Whereneverever
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Posts posted by Whereneverever
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I have a giant dog-- he's a Saint Bernard. I'd be worried that any legislation against really big dogs would sweep gentle big babies like mine up in it. He's closer to 200 lbs than 100, but he's also been a gentle "mother" to newborn kittens and unfailingly sweet with my kids. I <3 my giant dog.
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About the psalms, or the psalms updated? Just curious.
About the Psalms. :)
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What topic or subject have you really wished for a book on, but not found something you love?
Personally, I'd love a good updated Psalms book.
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Any updates?
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This conversation really is saddening me. Kids die from poorly treated medical situations in schools every.year. Having behavior issues doesn't mean a child deserves to DIE.
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I miss a lot of the old posters. I've learned so much here.
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:grouphug: :grouphug: :grouphug:
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We had no problems with our insurance.
Seriously, it was a great experience.
We had epic fights with our insurance company over a wide variety of things, but the wheelchair was never an issue. From ordering to receiving the chair, it took about 4 weeks. The wheelchair guy even had dd's name embroidered in pink on the headrest and threw in the slide-on table as a surprise a few weeks later when he heard she had been re-hospitalized.
If eating or drinking is going to happen in the chair, or if incontinence is an issue, give some serious thought as to how to clean the wheelchair. Thoroughly removing food from the stitching of a chest support is an hour long affair involving dish detergent, a toothbrush, and dry time.
Good to know, thank you!!!
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The more documentation that you can get, the better (assuming it's a covered benefit). Also, don't be afraid to appeal any denial and/or request an independent medical review through your state regulator. Sometimes even the threat of going to IMR can cause the insurance company to back down.
We have a lot of documentation, including frequent hospitalizations. I'm hoping that since the need is a physical one it will go smoother...
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Time is really of the essence with strokes, so I would want that evaluated asap.
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I don't envy you the coming insurance battle. Hopefully you won't have problems, but I have heard that they push back more on strollers vs. wheelchairs (which doesn't mean you can't get it, you might just have to battle harder). Our insurance covers durable medical equipment 100% but still manages to make it pretty difficult--they request more letters/justification from the PT, etc. Took 5 months just to grow her chair a bit bigger two years ago. There are foundations that help provide equipment for kids. We got a stander from Wheel to Walk based in Portland Oregon after insurance refused to cover one.
My dd needs an excessive amount of sleep but cannot sleep in her straight, 90°-angled wheelchair. There are chairs that tilt but they'll only prescribe them (and insurance would only cover them) if there's a medical need such as child does not have the muscle control to stay sitting up. The stroller would work better for sleeping. Hopefully you get great help from the PT to determine the best solution for your dd.
I'm really worried it's going to be a nasty fight with insurance. Sometimes she's great-- and sometimes she can't even hold her own head up, you know?
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I haven't seen any local groups for used equipment. :-/
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Thank you, everyone! I'll see what the PT and tech suggest.
I'm worried that a stroller will make her seem and feel more like a baby, and I don't want that... but she does need something comfy enough she can sleep in it. I don't know. This isn't something I thought we'd be getting...
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We were in the process of trying to get a SN stroller approved a couple years ago when we switched insurance to a HMO and it was no longer a covered item. We wanted it for safety reasons (DD had a tendency to bolt at that time) rather than for mobility so it was important to us that it look like a stroller rather than a wheelchair. I didn't want to get dirty looks if we let DD out and she started running/jumping/etc.
DD's neurologist had recommended a Convaid but unfortunately I don't remember the specific model.
That's one of the brands I've looked at. Thank you-- and I'm sorry that your HMO won't cover it. They're spendy!!
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If she would be in it all the time, I would go with a wheelchair which will position her body better to minimize damaging effects from sitting all of the time. If it's just to help out occasionally when needing to cover long distances, etc, I think I would go with the nice strollers that are meant for disabled kids. We don't have one, so I can't help with brands. I remember looking at one that belongs to a schoolmate of my dd's who is several years younger and just thinking it was pretty cool. We now have a conversion van for dd's chair, but at the time I first saw the stroller we didn't and I thought such a stroller would be so much easier to get into and out of a regular van or car than dd's 75 lb wheelchair.
For help getting the right thing, I would work with a PT. Our PT works with the wheelchair company to make sure we have the right solution for our dd's needs. If you have a Shriner's nearby, they have PTs who can help, no cost to the patient.
There's days I don't think she'll be in it at all, and then there's days she will be in it all day. I don't have a wheelchair accessible van, and I don't think it's in the near future, so that does weigh in!!
She is due to see a PT about this...
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DD's docs have agreed it's time to look into one or the other, not for all the time, but as needed. Does anyone have a company that they've worked with that they REALLY loved? For an almost 9 year old, who won't be self propelling, which would you lean towards?
The doc keeps saying it's up to us, but if I knew what I was doing I wouldn't ask.
Ideas?
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There are also specific medicaid waivers to cover inpatient psych care for minors.
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(hugs)
:(. Hugs
:grouphug:
I'm so sorry. Everything okay?
Thanks for reminding me that I started watching Madame Secretary last night and liked it so maybe I'll just go hunker down and watch a couple of episodes. Or the entire season. :ohmy:
So sorry. Hope everything is ok. :grouphug:
I'm so sorry. Please update when you have a chance. :grouphug:
:grouphug:
That's terrible. So sorry.
:grouphug: Any update?
I sure hope the rest of 2016 is better for you. More :grouphug: .
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It was a lazy vacation day here. We undecorated and the guys planted our tree outside. Youngest cleaned up more of our landscaping. I'll admit to catching a nap plus I caught up (via phone) with how my uncle is doing (heart surgery last Monday). Otherwise, we played more games together. We ate food requested by youngest (who leaves Monday for college and is spending Sunday with friends).
Today should be more of the same minus the undecorating. I need to get to the grocery store for the requested main meal (salmon) and we'll all work more with the ponies (mainly grooming and teaching our babies manners), but that's literally all that's on the agenda, so game playing will fill in a bit.
In general, I'll echo what a PP said... For those who had a crappy day yesterday, I sure hope the rest of 2016 is better. :grouphug:
Sorry I didn't update sooner, it's been a rough few days. She's not in the hospital but is still having more seizures than normal. She's at least responsive and breathing now, so it's an improvement.
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I sat in the ER with an unresponsive 8 year old who wasn't breathing well post seizure.
Not a great start to the year.
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I'll fess to having six cats. They're not all inside, though, because some are barn cats. And since we live rurally that's not excessive, it's reasonable. ;)
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What about a real umbrella stroller? They're no where near as big as normal strollers but it'll be hardier than a toy.
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Nothing really encouraging here, either. :-/ We've been unable to wean my DD (8 years old) off seizure meds. We recently did a long inpatient EMU stay... and no good ideas.
She just had a Make a Wish trip since things are so out of control. :(
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Target has a *ton* right now in their women's dept.
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No experience in the training-- but when my DD is in the hospital her children's hospital (Colorado Children's) has a "Prescription Pets" program. I'd contact the specific places you want to volunteer and ask them what they prefer to see-- for example CC has all the dogs wear shirts, they train them to jump onto a blanket on the foot of the bed, ect.
Could you live with an iPad in place of a computer?
in The Chat Board
Posted
I couldn't, but from what you're saying it sounds like you could and it'd work well.