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Fibroid Tumor...


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As much as I hate to be THAT girl, (the one who always has a horror story ready) I will share this one since you asked. My mom had a fibroid with my youngest sis. It shrank after delivery, but grew again about 2 years later. She ended up having an emergency hysterectomy. I honestly believe she was in the small minority, as these things usually resolve themselves in every other case I've heard of. My mother also has a very poor diet and never exercises or takes care of herself. Sometimes it is best to hear the good and bad side.

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Has anyone had a fibroid tumor in their uterus? It looks really weird. For about 2 seconds I thought I had the miracle baby!! But alas, just a stupid tumor. Any stories? good or bad, I don't care.

 

Yup I had one and three years ago had an hysterectomy to resolve problems related to the fibroid. I will tell you that I knew I had the fibroid ten years before I had the hysterectomy (although I probably needed the hysterectomy two years earlier than I actually did have it). I'll also tell you that initially the dr thought we could take care of my issues in non-surgical ways. Surgery is usually the last option.

 

BTW, having the hysterectomy immensely improved my life. I was 41 at the time and I think I gained ten years on my life the improvement was so dramatic.

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Any stories? good or bad, I don't care.

 

Mine's a good one :001_smile:. After I had my second child, I was sent for an ultrasound after complaining of lower back pain. They discovered an "almost golf-ball size" anterior uterine fibroid. My ob/gyn said we would just watch it. Well, about a year and a half later I had another U/S, and they found no sign of the fibroid.

 

I haven't had another and had no complications from that one. That was over 10 years ago.

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I had a baseball-sized one and it was surgically removed. The doctor was (as I learned LATER) one who loved to do the maximum she could to rack in the $$$ - instead of a less invasion laproscopic (sp) removal (which is what I THOUGHT I was getting as day surgery) cut me open like for a c-section and then keep me in the hospital FIVE days.

 

Then I went on to have all my kids :-) with another doctor - they were all c-sections...I kind count my fibroid as my "first" c-section ;-) as far as surgery goes.

 

I might add, we had been seeing a doctor since had not gotten pregnant after two years of trying...although in retrospect I wonder if a couple of my very late (think 54 days instead of 30ish) and heavy periods back then were early miscarriages (thanks a lot, big fibroid!).

 

Now I am 50 and, gee, it has been 66 days... am I free? Are they over? Should I get granny pants and bifocals (wait a minute - I ALREADY ware granny pants and bifocals!!!!!)

Edited by JFSinIL
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I got pregnant with my fibroid. I was on bed rest for the 2nd half of my pregnancy. The nest pregnancy went fine. The fibroids went away. I also had laproscopic surgery for endometriosis and that stopped all the bleeding and pain before the pregnancies. I think you have to see what kind of symptoms you have to decide if you need to have them removed or not. Also the doctor said that removing them can cause scar tissue and that's why he wanted me to try and get pregnant first. I'm sorry it wasn't a sweet little one.

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I have three fibroids - now that I'm FIFTY-FIVE (!!!!!)and it appears I am NOT going to have a period any longer, they have shrunk and are not causing any problems.

 

They did flare up unbelievably when I was pg with the twins -- no surprise.

 

I do have a funny story, though -- when I was pg with the twins, I was on the phone with DD who was then 21yrs old and a senior in college. I told her that my FIBROIDS were giving me some pain because of the pressure of such a large uterus. She sympathized, but sounded puzzled. The next day when we spoke again, she said to me: "Mom, my roommates and I are really confused - we didn't think the THYROID was anywhere near the uterus -- why is your uterus aggravating your thyroid? :confused:" :lol::lol::lol: I laughed so hard -- and if you've ever been sixty inches in circumference, you can imagine what happened next!

 

Mariann

Edited by MariannNOVA
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I had a fibroid that was first diagnosed (my gyn could feel it when pressing on my uterus) shortly after my daughter was born. (So, about 18-19 years ago.)

 

I think it grew gradually over the years because my periods got heavier and heavier. When I would ask about this at appointments, I mostly just heard that it's normal to get more bleeding as one gets older...could be fibroid...could be just hormonal changes...we can do a hysterectomy if it bothers you too much. I wanted very much to have more kids, so I didn't get a hysterectomy.

 

In 2001, my son was born and had to be delivered C-section because he was turned sideways and wouldn't turn head down. During the C-sec my doctor said "Hey, that's one HECK of a fibroid in there!"

 

First period after my son's birth I ended up in the ER because I was bleeding profusely. This started a year long journey of going from doctor to doctor and being told that I had a hormone imbalance, fibroids couldn't cause that bleeding, take Provera or get a hyst. I took Provera for several months. It didn't help. Meanwhile I was getting so anemic that I was dizzy and lightheaded a lot of the time.

 

My mom had a vaginal hyst and has had prolapse problems ever since. I really, really, didn't want a hyst. Plus I didn't want it done by doctors who didn't want to try to find the source of the problem (wouldn't even do an u/s to see if the fibroid could be the problem). They also did not believe I was really bleeding that much... "Oh, women always think they bleed more than they really do."

 

Finally found a doctor who does myomectomys (fibroid removal surgery). She asked what my symptoms were and I said "I bleed so much that many days of the month I cannot leave the house. I am dizzy from being anemic." She very calmly said "That's not good. Let's see what we can do to take care of this." A few months later she did surgery. I had a wonderful easy recovery and my cycles since have been like they were when I was a teenager. (They are getting farther apart now, but that's perimenopause and it's not a problem.)

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In 2001, my son was born and had to be delivered C-section because he was turned sideways and wouldn't turn head down. During the C-sec my doctor said "Hey, that's one HECK of a fibroid in there!"

 

 

 

The doctor found a fibroid during my C-sec and removed it then (I later had more) Just wondering why the doctor didn't take it out when he was delivering your ds? Or did you have a new one causing problems?

 

Mary

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My grandma, mom, and maternal aunt all had hysterectomies in their late 40's due to fibroids. My grandma's doc scared her into it. My mom needed to have it done, since hers was the size of a 20-week fetus. My aunt just wanted to get things over with, I think. I was told back when I had #4 that I had a few fibroids. No one has ever mentioned them again. Oh wait, except for once when I was having an ultrasound during my last pregnancy and that was because I specifically asked if they were still there. They were, but they were very small. If they grow again, I wouldn't mind having a hysterectomy now that I'm 40. My grandma and aunt both died this week of reproductive cancers and I had HPV in my 20's so I'm probably at a higher risk of cervical and/or uterine cancer. I may ask about it whenever I get around to going for my pap at the gyno-spa.

 

Barb

 

ETA: I forgot to add that estrogen has been linked to fibroid growth. If you carry extra weight, the resulting higher levels of estrogen can cause them to get worse. Other than that, fibroids are a mystery. They really don't know what causes them other than some people are genetically prone to them. :confused:

Edited by Barb F. PA in AZ
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I had a fibroid that was causing me to have contractions. It was grapefruit sized. My OB/GYN said I had to have a hysterectomy. He said, "You've have three kids, you'll be fine." I did not agree with him so I went to a fertility specialist in Chicago. I figured the best person to consult would be somone whose life's work is devoted to preserving a woman's fertility! Well, I was right. He removed the tumor and I had DD8 about 3 years later when I was 38 - no complications. I had the full surgery, not laparoscopy - my tumor was too big and I didn't want the drugs to shrink it. It wasn't that big a deal.

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My grandma, mom, and maternal aunt all had hysterectomies in their late 40's due to fibroids. My grandma's doc scared her into it. My mom needed to have it done, since hers was the size of a 20-week fetus. My aunt just wanted to get things over with, I think. I was told back when I had #4 that I had a few fibroids. No one has ever mentioned them again. Oh wait, except for once when I was having an ultrasound during my last pregnancy and that was because I specifically asked if they were still there. They were, but they were very small. If they grow again, I wouldn't mind having a hysterectomy now that I'm 40. My grandma and aunt both died this week of reproductive cancers and I had HPV in my 20's so I'm probably at a higher risk of cervical and/or uterine cancer. I may ask about it whenever I get around to going for my pap at the gyno-spa.

 

Barb

 

ETA: I forgot to add that estrogen has been linked to fibroid growth. If you carry extra weight, the resulting higher levels of estrogen can cause them to get worse. Other than that, fibroids are a mystery. They really don't know what causes them other than some people are genetically prone to them. :confused:

 

So when you are overweight your estrogen goes up? I am about 30lbs overweight right now and cannot seem to get rid of it. I just started swimming during my dd9 swim pratice but with dd6 in the same lane it doesn't go very well:glare:

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So when you are overweight your estrogen goes up? I am about 30lbs overweight right now and cannot seem to get rid of it. I just started swimming during my dd9 swim pratice but with dd6 in the same lane it doesn't go very well:glare:

 

Fat cells produce and store estrogen as well as other hormones. Excess body fat can contribute to excess estrogen just as too litte body fat can cause a woman to stop menstruating altogether.

 

Here's a really interesting article which explains the role of fat cells in the endocrine sytem and in immunology: http://www.washingtonpost.com/ac2/wp-dyn/A43258-2004Jul11?language=printer

 

Losing weight won't miraculously cure fibroids, but excess estrogen is a contributing factor. Can't hurt...may help.

 

Barb

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A year after we got married and with no pg (we were trying), my OB/Gyn felt a lump and the US showed a grapefruit-sized fibroid tumor. Kind of wierd - back then I had a very flat tummy and you couldn't tell I had the thing - I had had no real problems except rather heavy periods (but not extremely so). However, it was imbedded in the uterine wall and she thought it might be affecting implantation.

 

Back then (1998) the only real options were hysterctomy or myomectomy (surgical removal of the fibroid). Went for the latter, of course - it was pretty much like a C-section, only you ended up with a lump in a jar, not a baby. It was supposed to be a 6-week recovery thing, although I was getting around fine at 2 weeks. Surgery was long (becaause the fibroid was imbedded in the wall) but seemed to go okay. I had to have C-sections after that because of the extensive cutting into the uterus - docs didn't think my uterus could stand up to labor, so I always delivered 3 weeks early.

 

Now, they have some cool laser and cauterization methods that are much less invasive and still preserve the uterus. I have another fibroid growing (it was first noticed during my last C-section) and if it becomes a problem, I'll do the cauterization thing.

 

I think your course of action depends on whether you anticipate future pregnancies, where the fibroid is located (growing in the wall is the toughest), and how much it is bothering you.

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The doctor found a fibroid during my C-sec and removed it then (I later had more) Just wondering why the doctor didn't take it out when he was delivering your ds? Or did you have a new one causing problems?

 

Mary

 

 

Well, this doctor was one of the ones who later would only consider doing a hysterectomy, so it's possible he either had never done a myomectomy or was opposed to them on principle. (I heard "It will just grow back" a lot.)

 

More likely, though, I think it was because this was an emergency C-section. I had severe pregnancy-induced hypertension, was beginning to spill lots of protein in my urine, and basically was teetering on the edge of full-blown eclampsia. The strategy was to get DS delivered as quickly as possible and then start pumping me full of drugs to lower my blood pressure and keep me from having a stroke.

Edited by SapphireStitch
typo
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A year after we got married and with no pg (we were trying), my OB/Gyn felt a lump and the US showed a grapefruit-sized fibroid tumor. Kind of wierd - back then I had a very flat tummy and you couldn't tell I had the thing - I had had no real problems except rather heavy periods (but not extremely so). However, it was imbedded in the uterine wall and she thought it might be affecting implantation.

 

Back then (1998) the only real options were hysterctomy or myomectomy (surgical removal of the fibroid). Went for the latter, of course - it was pretty much like a C-section, only you ended up with a lump in a jar, not a baby. It was supposed to be a 6-week recovery thing, although I was getting around fine at 2 weeks. Surgery was long (becaause the fibroid was imbedded in the wall) but seemed to go okay. I had to have C-sections after that because of the extensive cutting into the uterus - docs didn't think my uterus could stand up to labor, so I always delivered 3 weeks early.

 

Now, they have some cool laser and cauterization methods that are much less invasive and still preserve the uterus. I have another fibroid growing (it was first noticed during my last C-section) and if it becomes a problem, I'll do the cauterization thing.

 

I think your course of action depends on whether you anticipate future pregnancies, where the fibroid is located (growing in the wall is the toughest), and how much it is bothering you.

 

 

Dear God. I had a hysterectomy in 2007 because my fibroids were intramural. My dr. said they could not be removed except by a hysterectomy. I wasn't done having children (but the fibroids were causing severe bleeding, anemia and pain.)

 

I've been grieving that loss ever since. And to hear there was an option? I need to go lay down.

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Dear God. I had a hysterectomy in 2007 because my fibroids were intramural. My dr. said they could not be removed except by a hysterectomy. I wasn't done having children (but the fibroids were causing severe bleeding, anemia and pain.)

 

I've been grieving that loss ever since. And to hear there was an option? I need to go lay down.

 

Misty, I'm so sorry. Maybe in your case they were so deep there really was no other choice?

 

Barb

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