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happyWImom

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Everything posted by happyWImom

  1. Thanks, Cat. I'm glad you were able to get the treatment you needed. Dd was tested a few years ago, just the basic test. Negative. We had also taken her to a ped. rhumatologist due to joint pain. They might have tested for Lyme then, too. I've heard the same thing about Mayo, unfortunately. We also have a wonderful University Hospital near us, and I believe it's the same thing with them. That's why I'm looking elsewhere-anywhere, really. Distance isn't an issue.
  2. What the dr.'s originally thought were syrinx's on dd's spine, they now say aren't. They do think that she has a demyelinating lesion on her spine. After looking into that, and going over symptom's she's had for years, we suspect Lyme's. I have heard about Shea Medical Center's aggressive, integrative treatment for Lyme, and was wondering if anyone is familiar with them. We don't live in AZ, but I have friends there. There is a facility here, and I am investigating them, but I think there approach isn't as quick, or aggressive. Thanks, in advance.
  3. I have been searching to see if there are any doctor's in the area who deal specifically with her condition, and plan on trying to contact them as well as Children's. The genetic doc. idea sounds like something to explore as well, thanks. In some of my reading, it sounds like it could be genetic, and that we might eventually want my ds to have an MRI, too. I am trying to comfort dd as much as I can. She's slept with me the past 2 nights, because it seems to help. I've explained that we will search until we find the doctor who is the perfect fit for her, and we won't give up. From what I've read, I think it was a blessing that we discovered it now, too. It helps to know that a lot of the "pains" she's been having aren't all in her head, or it's not been her blowing them out of proportion.
  4. I think they did (it's terrible I don't know) but I was going to ask about tethered cord. One thing I have discovered in my searching, is that we need to find a doctor that has specifically dealt with this. It's not super common, so just referring us to neurology at Children's Hospital isn't guaranteeing that we'll see a specialist who is extremely familiar with her condition.
  5. The week before, she had a massage & was very nauseous; we thought it was nerves. Then, immediately after her chiropractic adjustment, she did start to shake and have full body tremors. Almost like she had received an electric shock. She started to shiver & teeth chatter, too. Again, it was attributed as anxiety, but then when she had a few more episodes afterwards I had her see the pediatrician who did a strength test and then ordered the MRI. My dd had anxiety & GI stuff prior to all this. Now, we aren't sure what's connected, what's causing what, etc.... Thanks for your good thoughts, and I hope they figure out your issues, also.
  6. We all thought anxiety, it's hard to distinguish. Even now, she's having lots of different pains (which in my research, can be caused by the syrinx) and it's hard to know what is anxiety, her gastro pains, or this. :( I am going to see if we can at least up her anxiety medication, but it doesn't seem to have been working for a while. I'm hoping that somehow between the therapist & her pediatrician (who doesn't even know yet-we saw a different dr.) we can do something to help her anxiety, now. Thanks so much for your concern. :001_smile:
  7. Another complication is that we leave for Florida next Friday. We need to see when we can get in to the Neurologist, then go from there. I do have a call in to her therapist, so maybe she could even do something over the phone.
  8. I feel like everything is connected, also. I think we've wasted so much time and ended up with no answers; I'm not going to just "go along" this time. We do have an appointment with a gastro dr. at Children's in 2 weeks, so I plan to make sure that everyone is working together. I'm trying to do just what you do with yours, give her the info. but don't dwell or get sucked in to the emotion. I know it seems cold, sometimes, but if I got emotional I know it would unnerve her. I also know too much info. is too much info. for this child.
  9. I know the next step is to see the neurologist, and we won't know anything until then. The problem is Dd's anxiety. She wants to know what it is, what can we do, what will happen, etc... RIGHT NOW! Obviously, we can't give her that. I need to keep calm so that I can keep her calm. Her mind is all over the place.
  10. I don't know if anyone is familiar with this or not, but I'm hoping someone is. Dd had a severe reaction from a chiropractic treatment last week, so her pediatrician ordered an MRI. She had is last night, and they found she has 2, what they call syrinx's on/in her spine. They are like small, fluid filled cysts. They want her to see a Neuro. pediatrician next week. In reading up on syrinx's, I don't feel reassured, and am trying to hold it together. Dd has had so many problems with her intestines, and we've been dealing with lots of specialists that have not helped, she's struggled with anxiety and OCD, now this. She basically has no confidence in doctors (I don't blame her) and is always thinking of the worst case scenario. Her anxiety is now through the roof, and I am trying to keep her calm. I just don't know what to do.
  11. Her regular dr. was out today, but I was happy with the one she saw because she was very pro-active. She did a pretty thorough exam, and everything seemed normal except one slight thing with her knee/knee strength, so she wanted to consult with a ped. Neurologist. She gave him the run down & even though he also said it was probably okay, he wanted to rule out a neuro problem, so we're doing an MRI. But, the ped. did say she really thinks my dd should see a psychiatrist and have a full evaluation. We like our therapist a lot, but she's a psychologist, and obviously can't prescribe meds. Also, they had dd (and all of us) fill out lots of in depth questionnaires when we first started seeing her, but I don't think it was a full evaluation like they want done. I made the mistake of getting online this morning to look up tremors & the like and the thought of it being simply anxiety (even though it's horrible for her) over all of the other horrible diseases is reassuring. Thanks for all of the support. It helps to know she's not alone. I wish I could find some sort of group with kids her age that have similar issues. She feels very much alone and feels somethings "wrong" with her. :(
  12. Thanks for your feedback. Not that I want it to be a panic attack, but I would prefer it to nerve damage. We are doing to the ped. today.
  13. Help! My dd suffers from lots of intestinal issues, as well as anxiety & OCD. We took her to a chiropractor last week and she had a pretty mild adjustment. She was nervous (she had had one other treatment 2 years prior from another dr. that scared her) prior to the treatment. Immediately after being adjusted, she started to have these full body tremors, teeth chattering, etc... It went on for about 20 min. Scared the life out of her. Chiropractor thought it was caused by anxiety. The next afternoon, we were riding in the car, singing-same thing happened. Last night, she was watching t.v. Again, same thing. I can't believe this is just anxiety. I'm taking her in to see her pediatrician, am wondering if a nerve was damaged, or what. The chiropractor said she used very light pressure, didn't think she caused this. I'm wondering what the ped. will do, because if it's nerve damage, will that even show up on an xray?? We're leaving for our first trip to Disneyworld next week. Ugh. My poor dd is so upset because she wants to know why it keeps happening and if it's serious. Has anyone experienced anything like this?
  14. We are getting counseling, and have for the past 3 years. They've never brought up a full psych eval., though. How exactly does that work? She's never been tested, so I don't have any idea regarding IQ or anything. It is making sense to me now, because while math has always been an issue, she gets frustrated and says she has a hard time remembering facts, historical type facts, and connecting things. When I read aloud, she asks a lot of questions and doesn't always "get" certain contexts. Yet she can remember the names of every bird, insect, amphibian, etc... she's ever seen or read about! She knows their habits, behaviors, oddities down cold.
  15. My original plan was to do just as you suggest, let next year be a "last hurrah", with some slow build up. I purchased Lightning Lit 7 for her to use when she's finished with History of the Horse, because we've not done much in the way of literature studies. I like the look of it a lot. It will be a challenge for her, but not too overwhelming. I guess I was thinking we should do OM as a distance school for the accountability. She's always worried about being "behind" and keeps telling me "If I was in public school, I would have to do such & such, and take tests" yet when it comes to getting school done, her motivation constantly fluctuates. I know I am to blame for a lot of it. She has anxiety & OCD, so behavior issues definitely come into play and I'm always trying to figure out the best way to handle it. Melt downs put us back, and now puberty is here. I guess that's where my panic is setting in. I have come to the realization that I'm not putting any pressure on when it comes to math (our downfall) and will not let where "everyone else is" change our course. She isn't going to be a math major, and I want her to understand what she's doing, get the basics, and not feel badly about herself. As to rigor, you are correct, some people do better with engaged, and that was my hope & plan for both of my dc. I get on these boards and look at schedules/classes for 7th & 8th graders and think "What have I done??" or "They aren't prepared?" Thank you for snapping my sense back into me!
  16. No, she's doing Early Am History Intermediate guide and History of the Horse is more like her lit. study. I have tried to sit down with her and ask which type of curriculum she would like, and her comment was "It doesn't matter what, I'll hate anything." At one point, she said "Lets just do BF Ancients" because BF is known to her. But, she didn't really look at it, as I wanted her to. It is a lot more work than the 2 others.
  17. It helps me to see it all laid out, like you've done. Honestly, everything you've written is what I have gone over in my head (and on paper). I'm terrified of making the wrong choice for her, now that high school and beyond is looming closer. I know that I just need to make a decision and be done with it, but it's difficult for me. I overthink everything! I have looked at OM, because we did try a Waldorfish slant to our work for a while. It appealed to me. If I did it, I would do it with their distance learning school. I know there have been lots of questions about the rigor of their classes, and that is a concern, however, we haven't been rigorous up until now, so.... My one other thought (besides OM or Calvert) is Bridgeway, because I know they use multiple curricula, we could combine some online classes, etc... For some reason I'm a bit hesitant, not sure why. Thanks for letting me think out loud, and for your thoughts. I think I will contact OM and see what they say.
  18. Yes, on my good days with her, those are my thoughts, too. She has such an affinity for it, I'd hate to squash it by having her just do text booky stuff. Your list is fantastic, btw! Thanks!
  19. My dd (almost 13) says she "hates" school, and just wants to get it over with. She loves learning certain things on her own, outside of our "school". She knows more about birds, reptiles, and other animals than I ever will, and voraciously reads field guides of all kinds. She is a fantastic photographer, very artistic and creative, as well as a talented pianist. She enjoys reading-what she wants to read, not for "school". So, I have busted my butt for years trying to come up with interesting, engaging curriculum that she will love, because I want her to love learning. Also, I'm now getting concerned about high school and college, and am thinking I should be challenging her more. But. She is/can be a difficult child, so part of me just wants to have her do Calvert, (or something similar) across the board for the ease and accountability, because if she hates everything anyway, what am I killing myself for??? :banghead: I need lots of advice, because I've been scouring the boards for info. on distance learning, looking at MP, BJU, Abeka-all things that are totally different from our norm. We've done literature type stuff-MFW, BF, SL unit studies. They never seem to get done, though. She is an average reader, but needs to take her time for comprehension. So, something like SL (which my ds would kill for) is a nightmare for her. When I read aloud, she says she doesn't take it in as well. I'm at a loss, here. Here is what she's doing now. BF Early Am. HIstory, Intermediate, BF History of the Horse, Apologia Swimming Creatures w/ her own notebooking, Essentials in Writing, MUS, Vocabulary from Classical Roots, piano, drawing lessons, speech class. She does pretty well with the BF (when she stays on task & we have time) as well as Apologia. But, we started Apologia Gen. Science at the beginning of the year with a Co-op and it moved too quickly (with the co-op schedule) and was taking her FOREVER. She totally hated it, and she's always liked Apologia. I have BF Ancients and was thinking of using it for next year, but it's a lot more work than she's done. Okay, enough background. PLEASE HELP! :001_smile:
  20. I'm trying to actually use up curriculum that I have (gasp!) instead of buying something new. Anyway, for the rest of this year & into next year I want to use Elemental Science Biology for the Logic Stage and BF History of Science for my dd. The thing is, she's almost 13, so I'm not sure if it's too late. For History of Science, I'd say not, since we have done much like that (physics type stuff). She's read tons of science books, field guides, etc... and knows a lot about Life Science, and she finished Apologia Flying Creatures. It was super easy for her, but I wanted her to get more into the notebooking & independent work. We borrowed Apol. Gen. Science and she started it, but didn't like it. That was just the first couple of lessons, so I could have made her finish, but I figured we had these others as a possibility. So, do I have her do the ES Biology & BF combined from now until whenever she finishes next year, or should I try and accelerate the ES somehow? I don't want to kill her love of science for her, but I don't want her to get behind, either.
  21. Good news, Hewitt is still fully operational! I spoke with someone and she was just lovely & extremely helpful. The reason their online catalog isn't current is that they have eliminated some of the core curriculum-meaning the non-Hewitt stuff that they had previously listed for the grade pkgs. Also, they are adding more of their own curriculum and developing more, it just isn't there yet. I ordered the Lightning Lit. pkg. and am so excited!
  22. I've been on their website and it only has a 2013-14 course catalog available, and many of the links don't work when you click on them. I did call them, but it's difficult to speak to anyone, either the receptionist is "busy" or when you finally get through, you have to leave a message for everyone/anyone. I know they do have a sale going on, so that's why they could be so busy/unavailable, but it makes me nervous, because it seems like a lot of homeschool companies are having problems or are going out of business. I was hoping to utilize their services, not just purchase curriculum alone.
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