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mom22kids

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Everything posted by mom22kids

  1. Correct! No probiotics or digestive enzymes. :)
  2. Thanks!! Hoping people can benefit from what we learned!
  3. Happy to share our most recent update: https://mermaidsmom.wordpress.com/2017/10/31/a-powerful-story-of-recovery/
  4. Just coming back to update as a few asked for me to do so. In grade 5 (almost 3 years ago) my daughter was officially diagnosed with ADHD. And every report card reflected that diagnosis and was accurate. Our school gives a "score" on each report card for 6 major learning skills: Time management, organization, self regulation etc. My daughter gets G (good) S (satisfactory) and they are being generous given the limitations - for example it was common for her to have a desk so messy that she would spend the entire class looking for the worksheet that was being utilized and miss the entire lesson. She had a person who would help her reorganize the mess every Friday so that she could find things. It took an hour each friday. Anyhow - we signed her up to Summer school this year (once we saw that her health was bouncing back we thought she could greatly benefit). They sent home a DAILY "report" that also scored these 6 skills along with comments about her learning that day. SHE GOT ALL E's (Excellent) most days - the odd G popped up. And the comments daily were - Stays focused and on task. Great time management. Great listening. Very organized and responsibe for her work space. I literally took photos of the report cards because we had to sign them and hand them back and I was afraid that they would not give them back! And she is still improving in all areas :) Has anyone else on here tried and seen any improvements?
  5. By the way I compiled a 12 page document of just SOME of the success stories that have rolled in from the FB group over the past 6 weeks. A handful of them have been published here: https://autonomicrecovery.shop/pages/testimonials-about-the-nemechek-protocol-for-autism-and-developmental-disorders Happy to email the entire document to anyone who is interested. Just message me :)
  6. Any yogurt that advertises itself as having additional probiotics (like Activia) is not a great idea. Natural occuring probiotics found in reg yogurt or homemade are fine :)
  7. You don't have to! LOL Both allowed :)
  8. An ebook was released yesterday that fully explains the protocol and how to use it. It is 1/2 price ($14.99) until the end of the month if anyone is interested. I doubt I can post the link but it is posted to his blog :) On a personal note - a year and 1/2 ago my daughter hung up her mermaid tail as she could no longer coordinate herself properly AND she was so fatigued and lethargic. Last Summer I tried numerous times to bring it with her to the pool she declined every time. A few days we went to the pool and she went under and swam the length. She popped up and said "Darn I should have brought my tail!". Since then is wearing it everyday. She has sore muscles all over as she is now using muscles that have not been used in a while :)
  9. My understanding is that suramin is very toxic and should be better researched before used in this way.
  10. Further improvements!! In the last 2 weeks my daughter is improving rapidly! The last 5 days have the best in years! Her energy is amazing. She never stops moving. Last Summer she didn't want to swim or use stairs and found it to be draining juts to stand. Now she is challenging her brother to races around the BLOCK and almost beating him! Her tolerance for touch has improved so much. Now she hugs me. Before she tolerated being hugged but was limp armed. Now she hugs back and initiates hugs. She asks for healthier foods. Not unusual to see her eating cherries etc. She eats 2 apples before bed every night. She loved apples years ago but hasn't been able to eat them in at least 2-3 years. Now she likes them again. Its almost like her body is repairing itself and turning back time. She is sleeping better, no sensory issues, her CAPD is resolved. She has her spark back! We still have moments where she struggles to find the word for something. And she can still go to say something and forget what she was about to tell us. But she no longer needs to be reminded to do ANYTHING. She can retain all information. We used to have to micro manage bed time. By the time she went up she would forget all the tasks (or why she went up) and you could find her doing any number of things. If we asked "Did you brush your teeth?" She had no idea and we had to check the toothbrush to be sure. Now she goes up and has 100% awareness about everything. It is no longer on my radar as an area of concern. The best part - she is only one of MANY success stories. Just giving you all the update!
  11. Awesome!! Great results and ones that are being reported by many!! I find the potty training one so interesting every time it is mentioned. I have no idea what is happening that encourages this? Increased interoception? Looser more manageable stools? So interesting! Let me know what happens when you introduce the fish oils! Thanks for the update!
  12. You should totally join the FB group! As time has passed the general consensus is starting low and slow for the very reasons you are describing! The daily dose is definitely something you should work towards as opposed to starting there! Looking forward to hearing how you progress!
  13. Can you share the name of the brand you bought? Want to post it on the FB group! Thanks :)
  14. Oh that is good to know! And yes it is very short-sided to just think a diet heavy in veggies is a good idea for everyone. It just isn't that simple. I came here to share our story. As my title says - it may help SOME of you. There are a few on here who are ruffled by this - fine with me you have made your case over, and over, and over and over. I think we can all agree that you have made the "risks" known. We get it. As well,in spite of all the links and speculation we continue to see incredible gains and successes At this point there is nothing left to squabble about - let the people decide what suits them. Try it or not. Happy to answer any questions from those who are giving it a whirl. As well going to look up that Inulin and see if it ships to Canada! Thanks :)
  15. I think that will be helpful advice once I halt the overgrowth of this particular bacteria. But for now adding in all the bacteria made things worse for us. Like many have said - not one size fits all!
  16. Chickory is inulin so I would say yes! But the quantity is important! I am assuming you are talking about Agave?
  17. I think the sickest need the dose in moderation but eventually need to build up to a dose that is impractical to aquire from food. Initially it is about building a tolerance but at some point (for many!) the amt required to substantially get the issue under control can't easily be obtained by food. While the most hardcore could potentially stick to that diet it's doubtful that this population (kids with major sensory issues like food aversions) could be successful in that manner initially.
  18. I don't disagree with you. And I think once we CORRECT the problem with high levels of inulin I think it can be maintained life long exactly how you are describing.
  19. YAY!!! So looking forward to hearing about your journey!!
  20. So true! That is what I keep saying - even if THIS falls away and she declines again we at least NOW KNOW there is something that can be done to alleviate her issues. But ironically we have completely given her back dairy with no issues. Still improvements. She is still GF (but only becuase school is still on for 2 more weeks) but becuase my own gluten intolerance is gone I feel confident that she will be fine with Gluten moving forward. So diet (in this case) isn't what is actually working. I really think it was soley the dysfunctional gut flora that was the problem. Of course that means a diet low in carbs and sugar should be maintained!
  21. I agree that he is making fantastic claims with this protocol. Its so hard for me because I stumbled upon him in the reverse of probably how many have. I was doing something that made AMAZING differences in my daughters life and then uncovered that it was this protocol. So in our case his fantastic claims are proving effective. But I am a skeptic to the core so I presume that had I come across his claims in another manner I would be looking all side eyes at it. But I really don't know becuase I can't rewrite history to check. But I think I would have probably tried the protocol. I mean I was the mom in 2015 who was spinning her daughter everyday on an Astronaut board in a therapy that was supposed to repair her vestibular system and help her issues - so I know I am open mided enough to try the thing that no one has heard of! LOL But yes I imagine that the entire protocol is so "fantastical" that it could turn some off. I get that. And sadly even I don't think it will help ALL the kids. But I also hope I am wrong. So far this protocol has "claims" that it can fix my daughter and in fact my gluten intolerance and my carpal tunnel (and a whole host of things I don't suffer from!) and bizarrely enough - it is! I am not eating gluten and everyday we are getting are daughter back. So I am keeping an open mind that it can fix the world! I mean people thought Einstein was wacky! lol!
  22. Its so weird when that happens! I actually upped my daughters omega 3 a few days ago from 1200mg to 2400mg and OH MY!!!!!!!!!!!! She is having an incredible week!! I keep looking at her for cues that she is going to spiral, or crash and put herself to bed. But nope - she just follows me around asking can we make slime, can I teach her how to wax her legs, can we go to the bookstore... Literally she has come back to life!!!
  23. Pen I am happy that you are trying it. I will be happier if you see improvements!! Let me know if you have any questions and I would love to hear about your progress! :)
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