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scbusf

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Posts posted by scbusf

  1. Hugs. My 16 year old has a pretty significant heart murmur as well as epilepsy. He did just fine having Covid a few weeks ago. We all had it and none of us pursued Paxlovid because of the risk of side effects and the rebound situation. We were all pretty sick for about 3 days and then steadily started getting better. 

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  2. 8 hours ago, Scarlett said:

    I did one at home. I did not think I had sleep apnea to start with and only did it because Dh wanted me to. I have serious fatigue…..and I have trouble sleeping in recent years.  Anyway, the at home test was fairly easy and results said I did not have any issues.  

    I'm almost hoping I have sleep apnea. It would explain my serious fatigue. My doctor is exploring some other things, this is just the next thing.

  3. 46 minutes ago, purpleowl said:

    I did a home sleep study. I wasn't told to keep electronics away though. I did sleep horribly that night, but they got enough info to dx me with moderate (I think - but maybe mild) obstructive sleep apnea.

    Got approved for a CPAP. Waited months for that to be available. Went in to get it...and had a panic attack with the thing on my face. Yay claustrophobia! So I did not get a CPAP in the end after all. 

    My doctor mentioned that a dental device, like a retainer, may be an option instead of the CPAP. 

  4. 1 hour ago, scbusf said:

    I will ask DH .... He is using a CPAP, but maybe that's because he has both types? When he did the home sleep study, he talked to the doctor afterwards and she was VERY concerned about the central sleep apnea. DH's dad does have sleep apnea as well, but I'm not sure what type.

    DH said he uses CPAP because he has both. He said he thought that BiPAP is used if someone has central sleep apnea only.

    He said he was having 30 episodes an hour. Now that he uses the CPAP, it's gone down to less than 10.

    When he did the in-person sleep study, he said they monitored him for the first few hours. They saw the episodes, then tried the CPAP and it helped.

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  5. 35 minutes ago, kbutton said:

    I know people on here have said that a CPAP is inappropriate for central apnea--is that the stance your DH's doctors have taken? I am really curious about that. The sleep center I went to says they use CPAP for central apnea.

    My dad also has central apnea. At the time he was diagnosed (a while ago), they said they couldn't do anything for him, and since he sleeps on his stomach, the little bit of obstructive apnea is not considered a problem (it happens on his back). 

    I have wondered if central apnea is inherited, but it seems like it's kind of a mystery in general. 

    I will ask DH .... He is using a CPAP, but maybe that's because he has both types? When he did the home sleep study, he talked to the doctor afterwards and she was VERY concerned about the central sleep apnea. DH's dad does have sleep apnea as well, but I'm not sure what type.

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  6. 10 hours ago, kbutton said:

    Mine was frustrating. Not so much the sleeping and equipment (moderately decent sleep), but that I am subclinical for apnea, and the sleep study people said insurance won't usually pay for someone my age to have a full study done. My only apnea episode was central, but I had some stuff that suggests regular apnea as well. I am hoping that if I can supply my echocardiogram, they'll find something that will trigger better testing. DH caught me in an apnea episode recently and woke me up. I am pretty sure I only do it when I'm on my back, and I am usually on my back transiently or not at all as I hate sleeping on my back.

    I would absolutely have them submit it to insurance and see what happens. My DH has both central sleep apnea as well as obstructive sleep apnea.

  7. 29 minutes ago, Carrie12345 said:

    Daaang, lol.

     I’m currently in a phase where I can fall asleep practically on command, but I definitely don’t stay in deep sleep almost ever. 

    My issue is that I fall asleep fine and stay asleep. But I am always. tired. Exhausted all day long. So this is one avenue we are exploring.  

  8. Commiseration here. Definitely do something for yourself every day. It can be small - a good cup of coffee, take a quick walk, etc. 

    this has been our summer of house stuff - outdoor faucet replaced because it was leaking and causing huge puddles in the yard, ant infestation, new A/C unit, and new hot water heater. Our kids are also super complicated - eating disorder for one, epilepsy for one, multiple learning disabilities for the other. 
     

     

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  9. She is adopted from China and we know nothing about her birth family. She is medicated for anxiety. We have tried all the things to get her to eat more. We have tried 5 different ADHD meds and none of them really help her focus very much. So it isn’t worth the trade off. 

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  10. 10 hours ago, HSmomof2 said:

    I’d at least schedule a dermatology appointment—here it takes a couple months to get in. Dd went about 6 months ago after trying many OTC and dietary things with limited success. The dermatologist prescribed topical clindamyacin and retin a, and her skin is very clear now. 

    Absolutely. In my area, for new patients, getting into a ped derm is about a 3-4 month wait. For existing patients, it's 1-2 months. I got lucky and got a cancellation spot this week for my 14yo who is an existing patient. Otherwise, we would have been waiting until the end of Sept.

  11. 4 hours ago, Arcadia said:

    If you happen to have any anti-aging moisturizer that contains hyaluronic acid, maybe let your daughter try. I used them because of dry cheeks and my chickenpox scars from 20 years ago look less obvious now. I have used a few brands so I don’t think the brand itself matters much.

    Her derm has mentioned something for the scarring, but I can’t remember what it was. We actually have an appt tomorrow, so I will ask.

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  12. My 14y.o. DD eats the healthiest I've ever seen anyone eat. Vegetarian, zero processed foods, zero added sugar, very little dairy - and she still had terrible acne. I wish I had taken her to the dermatologist sooner. She now has it under control, but she has some scarring. She already had mental health issues and this didn't help.

  13. 2 hours ago, Pawz4me said:

    I have this Ninja, purchased near the end of April 2021. I like it very much, but I've never had one of the pod shaped air fryers to compare it to. I use it as a toaster, to heat up frozen foods and rolls, reheating takeout fries, etc. It needs a good amount of counter space when in use, but being able to fold it up when not in use frees up a lot of that space.

    I could have written this exact post!!  

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