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happycc

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Everything posted by happycc

  1. My two 18 years old overcame abandonment and neglect issues of their bio mom, severe asthma, epilepsy, eating disorders, depression, and anxiety as well as becoming comfortable with sexual orientation identity and got into UC Berkeley and working part time as well. One is living at Berkeley Coop. The other is planning to move out now that her seizures are under control again. My 16 years old no longer needs an IEP. She is working independently remotely and doing well with all her school work. No more tears and me dragging her to the table to work with her. My 11 years since starting meds last year is actually playing with his favorite toys like Legos and YuGioh. He is really engaged, absorbed, engrossed and designing new things instead of lining them up or spinning them or touching them a few times and wandering away. He designed new Yugioh cards, drew them out, cut them out and wrote the effects or whatever then he incorporated them in an actual game with his brother. That is my happy moment. My 7 years hasn't hit or kicked me in a few weeks.
  2. Ok so reading and learning from everything and trying to prioritize what books I should purchase first .... Scerts stuff David Kilpatricks Ronit Bird what else?
  3. Where to even begin with Ronit Bird? Which book? Program? Lost.
  4. A big thing I forgot to mention...with my son speech therapy and ABA speech targets triggers his seizures as well as intense academics. I had to fire his ABA bt because they would not listen to me that they were triggering seizures and endangering his life with 4 mins and 45 mins seizures and needing diastat. They would not back off. Stay away from Autism Learning Partners. They have no idea what they are doing. Since then my son has lost a lot of memory loss like colors suddenly and we had to rebuild that again. Pretty much done with ABA in our area. We also put on hold academics and sped services that trigger him seizure wise as well. I am at a loss. Right now I approach him carefully and give him very short sessions. Like 15 minutes only and then a break and then another 15 minutes. Maybe even less sometimes. One online class a day is his max. Maybe two a week is all he can handle. We are pushing more ASL classes right now and found a lady willing to play Roblox with him and have him sign the words or directions. That makes him happy.
  5. Thank you. I am interested. Do you really need a team or could I pull this off on my own? Obviously a team approach is ideal but hey it is covid time. Not much is happening period ie no ABA. learning center classes, no classes with vendors etc.
  6. The only thing I can think of is project based curriculums like Moving Beyond the Page. Check out https://www.phoenixlearningresources.com/ Can't think of anything else. Maybe like Mystery Science or something like that. It is online. I guess you are looking for something like a Saxon but for science and history. I will put more thought in it.
  7. Posting here as I REALIZED might be in the wrong forum... So this resource with a monthly fee allows your child to communicate with a Deaf or Hard of Hearing mentor once a week for about 30 mins who uses total communication to help your child to communicate with another peer. The program works with kids with significant speech issues as well. They have several levels. Right now we are with a Hard of Hearing man who uses Sim Com (speaks and signs at the same time) and he does really fun activities with my son and his peers such as science experiments, games, art activity and reading activity. Contact Ashlee the owner who is great and she will help your child get placed in the right group. Her mother is a SLP and she has worked extensively with the Deaf and Hard of Hearing population. Right now it is the only thing my son is willing to do all week. You can work your way through the groups with more signing with each level. https://signonconnect.com/
  8. So this resource with a monthly fee allows your child to communicate with a Deaf or Hard of Hearing mentor who uses total communication to help your child to communicate with another peer. The program works with kids with significant speech issues as well. They have several levels. Right now we are with a Hard of Hearing man who uses Sim Com (speaks and signs at the same time) and he does really fun activities with my son and his peers such as science experiments, games, art activity and reading activity. Contact Ashlee the owner who is great and she will help your child get placed in the right group. Her mother is a SLP and she has worked extensively with the Deaf and Hard of Hearing population. Right now it is the only thing my son is willing to do all week. You can work your way through the groups with more signing with each level. https://signonconnect.com/
  9. The LAMPS video with the AAC is too slow for my son. He would be tossing the machine out the window. I actually stopped AAC because I needed to protect the Ipad. In his early years he used Scribblenauts to communicate with me somehow. That was when he was 4-5 years old or so. He would scream into the phone to finally get the speech to text to get the right word and then show the object to me. He would rather drag my arms around the house to things to show me or find a Youtube video that explains what he is saying. His SLP doesn't seem too excited with me suggesting her to use AAC. I think the AAC picture are too abstract for him. I don't know.
  10. Out state school won't help him. His dB not within their range. His speech testing showed he had receptive and expressive speech issues about a four years old level and he is almost 8. Not just expressive. So not even sure 100% Apraxia. He has Apraxia but it could be caused by his seizures or the seizure meds giving him garbled speech or out of order grammar structure and other issues. Not sure what you mean his support level 3....are you meaning RTI Tier 1,2, 3 or ASD level 1,2 3? He is verbal so he is not a 3. I would think he is more of a 2 if you are talking about ASD level. Maybe you mean Apraxia level or maybe hearing loss/CAPD level?
  11. How do I deal with when I am burnt out and feeling miserable regarding the situation with the ones struggling? I focus on the ones who can learn well a bit but now they are off to UC Berkeley, I am not teaching them anymore. But in the past I felt good that I knew I wasn't a pathetic teacher/homeschool mom. But really they are just easy to teach 😉 Currently I am a behavior therapist working with clients online and my clients are moving forward faster than my own son. Sigh. But that is a slight boost in my self confidence. Still heart breaking at the same time but it helps sometimes. Also I would get out of my funk by finding a new hopeful method/curriculum etc. In my heart I know it won't be the told answer but maybe it might take off one of the layers and we can move back to where we were and continue on. For example we would plug along and hit a rock. Then I would find another resource that might help with the hump and then we go back to where we were and keep moving forward so long as I remember that we left off from there lol Now with my last one....I am on here to mine for more resources (hope) and advice and seeing things another way. A good bath is always helpful. Time with husband too. Sometimes it is just sitting down and coming up with new schedule or routine that is more balanced that helps me get out of the funk. A new friend too or old ones. But mostly, it is just being good to myself and providing basic self care.
  12. Did prompt. Not a lot of movement per se. $100 an hour for not a lot of improvement. Probably because of the CAPD/Hearing loss. Cued speech is next on the list. My son I have been told by multiply professionals that he is complicated. My neurologist is retiring and she told me not to get a neurologist that is wet behind the ears. My good friend is a school psychologist too and he is also my kids' god father and he said my son is the most complicated of all the kids he has ever come across with it. MANY MANY LAYERS like an Onion. Developmental pediatrician and I spoke today. She says to try lots of modalities, repetition and lots of breaks. Not a lot of help there per se say but she suggested associating symbols with each arbitrary info like Days of the week ..Sunday is associated with a Sun. Monday a moon maybe etc And match the symbol with the name. I am going to try that.
  13. We have proloquo but he doesn’t prefer it. He prefers to sign. Order of preference : speech, sign, aac . I think his memory and sequencing issues affected the AAS usage too. Couldn't remember how to get to the page needed for a core word. Also noticed he is not understanding pictures. An slp was helping learn prepositions using pictures like those used in AAC and I learned he learns with hands on/kinesthetic. So I put a toy in front of me and asked him "where is Mom?" He says "Mom is behind the shield/mask/you." But if saw a picture with a toy behind a block for example. He just doesn't get it. Sigh. But it doesn't mean I will stop using AAC. I will incorporate all means of communication. Speech/listening, ASL, AAC etc etc. He has told me he wants me to use SIM COM and it helps him understand things better. however I do need to find a slp more open to different modalities. He has two slps and had one prompt therapist but then his prompt therapist moved back East and just found out another slp is moving out of the sf Bay Area due to fires/covid etc sigh getting Aba is hard now too frustrating . We are with kaiser so it’s an hmo. Things are restricted. To pay out of pocket is rough for anything right now.
  14. Have you heard of cued speech ? Thinking of using that for my son.
  15. Terabith: my one son loves Dnd and my younger one loves Hero kids but I just can’t lead these games. Do you know any good dmers remote with their own groups?
  16. Sullivan Reading Program https://www.phoenixlearningresources.com/programmed-reading.aspx I ordered the first book and see if it might work with my younger kiddo. Has enough repetition. Hmm maybe
  17. I have the Bedrock Literacy curriculum and planning to get Modal Math signed. His DHH teacher is suggesting Fairview for him
  18. Yup been using ASL but he prefers to talk even if we don’t understand him. Today I said what? And he signed “wait”. I was surprised.
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