Is traveling for a second opinion at a bigger children's hospital an option?
My second DD is medically complex and we travel to the next state for medical care and while the drive (and stay) is a hassle and a half it's worth it. I would want a program that does more integration between specialists on site. Your ped not being there may make it harder for them to get the whole picture- for example where my DD goes they all sit, in the same room, and talk cases over.