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Caraway

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Posts posted by Caraway

  1. I am looking for a resort hotel option within reasonable driving distance of Sarasota or Tampa, Florida.  My kids are 18, 15, and 11, so we are looking for pools, beaches, etc.  We would rather pay more and have a great experience, but it is hard to tell where to stay.  Thanks!

  2. 2 hours ago, Spryte said:

    I know TMJ is different, but — especially if this is only on one side — have you looked into trigeminal neuralgia? I have that, and something about your post ( maybe the word intense!) made me think of it.

    I'm going to send you a PM, is that okay?

     

    1 hour ago, Alicia64 said:

    I've had TMJ for years now. No pain at all.

    But, just in case, I want to tell you about my dad. Like Spryte he had trigeminal neuralgia. It's considered to be one of the most painful disorders.

    He was in so much pain that he had a Gamma Knife surgery done at a renowned hospital.

    I hope this helps.

     

    Yeah, this is what I'm worried about.

    • Like 1
  3. For those with TMJ, do you have specific episodes of pain?  I understand that pain may be different on different days, or periods of flare ups - but do you have like 30 min of INTENSE pain and then no pain for a number of hours, and then another distinct episode of pain.  Google is not helping.  Thanks!

    • Like 1
  4. 16 hours ago, Kassia said:

    I am so sorry.  I have gone through this so many times and it is why I hate seeking medical care.  I find that most appointments are a waste of time and money.  Doctors give me terrible medical advice and I have to pay for it.  There is no accountability.  Sometimes it has been downright dangerous due to being misdiagnosed or not taken seriously.

    And we have to pay for it.  There is no way out of it.  We have to sit there knowing the doctor is wrong and then still pay them!  It makes me crazy.  

    I could go on and on and on...it is so frustrating. 

    Big hugs to you and I hope you can get the medical care you need and deserve.

     

     

    Yes, exactly!

     

    14 hours ago, mom2scouts said:

    This is my experience too. Often going to the doctor is a waste of time and money. I've only been to the doctor once in the last 15 years and that was because I needed an x-ray to verify a break. They usually didn't tell me anything I didn't already know, so I just stopped going. I even had a doctor that admitted I knew more about a medical issue I had than he did. My mom jokes that I should be her doctor because 99%+ of the time she goes to the doctor and they tell her exactly what I already told her.

    OP, I hope you can find the doctor you need.

     

    Yeah, my best medical care has come from me figuring out the problem.  🤯

     

     

    14 hours ago, TravelingChris said:

    Can you afford a concierge doctor?  Mine only costs 1700 a year and with that I get a doctor I can call night, day and weekends, including holidays and he has helped me.   He comes to the hospital to make sure the hospitalists are doing the right thing.  I get a very complete physical each year.  He refers me to good people or in some cases- like my rheumatologist, he referred me to who I wanted to be referred to.  He doesn't know everything but he is always willing to learn and does a lot of reading.  He picks up the pieces when some other medical professionals drop the ball.  Like my orthopedist staff prescribed too little pain medications and no nerve medications and I developed level 10 pain the evening before Thanksgiving.  All that weekend, we were talking and figuring out how to cope with my level 10 pain (he was out of town, neurologist who prescibed nerve pain had no answering service, etc so he agreed with me to increase my anti-depressant/nerve medication to lessen the pain.  And then he prescribed me an adequate dose of pain medication- which was a completely normal level of pain medication- not anything that would raise red flags.  He also got me home health care after this operation while the PA from the orthopedic office thought I should be somehow travelling to therapy offices three times a week.  Also he prescribed PT at a level I was unable to do anyway at that point- still having breakthrough level 10 pain-- and when PT and OT and the Nurse came- it was clear that I needed OT before PT- since I was having a hard time just getting around because my arms were too weak.  

    He also has prescribed medications that he normally or never before prescribed just because a physician stopped practicing (that was a few months of Humira until I got to the new rheumatologist, the one who closed his office had had me on Humira and it had been working so I wanted to stay on in while getting a new rheumatologist appt) or because I switched physicians (my prescription vitamin combo which is for people with brain issues- started it because I had post-concussion syndrome and continue it because I have lots of brain fog with my autoimmune diseases).    Oh and he doesn't rush me out of the office and we can always get an appt the same or next day,  Plus, he has prescribed me emergency medication in other states - like steroid pack when I couldn't hardly walk on our New Orleans vacatioh).  

     

    I was using a concierge doctor, but they moved out of the local area.  I feel like I need at least someone in our insurance network who "knows" me in case I need local hospital care.  But I will not sacrifice my health for this so I may be back to paying out of pocket.

     

  5. 3 hours ago, wintermom said:

    Isn't it possible that your doctor may have been talking about the mechanism of getting the disease rather than dealing with it once you've been diagnosed? Eating gluten doesn't cause celiac. Continuing to eat gluten when you have celiac can certainly have consequences on your body. Same with diabetes, not everyone who eats lots of sugar, etc., gets diabetes. It's not that simple. There are many factors involved.

    I know when I have complex health issues, I really wish I'd recorded my appointments with the dr. What they actually say and how I interpret it can be completely different. I'm not trying to infer that you did anything wrong, and you are certainly the "expert" on what you've been experiencing with your own health. However, drs see hundreds of patients and have a much broader scope of the various diseases, mechanisms, etc. 

     

    *I* was talking about how for me foods cause a reaction/inflammation that trigger an autoimmune flare (as confirmed by another doctor) and that my autoimmune symptoms are closely tied to what I eat.  She told me this was impossible.  So I don't know.  🤷‍♀️

    • Confused 2
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  6. We changed health insurance, and I have to find a new doctor.  I am currently in a downward spiral of autoimmune diseases and hormone imbalances.  I really need a doctor who can help untangle my issues and refer me out as needed; because my health is getting rapidly worse.  I have already done everything I can think of to calm my situation down, and eat an extremely limited diet.

    Today was my first appointment and the doctor told me that food/diet does not influence autoimmune issues.  Food, she said, had nothing to do with disease.  Um, I'm celiac, and her specialty is, wait for it... diabetes.  🤯

    At this point it seems easier to put MYSELF though medical school.  I feel so... defeated. 🥲

    • Like 1
    • Confused 6
    • Sad 45
  7. 8 minutes ago, Catwoman said:

    "Just eat some boiled chicken and rice every day for the rest of your life, and you'll be FINE." 

    Ugh.

    Me:  I can only tolerate 5 foods including salt.  I need help.

    Doctor: Perhaps there is another food you can eliminate?

      🤯

    • Haha 5
  8. This year for me involves family estrangement, my child's college applications, Christmas traditions, and Covid. Last week I dreamt that my house was burning down around me.  (((Hugs for every single one of us.)))

    • Sad 7
  9. I would like to try making a chocolate pecan pie.  The pecan pie recipe I usually use is the NYT recipe plus a little bourbon.  In this recipe the filling is heated and goes into the pie shell while still warm.  Can I just stir in some chocolate chips to the filling?  Googling has left me both more and less confident with this plan.

  10. On 4/28/2021 at 7:36 AM, Farrar said:

    My kids had the Pfizer (I had Moderna, so I'm not answering) but BalletBoy had the rare and weird side effect that it messed with his taste buds for a couple of days. It was a big surprise - he ate something a couple hours after and immediately spit it out because he thought it had gone off (it had definitely not). I've since read that this is an uncommon thing - it usually is a metallic taste that people have. It was over in about 48 hours or a bit more. Only happened with the first dose.

    I had the same thing.  It was SO GROSS.  I had heard that it could last weeks, but for me it disappeared after a few days.  I had a very metallic taste, like my whole mouth was full of nickels. 

    • Like 1
  11. 6 hours ago, Laura Corin said:

    She is interested in current affairs and gardening.  She used to read fiction but can't concentrate on that any longer.  She likes to watch history shows on the television.  She's not interested in puzzles or cards, and was not keen on looking at old photos either.  In pre-Covid times I was actually able to keep the conversation going fine - she's not usually unpleasant to me.  I just didn't want to spend that time.  Currently things are hard because she is quite deaf, even with expensive hearing aids, so I can only converse Love Actually style, with a pad of paper and a marker pen ETA because of wearing a mask and having to stay 2 metres away.  She doesn't like the people she lives with (she looks down on them) so she looks forward to talking to someone 'intelligent'.

    When my husband lost his job in his fifties and couldn't get another one, I went to work full time.  Some time after she moved in with us I changed job to earn more money - the job change was temporarily stressful, mostly because she was there too.  When I reached the end of my tether and asked her to move out, she decided that it was because I valued my career more than her.  I think that's a more comfortable narrative for her.

    Currently I think she needs to see me weekly because she has been so lonely for so long.  I think I can probably stretch it to every ten days after a while.  We are currently not allowed to take people out on outings.  My husband also can't take the visiting duty at present because only one named person is allowed.  I expect to bring her home for lunch once a month when regulations change - she hasn't seen my new house

     

    All good ideas.  The conversation bit will actually be fine once I no longer have to wear a mask.  I just need to reframe the whole experience in my head somehow.

    I have a weekly phone call with my mother and I'm about to cut her off because my whole week is tanked by that hour.  I dread it for two days, and then I have at least two days after the call where I am mad about the call.  So, no judgement from me.

    When my kids were little I struggled with being patient.  When I was being impatient it helped me to think "right now I'm practicing being patient."  It took away the sense that my time was being wasted, because it wasn't being wasted - I was practicing a skill.  Perhaps you could use a similar trick with your visits.  I should probably try thinking "I'm practicing being non-reactive" for my phone calls. 😬

    • Like 4
  12. 20 hours ago, Joker2 said:

    And now my mom won’t talk to me. I was supposed to stuff my feelings and say nothing. I’m exhausted but I actually feel really proud of myself for finally speaking up.

    Dh did have a very valid point. He said they truly didn’t think it would hurt me because that would require them to have considered my feelings in the first place. I am never a consideration with my mom and siblings though. I know this but I just ignore it cause, ouch. 

     

    I am having a similar experience and it is VERY painful.  ((((Hugs))))

    • Like 1
    • Sad 5
  13. I am looking to buy a hammock as a gift for my 10yo, but am looking at hammocks meant for adults.  I think I will also be purchasing a stand for the hammock.

    For those of you that love hammocks - do you have a specific recommendation?  I can't decide if she would prefer the spreader bar flat hammock, or the crumple style hammock.  At this point I have looked at so many hammocks, and I am no closer to being able to pick one.

    Help!  

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