 9, 2010 Share Posted August 9, 2010 Mariann, go today. And if you are pooh-poohed at the doctor, go to one who will accommodate you. You and I both know Lyme can change your dc's life. AND that it needs to be caught early. Go today. Praying for you! Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted August 9, 2010 Share Posted August 9, 2010 (edited) NO!!!!! Younger ds was seen in the peds office because he the exact thing you explain, and the bulls eye rash was as you explain, dark purple, about the size of a dime or nickel. Because of the color, I immediately took him in for an evaluation. Two doctors looked at it as well as a nurse. They had never seen anything like it! They said the "splinter" in the middle was the head that hadn't come out. They looked at it with a magnifying glass, close up, and the drs were concerned. They called me for weeks asking if dh had flu symptoms, headaches, etc. After a few weeks they stopped calling because he never developed those symptoms. You are not crazy, you are being a good mom!!!!! Edited August 9, 2010 by Denisemomof4 Quote Link to comment Share on other sites More sharing options...
Matryoshka Posted August 9, 2010 Share Posted August 9, 2010 Forget the test - they're notoriously inaccurate, and if it's a false negative, then they won't treat. Will your DO treat based on symptoms? We see a Lyme-literate DO (though not for Lyme), and I know he'd probably just give antibiotics if he suspected Lyme based on the symptoms. My dd had Lyme last winter - never had a bullseye, fever or joint pain, have no idea when she'd been bitten - and I'm sooo careful (we live in the county with the highest or second-highest Lyme cases worldwide). She just had chronic headache and stomachache - I thought it was strep, but the tests always came back negative. In this case the test did work to our advantage, as regular Dr. actually suggested it and it came back positive. :eek: You've dealt with chronic Lyme - I'd rather give potentially unnecessary antibiotics for a few weeks than deal with that for *years*. Quote Link to comment Share on other sites More sharing options...
Mynyel Posted August 9, 2010 Share Posted August 9, 2010 Go tot he DR. don't let them poo-poo you and please keep us posted!! Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Absolutely not. Those are all classic symptoms. Push for the test, then push harder, and if they won't give you one, go somewhere else. Thank you for the encouragement......and for making me feel less like I am over-reacting. I will push for the doxycycline - the test I don't care baout one way or the other b/c of the CDC parameters - but the doxy I will definitely push for. THANKS!:grouphug: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Absolutely not. Those are all classic symptoms. Push for the test, then push harder, and if they won't give you one, go somewhere else. :iagree: Thank you --Thank you. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Mariann, go today. And if you are pooh-poohed at the doctor, go to one who will accommodate you. You and I both know Lyme can change your dc's life. AND that it needs to be caught early. Go today. Praying for you! You are SO right - thank you -- thank you for the prayers.:grouphug: Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted August 9, 2010 Share Posted August 9, 2010 Please keep us posted, Mariann. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 NO!!!!! Younger ds was seen in the peds office because he the exact thing you explain, and the bulls eye rash was as you explain, dark purple, about the size of a dime or nickel. Because of the color, I immediately took him in for an evaluation. Two doctors looked at it as well as a nurse. They had never seen anything like it! They said the "splinter" in the middle was the head that hadn't come out. They looked at it with a magnifying glass, close up, and the drs were concerned. They called me for weeks asking if dh had flu symptoms, headaches, etc. After a few weeks they stopped calling because he never developed those symptoms. You are not crazy, you are being a good mom!!!!! Denise: Thank you. We are going this afternoon. AND: on a different note, what is going on with you and your ankle?:grouphug: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Forget the test - they're notoriously inaccurate, and if it's a false negative, then they won't treat. Will your DO treat based on symptoms? We see a Lyme-literate DO (though not for Lyme), and I know he'd probably just give antibiotics if he suspected Lyme based on the symptoms. My dd had Lyme last winter - never had a bullseye, fever or joint pain, have no idea when she'd been bitten - and I'm sooo careful (we live in the county with the highest or second-highest Lyme cases worldwide). She just had chronic headache and stomachache - I thought it was strep, but the tests always came back negative. In this case the test did work to our advantage, as regular Dr. actually suggested it and it came back positive. :eek: You've dealt with chronic Lyme - I'd rather give potentially unnecessary antibiotics for a few weeks than deal with that for *years*. I agree - I am not a fan of the test (I could tell you stories about the test) -- I just want the doxy.......and I hadn't thought of Dr. R (our DO) prescribing doxy, but she would come to think of it. I am on a mission to get doxy into that kid - if I don't get it at the peds office, I will get it someplace. Thanks for your encouragement - and your advice.:) Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Go tot he DR. don't let them poo-poo you and please keep us posted!! Thank you - we are going this afternoon. I will be working on my 'GIVE US THE DOXY' posture.;) Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Please keep us posted, Mariann. I will.:001_smile: Quote Link to comment Share on other sites More sharing options...
LizzyBee Posted August 9, 2010 Share Posted August 9, 2010 My 9 yo dd is being treated for possible lyme disease. I expected to be shot down at the dr office, but I guess they've finally seen enough of it to start taking it seriously. Let us know how your dr visit goes. Quote Link to comment Share on other sites More sharing options...
Mejane Posted August 9, 2010 Share Posted August 9, 2010 Agree about going asap. If the test comes out negative, as they often do, you can investigate IgeneX Labs. They carry much more sensitive test kits. I believe you would have to pay for it, but it would be worth it. I've had lyme, too; it's not something to mess with. Good luck! Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted August 9, 2010 Share Posted August 9, 2010 (edited) Denise: Thank you. We are going this afternoon. AND: on a different note, what is going on with you and your ankle?:grouphug: please post here when you come back! I'm going to the dr. tomorrow, and am on my icing/OTC pain meds still. The pain meds are helping my sore hiney. ;) Edited August 9, 2010 by Denisemomof4 Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 please post here when you come back! I'm going to the dr. tomorrow, and am on my icing/OTC pain meds still. The pain meds are helping my sore hiney. ;) :lol::lol::lol: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Agree about going asap. If the test comes out negative, as they often do, you can investigate IgeneX Labs. They carry much more sensitive test kits. I believe you would have to pay for it, but it would be worth it. I've had lyme, too; it's not something to mess with. Good luck! Thanks for the info - good info! I'm familiar with Igenex -- I've written checks to them for dd30 when we were having testing done. Yes, they are worth it. Thanks for the good wishes.:) Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 My 9 yo dd is being treated for possible lyme disease. I expected to be shot down at the dr office, but I guess they've finally seen enough of it to start taking it seriously. Let us know how your dr visit goes. LizzyBee: Thanks for the vote of confidence -- truly. I am totally expecting to be shot down at the office even though I know he is presenting with classic symptoms........I do so hope you are right about them finally taking it seriously. Thanks again :) Quote Link to comment Share on other sites More sharing options...
newlifemom Posted August 9, 2010 Share Posted August 9, 2010 Praying Mariann. You know not to mess with it. :grouphug: Quote Link to comment Share on other sites More sharing options...
Catwoman Posted August 9, 2010 Share Posted August 9, 2010 (edited) You are absolutely not over-reacting! Please do not leave the doctor's office without a prescription for antibiotics -- as others have said, your ds has classic symptoms of Lyme. Be sure to mention that the rash was definitely a bullseye rash, and be very firm about it. Don't let the words, "I think" or "maybe" enter the conversation! Let the doctor know that you know what you're talking about, and don't waver. As you already know, Doxycycline is the most effective antibiotic for Lyme, and since your ds is 9, he can take it safely without much concern about tooth discoloration. (It's not recommended for children under 8 years old.) Amoxycillin can be effective, particularly if it is given before symptoms appear (although it didn't work at all for me,) but your ds already has symptoms, so if he were my son, I would insist on the doxycycline, and I would strongly request a 30-day supply. I know a lot of doctors only give the antibiotics for a week or two, but stress that your ds already has symptoms and you don't want to take any chances. You want the Lyme GONE. I suffered with Lyme for years, and I know all about doctors who prescribe antibiotic creams (which are NOT effective) and the doctors that don't like to prescribe enough antibiotics or prescribe the wrong one, despite the fact that Lyme can be devastating and hold on for years if you don't knock it out quickly with strong medications, taken for a long enough period of time. Be prepared to put up a fight about it if you have to. As you already know, your ds's long-term health is at stake, and he's still at a stage where the antibiotics can be completely effective if he takes them immediately and for about 30 days. The goal is to get rid of the Lyme now, and to prevent recurrences. Just because symptoms may go away after a week or two of antibiotics, doesn't mean the Lyme isn't still active, and blood tests may not show anything conclusive for quite some time. (At this stage, bloodwork would be relatively worthless for your ds, so if it were me, I wouldn't put him through a test that will need to be repeated later anyway. Have him take the medication and have his blood tested in about a month, and make sure they do a Western Blot test.) Please let us know how it goes at the doctor -- I hope you get one with enough sense to realize that you can't take chances with Lyme, and it's better to err on the side of caution. No one likes the idea of taking antibiotics for longer than is necessary, but if you don't hit the Lyme hard and for about 30 days right now, your ds could end up taking the antibiotics for many months at a time over a period of years. (Ask me how I know... :glare:) Good luck this afternoon -- I'll pray that your ds is feeling better very soon! :grouphug::grouphug::grouphug: Cat Edited August 9, 2010 by Catwoman Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Praying Mariann. You know not to mess with it. :grouphug: Appreciate it -- thanks!:) Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Please do not leave the doctor's office without a prescription for antibiotics -- as others have said, your ds has classic symptoms of Lyme! Be sure to mention that the rash was definitely a bullseye rash, and be very firm about it. Doxycycline is the most effective antibiotic for Lyme, and since your ds is 9, he can take it safely without much concern about tooth discoloration. (It's not recommended for children under 8 years old.) Amoxycillin can be effective, particularly if it is given before symptoms appear, but your ds already has symptoms, so if he were my son, I would insist on the doxycycline, and I would ask for a 30-day supply. I know a lot of doctors only give the antibiotics for a week or two, but stress that your ds already has symptoms and you don't want to take any chances. You want the Lyme GONE. I suffered with Lyme for years, and I know all about doctors who prescribe antibiotic creams (which are NOT effective) and the doctors that don't like to prescribe enough antibiotics, despite the fact that Lyme can be devastating and hold on for years if you don't knock it out quickly with strong medications, taken for a long enough period of time. Be prepared to put up a fight about it if you have to. As you already know, your ds's long-term health is at stake, and he's still at a stage where the antibiotics can be completely effective if he takes them immediately and for about 30 days. The goal is to get rid of the Lyme now, and to prevent recurrences. Just because symptoms may go away after a week or two of antibiotics, doesn't mean the Lyme isn't still active, and blood tests may not show anything conclusive for months. (At this stage, bloodwork would be relatively worthless for your ds. Have him take the medication and have his blood tested in about a month, and make sure they do a Western Blot test.) Please let us know how it goes at the doctor -- I hope you get one with enough sense to realize that you can't take chances with Lyme, and it's better to err on the side of caution. No one likes the idea of taking antibiotics for longer than is necessary, but if you don't hit the Lyme hard and for about 30 days right now, your ds could end up taking the antibiotics for many months at a time over a period of years. (Ask me how I know... :glare:) Good luck this afternoon -- I'll pray that your ds is feeling better very soon! :grouphug::grouphug::grouphug: Cat Thanks -- I know that everything you say is true and I cannnot thank you enough for taking the time to write all that info. We have been suffering with my dd30 for 7 years now and only learned 3.5 years ago that we were dealing with lyme disease - and that was due to our non-stop research for months and finally everything clicked. I am so relieved that I saw the mark on ds' arm or I would have attributed his lethargy and aches and pains to 'summer malaise.' I have stocked up on oranges (Vit C), cholostrum, and a host of other things that dd30 feels is important to support his little body while he fights this - and I fully intend to arrive home this afternoon with a prescription for Doxycycline for 30 days - I would prefer 45, but if I can get 30 days, I will do cartwheels in the parking lot of the ped's office. Thank you again for everything you wrote -- there are always folks here asking questions about Lyme and hopefully they will find your post when they search - excellent info. Quote Link to comment Share on other sites More sharing options...
sleepymommy Posted August 9, 2010 Share Posted August 9, 2010 Glad to hear it went well at the Dr.'s office! We went on a week long camping retreat the week before last and ds1 ended up with multiple ticks on him one day. He was warm for a couple of days and welps on the areas he was bit but did not have any other signs of illness. Our ped, who is very holistically minded, prescribed him amoxcicillan over the phone immediately. He said he had just seen too many cases of Lyme disease and didn't like to take chances. So now ds1 (who I'm proud to say has never taken any oral antibiotics in his life up to now) is on a 3 week course of Amoxy. Ds1 already has really bad gut issues so I am disheartened that all the healing we've accomplished up to now may be reversed, but I'd rather take that than have him deal with Lyme. I'm sorry that you've had to deal with Lyme with your dd. I can't imagine how any doctor could have the audacity to suspect you of being overly cautious when it's already something you have to deal with in your family. I'm so glad you were able to get the meds for your son and kudos for being such a proactive mom! Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 Glad to hear it went well at the Dr.'s office! We went on a week long camping retreat the week before last and ds1 ended up with multiple ticks on him one day. He was warm for a couple of days and welps on the areas he was bit but did not have any other signs of illness. Our ped, who is very holistically minded, prescribed him amoxcicillan over the phone immediately. He said he had just seen too many cases of Lyme disease and didn't like to take chances. So now ds1 (who I'm proud to say has never taken any oral antibiotics in his life up to now) is on a 3 week course of Amoxy. Ds1 already has really bad gut issues so I am disheartened that all the healing we've accomplished up to now may be reversed, but I'd rather take that than have him deal with Lyme. I'm sorry that you've had to deal with Lyme with your dd. I can't imagine how any doctor could have the audacity to suspect you of being overly cautious when it's already something you have to deal with in your family. I'm so glad you were able to get the meds for your son and kudos for being such a proactive mom! Hi, Tina: No, we don't have the meds yet, our appointment is at 3pm but I do intend to walk out of there with a prescription. Sounds to me like your little guy needs excellent quality kids probiotics -- I will PM you a link - they are expensive but MOST of the inflammation from lyme disease settles in the gut and good probiotics are a MUST. Look for my PM. And, I'm so sorry this happened to your ds.:crying: Quote Link to comment Share on other sites More sharing options...
woolybear Posted August 9, 2010 Share Posted August 9, 2010 No, you are not overreacting, especially since you have been (are still?) through this before. I have BTDT. I have way too much experience with lyme disease and other tick borne illnesses. It's great that your doctor doesn't pooh-pooh these things, but it would be especially helpful if you had access to a lyme literate doctor as well. Whatever it is, it sounds like your ds needs to see a doctor. I am hoping for all the best.:grouphug: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 No, you are not overreacting, especially since you have been (are still?) through this before. I have BTDT. I have way too much experience with lyme disease and other tick borne illnesses. It's great that your doctor doesn't pooh-pooh these things, but it would be especially helpful if you had access to a lyme literate doctor as well. Whatever it is, it sounds like your ds needs to see a doctor. I am hoping for all the best.:grouphug: Thanks -- yes, we are still in the thick of this with dd. I am on my way out the door with ds right now -- thank you so mnuch for your good thoughts -- will update later.:) Quote Link to comment Share on other sites More sharing options...
sleepymommy Posted August 9, 2010 Share Posted August 9, 2010 Hi, Tina: No, we don't have the meds yet, our appointment is at 3pm but I do intend to walk out of there with a prescription. Sounds to me like your little guy needs excellent quality kids probiotics -- I will PM you a link - they are expensive but MOST of the inflammation from lyme disease settles in the gut and good probiotics are a MUST. Look for my PM. And, I'm so sorry this happened to your ds.:crying: Thank you! Quote Link to comment Share on other sites More sharing options...
jenL Posted August 9, 2010 Share Posted August 9, 2010 Looking forward to an update... I hope you are able to get the meds your son needs. Lyme is so frightening! Praying for you! Quote Link to comment Share on other sites More sharing options...
Catwoman Posted August 9, 2010 Share Posted August 9, 2010 I have stocked up on oranges (Vit C), cholostrum, and a host of other things that dd30 feels is important to support his little body while he fights this - and I fully intend to arrive home this afternoon with a prescription for Doxycycline for 30 days - I would prefer 45, but if I can get 30 days, I will do cartwheels in the parking lot of the ped's office.[/color][/size][/font] I was going to suggest 45 days, but thought you might think I was some kind of extremist nut... ;) Glad to hear we're on the same page! :) I'm thinking that you should ask for 45 days and "settle" for 30 if you can't get the full 45. One more thing -- make sure your ds has something to eat with the doxy, because it can be hard on his stomach. Also, be sure he drinks a full 8 ounce glass of water with it and doesn't lie down afterward for at least 30 minutes. I didn't know that at first, and ended up with a pretty severe burn in my esophagus when the pill didn't go down all the way and dissolved in my esophagus. I thought I was having a heart attack, and the pain didn't go away for a few weeks. It even hurt to eat and drink for several days. I'm so sorry about your dd. So many people have Lyme, yet many doctors just don't have a clue. :banghead: Cat Quote Link to comment Share on other sites More sharing options...
Mejane Posted August 9, 2010 Share Posted August 9, 2010 Forgot to mention in my previous post... You might also consider seeing a naturopath. Mine gave me syphillinum as lyme is in the same class as syphillus, which is why it can mess with your brain (lovely, huh?). I had severe neurological effects. My naturopath also told me to take Cat's Claw. I think the combination of these and the antibiotics (doctor would only prescribe two weeks worth - *ss) was what healed me. hth. Quote Link to comment Share on other sites More sharing options...
~Kirsten~ Posted August 9, 2010 Share Posted August 9, 2010 :grouphug: I can't add anything that hasn't already been said, but I'll be praying. I know you'll insist on antibiotics, which is definitely good. I second/third/whatever the notion that a blood test at this point is going to be inconclusive at best (we tested about 1 month after initial symptoms, and it was negative; 6 months later we had full-blown arthritic Lyme, one more negative and finally a positive test). Even my ped won't give antibiotics simply for an engorged tick (ahem, yes, I tried), but with the symptoms and your history, I know I'd be able to get at least 30 days, as long as I acknowledged the potential problems with doing this too often. Anyway, I'm so, so sorry you're dealing with this. I'll watch for an update! :grouphug: Quote Link to comment Share on other sites More sharing options...
Pippen Posted August 9, 2010 Share Posted August 9, 2010 Be sure to take pictures of the rash right away if you haven't already. Quote Link to comment Share on other sites More sharing options...
HappyGrace Posted August 9, 2010 Share Posted August 9, 2010 Just checking back in for an update-let us know how you made out! :grouphug: Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted August 9, 2010 Share Posted August 9, 2010 Checking for the update, too. Quote Link to comment Share on other sites More sharing options...
SproutMamaK Posted August 9, 2010 Share Posted August 9, 2010 bumping! I hope you got a script for him without too much of a fight! Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 We are home -- the wait in the office was interminable -- SO many sick kids - nasty cough going around. We have our scrip........we will start tomorrow right after we have blood work drawn - I'm okay with that. She is having a CBC, Lyme Titer, and test for mono -- as long as I have waht I went for, I am fine with the other stuff. She will call with the blood test results......the lab was already closed by the time we got out of there - 4:45 -- and then sitting in NoVa traffic it took forever to run one errand, drop off the prescription, and get home and quickly get the kids something to eat. DS ate RICE. When I was a kid, rice was what I loved to eat when I was sick -- that apple didn't fall far from the tree. So, he is still rather pokey - but I am relieved that we can get things going tomorrow. DH is out at Whole Foods stocking up on tons of fruit and veggies as dd30 says that one MUST consume TONS of fresh fruit and veggies (among a ton of other stuff) to support their body while it is fighting lyme's. Thank you all SO much for your good thoughts, prayers, and concern. The reassurance did help me alot. :grouphug: PS - DD31 just called (they are coming wednesday to stay for three days) -- Grandchild #3 is due on 3/28/11! :svengo: Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted August 9, 2010 Share Posted August 9, 2010 I'm so glad you left with the prescription in hand, and pray that it nip it in the bud and he's feeling well SOON!!!!! Quote Link to comment Share on other sites More sharing options...
HappyGrace Posted August 9, 2010 Share Posted August 9, 2010 Excellent work, Mariann! Will pray for healing. Don't forget the probiotics! I know your dd will advise them anyway. And congrats to you, Grandma! Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted August 9, 2010 Share Posted August 9, 2010 Way to go, Mariann. I hope the tests come back negative and that your DS feels better soon. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted August 9, 2010 Share Posted August 9, 2010 I'm so glad you got the prescription without any trouble, Mariann!!! And congratulations to your dd on her pregnancy!!! Cat Quote Link to comment Share on other sites More sharing options...
Jennifer in MI Posted August 9, 2010 Share Posted August 9, 2010 :grouphug::grouphug::grouphug: I'm just seeing this! I'll pray for you and keep an eye on this thread. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 9, 2010 Author Share Posted August 9, 2010 :grouphug::grouphug::grouphug: I'm just seeing this! I'll pray for you and keep an eye on this thread. Jennifer: thank you - I do indeed covet your prayers. And, where have you been? Is everytjing ok? You can PM if you want. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 10, 2010 Author Share Posted August 10, 2010 Forgot to mention in my previous post... You might also consider seeing a naturopath. Mine gave me syphillinum as lyme is in the same class as syphillus, which is why it can mess with your brain (lovely, huh?). I had severe neurological effects. My naturopath also told me to take Cat's Claw. I think the combination of these and the antibiotics (doctor would only prescribe two weeks worth - *ss) was what healed me. hth. Cat's Claw is good stuff for lyme's. DD30's lyme doc has a naturopathic store and I am on my way there tomorrow with a shopping list.:) :grouphug: I can't add anything that hasn't already been said, but I'll be praying. I know you'll insist on antibiotics, which is definitely good. I second/third/whatever the notion that a blood test at this point is going to be inconclusive at best (we tested about 1 month after initial symptoms, and it was negative; 6 months later we had full-blown arthritic Lyme, one more negative and finally a positive test). Even my ped won't give antibiotics simply for an engorged tick (ahem, yes, I tried), but with the symptoms and your history, I know I'd be able to get at least 30 days, as long as I acknowledged the potential problems with doing this too often. Anyway, I'm so, so sorry you're dealing with this. I'll watch for an update! :grouphug: Thanks -- and I agree about the blood test, but that is apparently office protocol where we go - I'm just so relieved that we were able to get the antibiotics. Thanks for the prayers. And, OMH - no antibiotics with an engorged tick - I'd be livid. Be sure to take pictures of the rash right away if you haven't already. Did that - yup, great suggestion.;) I'm so glad you left with the prescription in hand, and pray that it nip it in the bud and he's feeling well SOON!!!!! :grouphug: Excellent work, Mariann! Will pray for healing. Don't forget the probiotics! I know your dd will advise them anyway. And congrats to you, Grandma! :grouphug: and thank you. Way to go, Mariann. I hope the tests come back negative and that your DS feels better soon. Thank you, DA I'm so glad you got the prescription without any trouble, Mariann!!! And congratulations to your dd on her pregnancy!!! Cat Thank you and thank you.:) Quote Link to comment Share on other sites More sharing options...
sleepymommy Posted August 10, 2010 Share Posted August 10, 2010 Forgot to mention in my previous post... You might also consider seeing a naturopath. Mine gave me syphillinum as lyme is in the same class as syphillus, which is why it can mess with your brain (lovely, huh?). I had severe neurological effects. My naturopath also told me to take Cat's Claw. I think the combination of these and the antibiotics (doctor would only prescribe two weeks worth - *ss) was what healed me. hth. Did you take the Cat's Claw along with the antibiotic or after the treatment? I'll have to look into this for ds. Thanks! Quote Link to comment Share on other sites More sharing options...
sleepymommy Posted August 10, 2010 Share Posted August 10, 2010 Great news Mariann!! Maybe we could make a cheat sheet on the good stuff to take and do while treating this? Probiotics Cats Claw Fresh Fruits and veggies Lots of water anything else Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted August 10, 2010 Share Posted August 10, 2010 Mariann - I am sending you a PM. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 10, 2010 Author Share Posted August 10, 2010 Great news Mariann!! Maybe we could make a cheat sheet on the good stuff to take and do while treating this? Probiotics Cats Claw Fresh Fruits and veggies Lots of water anything else I think that is a good idea! Maybe we should start a social group? There is so much that we are able to do with the proper products that are out there and available to us. And, there is so much common sense stuff that one must do with Lyme's. Perhaps a social group? Quote Link to comment Share on other sites More sharing options...
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