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Mom28GreatKids

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Everything posted by Mom28GreatKids

  1. Every foster parent I know has their kiddos in therapy either through EI or the school. Tell your social worker this list of symptoms, and I would venture a guess he will be evaluated faster than fast. Definite red flags in tat list. Glad he is happy. That helps. Bless you.
  2. We have behavior therapy available to us free through our county board of disabilities. She will either come to our house or we can go in to the office. We are waiting to hear from her after our intake meeting with the county last week. It is just a thought that there could be sources unknown to you. I had no idea. He also gets 2 k in funding just for qualifying.
  3. Yes I agree with the above. We all have quirks, but the question is, do those quirks interfere with normal living. Sounds like the answer is yes. And your hubby is right, he likely is Uber smart. Most of these quirky kids are. But if they never learn to live in their world, it doesn't matter a hill of beans how smart they are. Your son sounds much like my almost 4 year old, and his behavior (my son's) is inappropriate for 4, let alone 7. If it is money,most insurance pays for at least some OT.
  4. We have had much success with OT for our seeker who is almost 4. He has some avoiding tendencies as well, mostly tactile and auditory (tags, jeans, etc.) He gets lots of vestibular and proprioceptive input at OT and at home. We are doing lots of primitive reflex integration, and Therapeutic Listening that targets his vestibular and proprioceptive systems. Lots of swinging, spinning, etc as well. He is much calmer, less impulsive, less prone to meltdown, and just overall more able to self regulate. Oh and he is finally sleeping through the night regularly. We feel like OT has been a life saver for our family's ability to cope with his special needs.
  5. What about a few classes for the older ones at The Potter's School? Academically rigorous, awesome teachers ;-) and an online classroom environment for structure and accountability? Great for the oldest 2, which would free up you for the younger ones.
  6. I agree that it sounds like Apraxia and a 2 hour drive at least for an eval may be worth it. We did 8 months of traditional therapy with little improvement. I drive a little over an hour to the same clinic OhE drives 2 hours to. She dx'd DS (3.8) in less than 30 minutes. And in 2 weeks she got him to say "me," a target word he had been working on for 6 months. I do not have time for this either. I have 7 other kiddos who need me desperately, but we decided, if one of our children had cancer, we would drive him/her to the hospital where the very best treatment was available. So why would we not do the same for DS's Apraxia. We are also paying out of pocket. We are far from rich. Good gracious. We are working several angles for funding now. We want to give him the best chance, and his response to PROMPT has been amazing. If funding comes through, we will up it to 2 sessions a week. OhE told me a few months ago it would be worth the drive. It is. Our PROMPT SLP (different than OhE's) is working on certification but is in practice with her instructor so she is flying! She will be certified by end of summer I think. She is also the perfect personality match for my DS, and he loves loves loves her. One more story to convince. . .a friend of mine has a 17 yo son with profound Apraxia and ASD. She just started taking him to the same PROMPT clinic early this year. It has made a huge difference. She said she wishes she would have done it years ago, but she did not know, and when she did learn, she thought it was was too far. Now she is driving an hour both ways 2x a week. Why? Because it is worth it. I think it is worth a call at least.
  7. I agree OhE. We are silly to think our lives are private in this country. Plus, we were military fo 20 years, so I am sure they know everything about us already. Ha ha. I am going to call Monday. I am waiting for the SLP to finish her report. That will need to go as it is the only document that actually carries an accurate dx. Thanks for helping me think it through.
  8. Oh yes I have thought of this. She also said she uses DIR and at the time I knew I knew what that was but could not place it- but that is Floortime, right? I have read about the Play Project before and I like the approach a lot. FT also resonates with me. I did some internet stocking and this woman appears to share my faith as well, so it could be a win win. I am just having a hard time (typical homeschooling suspicion) of anything sourced from the government. Ha ha. I need to get over it.
  9. Oh hugs to you! You are going through the grieving process which is appropriate and normal. Now what comes out on the other side is what matters. It can either make you bitter or better- better equipped to help your beautiful, unique, wonderful son. I am sure it will be the later. I realize how different my little guy is every Sunday I help in his Sunday School class. We have terrific SN buddies trained to provide supports for all the SN kiddos (there are a lot). But there are lots of NT kids too of course, and the difference is deafening. Every time I see a friend with a NT little boy chattering up a storm I feel the way you do. And I get the what do I do with my other kid(s). I have 7 others who still need me. It is overwhelming. Hang in there!
  10. Yes, I kept thinking-- there are 10 people in the house, for crying out loud. He is in a rich language environment every single day. He interacts with his siblings, sees appropriate behavior, yada yada yada. But for some, I think, public school is all they know, so they cannot fathom there to be another way. And I am not completely against preschool if it is the right fit. But, he isn't even pre K til 2017/18, so I feel like I have time to decide. At one point she said that daycare would work too. I was like, so I am supposed to take him to daycare and then what. . . go to the mall??? :lol: :confused1: :lol: Somehow daycare would be better than a loving home full of parents and siblings who love him. Right. . . :glare:
  11. Well, I did tell her today that we homeschooled and she didn't react one way or another. She seemed like she didn't care if we had services in the school. or not. I have just been dealing with a retired school SLP for the last few months and the pressure for peer interaction and school attendance was getting to be too much. We now have a new SLP and a PROMPT SLP, both much more amiable to homeschooling. It has been nice not getting sidelined with school pressure each week. Didn't want to open a new can of worms.
  12. I already had a conversation with their preschool service director. She is a Play Project therapist. She thinks he would qualify and be eligible for funding for therapy funding, gymnastic and swimming classes, and for her Play Project services. I just need to jump through the hoop. Just didn't know if they would be hostile to homeschooling. I am tired of defending myself. ;-) I do realize they are from different sources. She said these funds are available whether he has an IEP or not.
  13. Hi everyone, I have not been on the boards much lately, though I do read periodically and have benefited from some of the recent comversations. Was wanting to know if any of you have taken steps to get your DC qualified for services and/or funding through you county system for disabilities. If so, how has this worked and has there been any conflict with homeschooling? Thanks in advance.
  14. I was just talking with a mom at ds's therapy clinic who's child went to ps half days. I was like, what, they allowed that? I guess they did. Now, she is pulling him out next year and homeschooling, but anyway. I had never heard of a ps being flexible enough to allow that, so it might be worth it to ask the question. I like what mb4 suggests for her to go in the afternoon when they are likely doing the less structured subjects anyway, which would give her a taste of school, during the time of day where you need a break. It just might be worth a shot and give you the answers you need before next year.
  15. Is there a career center in the county? That may be something to check into. Also, I agree to do some checking. Just because they call it Algebra doesn't mean it is what you and I think of, kwim? Because of national mandates, the SE teachers I know have had to be rather creative in how they meet the standards. Hope you find something that works.
  16. Our district mist be unusual. I called last week and we could have had DS evaluated this week if we had agreed. After talking with her, we decided it would be better to wait until the summer. I did not know we could even do it in the summer, but she said they bring the team in in July to get new IEPs in place for the fall. Since we didn't need immediate services (he is getting plenty of private) and we don't want to start til the fall, she wanted to wait. Our kids' school is applying to be a JP recipient so if we decide to do preschool, he will be able to do his pre k year there. Yeah.
  17. Once again, your descriptions of Anna sound sooooo familiar to what we are dealing with. We have the same thing here- about one day a week where he wakes up and we know it is going to be an off day- today was one. I just knew it the moment I interacted with him. When the tools just don't help. Every other day the behavior modification tools that the SLP has taught us seem to work. Not so much on days like today. I almost cancelled our ST today as I knew it was going to be pointless. But SLP came out, read the situation, totally did a 180 in her plan, took him outside and had a lovely session. And he produced a bunch of new sounds for her from her modeling. Yeah. That would have never happened 6 months ago. Thank goodness for flexible therapists who really get your kid. Not sure what advice to give you AM, but it sounds like perhaps a little more time to see what this therapist has to offer might be good before you abandon ship. Especially since Anna likes her. I have been researching places that do behavior therapy, but almost all require an ASD label which we currently don't have. There are days when I feel like we need more tools, like today. But these days are becoming fewer, and he recovers more quickly from his struggles. That is progress, I think. Hugs for the hard days.
  18. I think this point is so true for all of the professionals we choose to work with our kiddos- therapists, etc. You almost have to watch them work with your kid to see if they "get them." No one needs to be working with someone who continually triggers negative emotions in the child. I agree about do they have the wherewithal to survive my kiddo. Ha ha. Yes indeed. I often joke that he might cause his SLP to seek an early retirement. But we have had a month of beautiful sessions, so hopefully she isn't considering that.:-) And some are really good about helping you to understand your child better and that is golden. Anyway, I think there is something too, you will just know it when you see it. And what's right for your DC may not be right for anyone else here, and that is just fine.
  19. I do not believe so. Someone correct me if I am wrong. I am looking into both a well.
  20. Thanks so much kbutton. This is extremely helpful. Our current OT isn't so convinced about integrating reflexes, so if it is stuff I can do til we begin with the new OT later next month, that would be good.
  21. Can they test for Moro in a preschooler. DS has almost every symptom of retained Moro, but it isn't named in his report. He does have the Palmer, TNR, and ANTR and is receiving therapy for those.
  22. Those reports are so hard to read. We got ds's 3 month progress report recently and it was seriously depressing. I don't like to read the reality of what we are dealing with in cold print, and it is hard to see something about your DC in print. But you, like all of us, will process the info and make a plan, because that is what we do as our dcs' advocates. Hugs to you.
  23. Yes, my oldest is afraid to listen, lol. He is like, what if it sounds good? Since it is the bitsy bitsy spider and old Mac Donald, he is not that tempted.
  24. The headphones have a built in tiny mp3 player. So it is all on his head. So he is supposed to do it 2x perday for 30 min, 7 days a week. I am wondering how many weeks we will do it. OT did not say.
  25. OT finally started Therapeutic Listening with DS. She sent home the headphones and the first set of music yesterday. He would not even put them on at OT, so I was a little worried it would be a bust. So, we started last night. He loved it. Like really loved it. And he slept all night. Then we did it this morning again, and he it went great. I totally expected that he would complain about the headphones, want to be all done, etc. But not yet. I am mildly optimistic. For those who have done this, how long did you do it? Thanks.
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