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Found 8 results

  1. Hello. I'm a fellow homeschooling mom of two boys. Two years ago my youngest son, Noah, was diagnosed with PANDAS/PANS. It has been very difficult for our family, as we have had to travel out-of-state for doctors and treatment, because despite having a vast medical community in our backyard, there is a gross lack of knowledge and acceptance of this diagnosis. As a result, we've been very fervent in our attempts to raise awareness. This coming Sunday, October 9th, is PANDAS/PANS Awareness Day, and I'm asking for your help in spreading the word. I've created a website, thepandasproject.com, as well as a Facebook page (The PANDAS Project). It has information about PANDAS/PANS, personal stories, and resources that can be shared. If you have any questions, feel free to message me, or email me at thepandasproject@gmail.com. Thank you 😊
  2. My ds has always had ocd tendencies (since birth, no joke), but his thoughts are now out of control. He's almost 13. His ocd thoughts terrify him and he's absolutely miserable. We started therapy this week with someone who specializes in ped psych and cognitive behavior therapy. Can you say a little bit about your experience with therapy and any meds. that may have helped? How have you helped your child, especially in the adolescent years? I'm pretty worried. thanks
  3. *Just 4 weeks ago she woke up one morning and began a hand washing ritual that was very excessive. (we were right in the middle of a move) *She's on medication and seeing a therapist now getting Cognitive Behavior Therapy (CBT). *Her compulsions change about every 3 days. *Hand washing is no longer an issue, either is her perfect handwriting on homework or touching her dirty clothes... she's moved on to "religious obsessionâ€. She’s repeating prayers in a certain way, very concerned with right and wrong and seeking reassurance for her “wrong†doing. (She would never so anything wrong she’s a good kid.) I wonder how CBT can help when her compulsions change so quickly? It’s hard to focus on changing a behavior if it doesn’t stick around long. Also the exposure response part of the CBT would be impossible since all her “exposures†are inside her head and it’s not like we can force her to touch a door knob and then help her to realize the anxiety will go away without washing her hand or whatever the compulsion is. Right now she’s not seeking reassurance she’s just blurting out her confession of her wrong doing so I can’t even get the chance to talk her through all the things suggested by her therapist to help fight back her OCD or her need to tell me. I’ve tried a different reward system about every 4 days, she really just doesn’t want to “try†to fight back at this point. Any suggestions to help her? Any ideas on how this treatment style can help? I would do of course anything to help her but each session is over $200 a week and I am having a hard time seeing how it could help her right now. :bigear:
  4. *Just 4 weeks ago she woke up one morning and began a hand washing ritual that was very excessive. (we were right in the middle of a move) *She's on medication and seeing a therapist now getting Cognitive Behavior Therapy (CBT). *Her compulsions change about every 3 days. *Hand washing is no longer an issue, either is her perfect handwriting on homework or touching her dirty clothes... she's moved on to "religious obsessionâ€. She’s repeating prayers in a certain way, very concerned with right and wrong and seeking reassurance for her “wrong†doing. (She would never so anything wrong she’s a good kid.) I wonder how CBT can help when her compulsions change so quickly? It’s hard to focus on changing a behavior if it doesn’t stick around long. Also the exposure response part of the CBT would be impossible since all her “exposures†are inside her head and it’s not like we can force her to touch a door knob and then help her to realize the anxiety will go away without washing her hand or whatever the compulsion is. Right now she’s not seeking reassurance she’s just blurting out her confession of her wrong doing so I can’t even get the chance to talk her through all the things suggested by her therapist to help fight back her OCD or her need to tell me. I’ve tried a different reward system about every 4 days, she really just doesn’t want to “try†to fight back at this point. Any suggestions to help her? Any ideas on how this treatment style can help? I would do of course anything to help her but each session is over $200 a week and I am having a hard time seeing how it could help her right now.
  5. I posted a question last month about my DD, now 7yo who exhibits many symptoms of OCD. I did make an apt. for her - with my PDoc, who is actually a child psychologist (who knew?). Her apt. is next week. The PDoc suggested that I tell DD not only that she is going to the "talk doctor" (that's what we call it around here), but why. I posted last time that I am hesitant to tell her that what she is doing isn't completely "normal", because she (DD) doesn't seem bothered by her own behaviors. I don't want her to think that she is somehow doing something "wrong" or "bad" (that is likely how she will see it). She is so sensitive... I asked the PDoc about it & she said that DD needs to understand that what she is doing is not helpful / normal / whatever - and that she is going to the talk doctor to figure out a better way to deal with it. But I still want to "protect" her, kwim? Any advice?
  6. I have a daughter who struggles with bipolar/ocd tendencies. Her meds often cause her to feel tired and she is easily frustrated by her school work. I really want to find a math program which would provide her with short, concrete lessons. We did Saxon this year and it was a battle day after day. It really could be that math will always be a battle but I guess I'm wondering if it has to be that way. She has said she does not want to learn with DVD's or on the computer. Could anyone suggest a gentle program that would give us short and to-the-point lessons? She's finishing up 5th grade, BTW. Thank you.
  7. Can anyone relate to this? I feel like a hamster on a wheel. I am exhausted from never-ending efforts to organize, declutter, decorate, rearrange . . . in eighteen years of marriage we've lived in eight homes. We've been in our current home for the longest period of time, going on five years, I think (but, within that five years, we moved out and moved back in once, and readied the house for market two additional times -- long story). So part of the problem is I'm just not good at living in one place (and one of the reasons we've tried to move several times is that this house just doesn't "fit" us; it has never felt like home). Still, I've done this in EVERY house we've ever lived in (it's just usually more fun than it is here). Spring and fall cleaning pretty much go on year round as I constantly try out new furniture arrangements, moving accessories, etc from one room to another (I probably spend more than I should on the house, but I don't think it's excessive, and it certainly isn't causing financial problems for us; mostly I just move stuff around). I used to enjoy this, now I wish I could stop but I just can't seem to tolerate things staying the same way. I look at pictures of our house from when it was on the market and feel a bit overwhelmed; it looked so BEAUTIFUL then with over half of our stuff in storage. So, I go on decluttering binges, but it seems to go from bad to worse. I am hauling stuff out in boxes and bags, but yet today, I found myself purchasing yet more storage bins in an effort to contain and organize stuff. We homeschool, dh and I both teach Sunday school, I have fifteen piano students. There are three instruments in the house. Those activities alone create an amazing amount of "clutter" but all of those things are important, part of who we are. I even like the idea of living surrounded by a certain happy mess of music and books. Yet for some reason I also feel compelled to spend hours working, working, working to organize all of it. Again, this used to be enjoyable to me -- not any more. When I try to relax, things end up getting so out of control that dishes literally fall out of the cabinets and force emergency cleaning. Sometimes I do get into periods of time when I go to the opposite extreme -- just doing the most essential cleaning (only what piano students could see, lol) and I just sit around reading blogs and drinking coffee, and let the house, laundry, and meals go to pieces. We eat a lot of cereal and frozen pizza. There doesn't seem to be a happy medium with me. This is a HUGE problem in our homeschooling. I have driven my poor children to distraction trying to make everything "perfect" to the point that we don't get anything done. There have been issues with completing curriculum, although overall I am satisfied with what we've accomplished. I have such a hard time starting schoolwork in the morning, because I can't concentrate unless the house is straight (which it NEVER is). I remember as a child spending my allowance on planners, organizers . . . I collected shoe boxes and covered them in pretty paper to use for storage. I grew up with a sense that being in control and having my act together was always *just* out of reach; and that I would finally relax if I ever reached that point. Obviously, I never have. For years I thought that EVERYONE lived this way, but I'm starting to get the idea that maybe this isn't normal. I mean, I know fighting clutter is normal for most families, especially homeschoolers. I do fight the cleaning battle pretty much alone -- I do spend a fair amount of time cleaning up after two family members who seem to be actually incapable of noticing their mess (leaving cabinet doors open, certain food items never returned to the fridge, laundry never in the hamper, etc). Still, I don't think it's beyond a normal family messiness. I have piano students in my house twice a week, so I do end up vaccuming, dusting, and cleaning the bathrooms at least twice a week (usually three times). The thing is, I can do that easily in less than an hour. It's not the day to day cleaning that I struggle with. We have three cats so plenty of vaccuuming is necessary. The house never really looks dirty, I'm just painfully aware of all the clutter lurking behind closet and cabinet doors. And then I make a huge mess trying to get it all straight. Everyone who knows me well is convinced that I have ADD. Maybe it's time to seek out treatment, I don't know. I do know that I am planning on homeschooling ninth and fifth grade next year, and if I don't get my act together soon, I'm going to start seriously doubting my ability to do that. I want my kids to remember learning and enjoying life together, not the constant frustration of a mom who can't quit moving junk around. I just want to get the house in order, and clean, cook, and do laundry like a normal person. My husband has next week off from work and we're going to tackle all sorts of chores around the house. I am hoping desperately that I can create some sense of order that I can maintain. Well, bless you if you've read this far. What I hoping is that some of you maybe have experience this same problem, and have OVERCOME it, and can tell me how to do that. Any suggestions?
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