Jump to content

Menu

Faithful_Steward

Members
  • Posts

    223
  • Joined

  • Last visited

Posts posted by Faithful_Steward

  1. ADHD-Inattentive

     

    Is the person gifted?

     

    I can do things like you described because I am almost always thinking deeply about something. It can sometimes take me a while to disengage and refocus on someone talking to me or something happening in the same room.

     

    But refusing to open the wine is weird.

  2. My daughter likes to get jeans from Kohls. She hates jeans with rips or tears, so stores like Aero are out. She also lives in plain leggings.

     

    We buy all of her graphic tees online. We never buy long-sleeved shirts because it is HOT here. But you could always layer graphic tees over other long-sleeved tees or under flannels.

  3. I don't think you should apologize, either. But gently, it is possible that other people don't want to participate in the crazy. If I were one of the swim moms, I wouldnt want to participate in something that was going to stress my family out and take the focus off of what it should be on.( Of course, I would never sign up to help and then no-show, either.) Is it possible that other parents suggested an eSier option along the way, or even expressed a lack of interest in this fundraiser, and they were shut down? I suspect there is more going on here than you realize.

    • Like 1
  4. I know what you mean! I haven't seen Battle Creek but I did try out The Finder and had the same experience. It was a fun and mostly light show--I loved the characters--but it was only given a half season and then was cancelled. Sadly, one of the main characters died shortly afterward.

     

    I was also bummed to get into the intensity of Jericho only to find it was cancelled.

     

    *le sigh*

    I'm still upset about Jericho!

    • Like 1
  5. Gluten is not a given. I have celiac along with Hashi and of course I am on a gluten free diet. That said despite being gf it did nothing to improve my Hashi antibodies. My celiac antibodies went down but my Hashi's did not. When I was first diagnosed I was not given thyroid meds as my thyroid was still producing enough hormones despite my antibodies being in the upper 800s. Two years after diagnosis and being gf my thyroid finally reached the stage that it was not producing enough. Why? Because my thyroid is slowly being killed by my immune system. Being gf did not change that. I have also tried the elimination diet. No improvement either. In fact, I was worse on the AIP diet because I was not getting enough fiber. I started eating grains again and my intestines felt much better.

     

    A friend of mine has Hashi but not celiac, and she also tried the AIP diet and gf and her numbers also did not improve.

     

    If diet change helps someone feel better that's great. However, diet change for Hashi is not a given, and it does not work for everyone.

     

     

     

    Yeah, I am way too lazy to go gluten-free if I don't HAVE to! Lol... But my daughter's endo says diet does seem to play a part in stabilizing some kids enough to be able to go off their meds for a few years. I'm going to wait until after ds goes through puberty and then revisit.
  6. My little girl was diagnosed when she was 7. I also have has hashis,and we have a STRONG family history. Her pediatrician referred us to a pediatric endocrinologist who now handles all of her care.

     

    That is a pretty standard starting dose for synthroid; depending on the amount of damage to her thyroid, she may (probably will) have to slowly increase her dose. I'm glad they are retesting pretty quickly. Ask your doc about her goal for the tsh and t4. My endos have wanted tsh between 1 and 2 for women of childbearing age.

     

    Interestingly, my dd's pediatric endo ( one of the best in the country) says she can sometimes wean children off meds for many years once they stabilize. She recommends a good probiotic and experimentation with elimination diet.

     

    All the best!

    • Like 1
  7. So they have been detained because they failed to make a (possibly false?) police report? Because of publicity from a swimmer's mom in another country? Could Brazil make itself look any worse right now?

     

    I think their wallets were probably stolen during a sexual encounter. Lochte didn't want to tell his mom the details so he made up a story, not knowing his mom would blab all over tv.

    • Like 3
  8. Take a look at your food budget. You have $900/mo budgeted between groceries, work lunches, and eating out. For one person? I'd find a way to make that $ work for you instead of eating it.

     

    You are relying on future income that I wouldn't necessarily consider reliable (alimony, ss, kindness of your sister). I think saving should be more of a priority than you are making it. I also think you can do that fairly painlessly by trimming discretionary spending to a number that doesn't deprive you but still requires effort/attention to maintain.

    • Like 2
  9. Oh what a sweet but sad thought of him lugging around books!  Well does he have a kindle?  I got my ds a kindle HDX a year or two ago.  See what the current models are.  Best purchase ever.  So much function for so little money.  You will qualify for National Library Service (BARD), Learning Ally, anything you want.  Also of course Audible is forever running deals.  I use audible, even though it costs money, because everything autoloads onto my ds' kindle, making it easy for me.  But I suppose BARD does to.  Once you get your written report, take it to your ped and have the ped sign the forms for BARD/NLS and then you'll have that.  That's what I'm doing on our next visit.  

     

    Ben Foss has an article and books where he talks about ear reading and creating a culture that legitimizes ear reading AS reading instead of like only eye reading being good enough.  It's something you can think about.  We have the unique ability, when our kids are this young, to put healthy ideas into their head, framing how they see their disability.  Sure my ds has a disability, but he also has Abilities!  He goes through TONS of audiobooks, way more than most kids his age would even eye read if they had the reading level.  

     

    If your psych did any language testing (CELF, CASL), you could share if you wanted.  That language comprehension stuff was so pivotal for my ds to enable him to read anything with comprehension.  Your battle is not going to be just the decoding, most likely.  You're also going to have comprehension issues, so you want to see where those other weaknesses are and start having someone on your team be working on them.  Could be you, could be an SLP, could be anyone.  Social thinking *and* language issues will both affect reading comprehension when his decoding comes in.  Both are things that take time and can be started now if the testing identified them.

    We do have a Kindle Fire! He tends to ruin things, but we'll give it a shot.

     

    The ear reading thing is exactly what the NDVP said and he stressed that there isn't anything more valuable about reading with the eyes vs the ears (except that if he isn't reading by age eight then it lowers IQ). No CELF or CASL. He is strong in verbal comprehension.

    Just pulling this down.  Dyspraxia and apraxia, in the US, are different things.  You're in the US?  Here dyspraxia is overall motor planning, where apraxia is usually referring to praxis of speech.  There's also oral praxis, so verbal or oral apraxia or both.  Kids with apraxia are usually going to have *some* praxis in the rest of their motor planning but maybe not enough to move all the way over to that DCD/global dyspraxia label.  Kids with dyspraxia have it overall and may, therefore, have it show up in their speech.

     

    So actually I personally would question an "articulation" diagnosis of any kind of a child is diagnosed with dyspraxia/DCD overall.  I'd get him into a PROMPT therapist and get a proper speech eval for praxis of speech to make sure it's not apraxia causing the articulation problems.  And THEN I would want the best speech therapy method COMBINED with the LIPS so he gets all the modalities coming together.  That way he sees it, feels it, gets the motor planning input.  DON'T trust your SLP.  They are NOT trained to do an in-depth praxis of speech eval and it gets missed, missed, missed.  Look for a PROMPT therapist, someone who can run the VMPAC.  

     

    How severe are his articulation issues?  Your articulation and phonological processing are linked.  I think you're really going to want some help to sort this out, depending on how many sounds he's missing, etc.  Given that extremely poor phonological processing and the mix, I'm just really curious about his speech now.  Does he talk really fast?

     

    Yes, those CTOPP numbers are very low.  I just don't think calling it "moderate" is helping you at all.  My ds' apraxia was called moderate when he was first eval'd, and over time he slid to severe.  These are labels that change.  I think your mix is very, very serious and that it's significant that he wants to do these things (bright IQ!) and can't.  I would get him the audiobooks and let him start satisfying that IQ drive to learn.  You can get a kindle in a day with prime.  Order tonight and you'll have it by Friday I'll bet.   :)

     

    They did say that his issues will become more severe with age. Sorry about he confusion with dyspraxia/apraxia. I feel like I'm speaking a foreign language. :) The report says Expressive Language Assessment: mild dysarthria, no dyspraxia noted. He doesn't talk really fast; he actually stutters sometimes because his brain works faster than he can get the words out. You can literally see the entire thought pass through his mind and then the frustration before he slows down and very carefully tries again.

     

    I also see a few of the social things in the report now, like the loud speech and dominating a conversation. His ADOS score was only a 1, but I think some targeted work could be beneficial.

    • Like 1
  10. Ok, Jumping down again!  One, our psych gave me the same ABSOLUTE POSITIVE BALONEY about not teaching my dyslexic son.   ;)  Here's what I say.  

     

    You're going to have to be willing to make him do things that aren't fun.  

    You're going to have to be diligent.  

    There's going to be a LOT more that needs to be done than you even begin to realize.  

    You're going to have to be of an intellectual bent that you can learn multiple new materials and therapy techniques and teach them well.

    You're going to have to have enough time, strength, energy, freedom from distraction, that you can do these things.

     

    If all those pieces aren't there, then hire people, yes.  It matters more THAT it gets done than who does it.  

     

    I teach my ds because *I* know his speech issues more than anyone else and was better positioned to learn the Barton and LIPS materials and blend them with his speech therapy techniques.  For our situation, absolutely I was the best one, our psych's arrogance notwithstanding.  I also have a background in linguistics and enough hutspah that most things don't fluster me once I decide I'm doing them.  Usually, lol.  

     

    That said, now that I'm past the most particular things that *had* to be done by me because I was blending in his speech therapy, I'm bringing in more people and would bring in more if I had the funding.  I mentioned the NVLD and theory of mind.  Did your psych do language testing?  I haven't finished reading your post yet.  Are those IQ scores what you were expecting?  NVLD will bring theory of mind issues and social thinking issues that are going to require additional work.  The dysgraphia requires additional work.  If he has language issues, those require additional work.  If that IQ is a challenge (I was just glancing), then he's going to be working ADDITIONALLY hard to do all that additional work.  

     

    Does that make any sense?  You didn't just get mild dyslexia.  You just got 5-6 things that ALL are going to happen, ALL at therapy level.  And all those things impact the REST of the things.  At least that's how it feels with my ds.  It literally ends up feeling like almost nothing we do is not therapy.  It's exhausting, because everything is that very detailed, very intentional, methodical material and methodology.  Everything.  

     

    That's why the psych is saying to bring in help, because he has seen the train wrecks.  You're not guaranteed school would do better.  In fact I can guarantee school would *not* for my ds, because he's extremely complex.  But I can tell you by myself it's exhausting.  We've brought in an ABA tutor who works on the social thinking and behavior and sensory regulation and some academics.  I have a whole TEAM of people I'm collecting who help me.  It's not like it's JUST ME.  I like doing all these things, but it's just a lot.  

     

    I think you can take some time to assess all your options, all your paths, to get assessment of what types of help you need and what those scenarios would look like.  If he were in school, who would the team be?  If he were at home, who would your team be?  Think of it that way.  

     

    Also, I would not assume the dyslexia school will take him.  Our large, super-fab dyslexia school near us cannot handle any behavioral problems and only wants the mildest of ASD.  Like basically their clients are the happy cheerful face dyslexia.  They aren't set up to handle theory of mind and perspective taking issues, nothing.  When you're more complex, you go to one of the more niched charters that is smaller and able to handle more complex situations.  What you're talking about is a very complex situation.  But go on their sites, talk it through with them, see.  At least you've got really good evals now, so you know what you're dealing with and can see your options, frame it into scenarios, and then decide.  

     

    Honestly, my plan is to pursue private tutoring if I can. I just don't want to be the one provoking his frustration if I don't have to. I want to be his cheerleader and his soft place to land. My dad has offered to help pay for tutoring, and I might actually allow him to help for the first time in my married life. If tutoring doesn't end up being an option, then I'll do it and I'll rock it. And I know that either way I'm going to have to learn how to teach him and help him every day. I just think it is best if I don't run point on this one. ;)

     

    The local ps would not be good. The doctor pretty much ruled that out for us. The dyslexia school is an hour away, so that is four hours of driving a day. Plus they don't accept students until mid elementary.

     

    I walked out of the consult thinking this was pretty straightforward dyslexia/dysgraphia. lol

    • Like 1
  11. I snipped this response but this is exactly what I was thinking too. This is not a simple dyslexia diagnosis. There are many things going on here. Yes, pursue LiPS, but the NVLD is no small matter either.

     

    Do you have a children's therapy unit or center anywhere near you? Our local one has OTs, SLPs, a psych, and I think ABA specialists. Because it is a cohesive unit, the therapists are able to recognize and work simultaneously on interrelated issues, sometimes with multiple different types of specialists. If something like that is an option for you, I would strongly consider it even if it is a drive.

     

     

    Maybe the office where I had him evaluated? I'll ask around.

×
×
  • Create New...