KSera
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Posts posted by KSera
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@Kassia’s one of the best ❤️.
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5 hours ago, Spryte said:
Talk to your people in advance, and find out what they want.
I personally would want you to ask questions and get all the info! I think of my support people as extra brains when I might not be on my toes — you are there to help me remember to ask the questions and help recall the info later.
This is the approach I take. When I ask, almost always they say they really want me to ask questions because they don’t tend to think of them, and that’s why they want me there. If they said otherwise, then I would sit quietly and be support.
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Thank you so much for sharing and to whoever was able to make contact. It’s good to have an update.
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Oh my word, what an enormous relief!! I am so glad to hear this update and hope he continues to get better quickly and returns to his full function.
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9 minutes ago, mommyoffive said:
This was an excellent one! Reminded me of this Vertlartnic post:
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Continuing to have your son in my thoughts.
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I did the Sutab tablet prep. You can take them just with water if you want. No weird stuff to drink. It was so much easier than any other prep I read about, and no cramping at all. it's definitely what I will request again next time.
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Praying so much for you all.
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1 hour ago, wathe said:
WHO is attempting to redefine terminology for pathogens that transmit through the air: getting rid of the old "droplet" vs "airborne" IPAC categories, and replacing them with new terminology based on how infectious particles actually behave, rather than based on particle size. Also an attempt to standardize terminology across academic disciplines. This is long overdue.
CBC News summary, with some context.
Hopefully this acknowledgment of spread through the air will lead to enacting air cleaning policies as the recognition of waterborne illness did for water.
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9 minutes ago, wintermom said:
Just curious about whether she's seen an allergist in case of allergies and oral allergy syndrome. I have environmental allergies and OAS, and experience issues with some foods, bloating, pain, etc.
On a semi-related note, if the G.I. symptoms are causing enough trouble that she really wants to try some thing now to help with symptoms, it might be worth trying histamine blockers. They help a lot of people with GI symtoms from post viral mast cell and/or histamine issues. Taking both an H1 and an H2 might give the best relief, but starting with just one and then adding the other if it helps would be better. The H2 would usually be famotodine (Pepcid) and then the H1 could be Allegra, Claritin or Zyrtec. Seems like different ones work better for different people, and interestingly, some people find they greatly decrease their brain fog as well. Which makes sense if the brain fog is due to inflammation. My own kid with similar symptoms had major GI improvement within 24 hours of starting.
I don’t know if she’s at the point where you would want to do something like that while waiting for the appointment or if you prefer to just wait for the appointment. Although, I honestly would not expect most GPs to have much familiarity with the above. An allergist or long Covid specialist would be much more likely to.
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2 hours ago, Soror said:
Her biggest issues continue to be fatigue (even after a full night's sleep and taking a methyl friendly b complex, iron, and d3 for 2 months now), joint pain, and trouble concentrating/brain fog She also gets dizzyness/feels weak and is having appetite issues. It seems the appetite issues are newer. I think there has been some stomach stuff off/on for a while but that has been worse lately.
I hate to keep saying, but this still sounds like post Covid to me. Unfortunately, that’s still a diagnosis of exclusion. If she were to go to a long Covid center with those symptoms though, and they didn’t find anything else on any tests (I think your list of the ones you want run are good), she would get that as a diagnosis. I would do as lawyermom says and at least start treating the POTS symptoms—lots of hydration (using a method to track), salt, compression.
If there’s any chance some of the symptoms are new since starting the B complex, then I would consider stopping that temporally and seeing if anything improves or switching to one with the other form of B vitamins. Not everyone does better with the methylated ones—some have a gene that makes those cause them a lot of symptoms, particularly anxiety and irritability.
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I’d love to do it as would any of my kids. I acknowledge we may not be typical though. My dh would do it if asked, but probably not enjoy it.
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57 minutes ago, Heartstrings said:
That sight seems to only show open waiting lists. An open waiting list just means you can get on the list, not that they have no waiting list or have vouchers immediately availability. You can get on an open list and wait on that list for years and years. I know someone who just got on an open list that shows as open and was told the wait is around 3 years.
Yes, some of them are that long. Some are much longer. Some shorter. But the first step is always getting on the waitlist and lots of places the waitlists aren’t even open, so finding open waitlists and then finding those that are the shortest is the quickest way to start. It does take a lot of leg work.
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1 hour ago, Spryte said:
Oh, please remember to space your probiotics and s. Boulardii at least two hours apart from your antibiotics!
Have you heard anywhere this applies to s. Boulardii as well? My understanding has always been antibiotics won’t affect the florastor, so I don’t bother to space that one, which makes it a lot easier.
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If you mean you’re having actual symptoms, my dr recommended 2 capsules 3 times a day, and that’s what we do.
I’m really sorry about the pneumonia!
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24 minutes ago, Scarlett said:
Only one of the residents made the decision to move a trailer on to the property. And to give him access to the house. No one was consulted and none of the rest of the residents want this arrangement.
Maybe the resident who made that decision should be told to leave as well? It seems very disrespectful for that all to have been done without talking to people she shares the house with. Her leaving with her son probably makes more sense anyway.
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19 minutes ago, Heartstrings said:
Arkansas specifically.
This is one of the sites I use: https://affordablehousingonline.com/open-section-8-waiting-lists/Arkansas
The two listed at the top are verified open, but all the ones listed underneath are worth checking as well, as the first one I looked at turned out to be open right now as well. The site has information about the populations they serve, type of housing, how many units, etc. It's a third party site, so always best to then go from there to the site for the specified housing authority itself to verify. I have found it accurate for my own area, though.
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11 minutes ago, SKL said:
A young adult with "high-functioning" autism may have one or more parents with undiagnosed high-functioning autism
I wondered this when Scarlett mentioned that his mom lives there but doesn’t own a share of the property. It made me wonder if there’s some thing similar with his mom needing extra support from her own mom as well.
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5 minutes ago, Heartstrings said:
Where are you looking to find that? I’d like to pass along to info to a friend, single mom of 4 who was just told there was a 3-4 year waiting list in our area. Maybe she can look into neighboring counties.
Do you mean where for Arkansas specifically or in general where to find open lists? I’ll go track down some links to share.
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19 minutes ago, Heartstrings said:
I’m also curious about waiting lists and accessibility. Does your state really have programs that you can just walk into an office and leave with keys to a paid for apartment and a stipend for living expenses, with just a diagnosis? No years long waiting lists, no jumping through bureaucratic hoops?
Of course not. But there are housing programs and looking at Arkansas, it appears they have open waiting lists and places with housing openings for section 8. The wait varies tremendously from place to place, which we discussed earlier in this thread when I first suggested helping him get on some section 8 lists. For someone who has the ability to move somewhere and not necessarily be near family, the options get even wider. Once someone has a placement and lives there for a year, they can then move with their voucher to another place that otherwise would be closed or have a wait list for them.
As I’ve said a couple times now, other than money and the trailer, it wasn’t clear to me if he was getting any supports until Scarlett said yesterday that he was. Now that I know that, it changes my perspective, as I’ve also already said.
I’m another one with lived experience in this, and my experience has not been that every parent is doing all these things for their kid. It’s unsurprising to me that parents who are here on a homeschooling board are, but no, it’s unfortunately not everyone. And I don’t even put the blame for that necessarily on parents. It takes a lot of research and a whole lot of time and effort and many people may just not know what their options are or have the bandwidth for the amount of legwork and phone calls and paperwork it all takes. It shouldn’t have to be so hard.
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17 minutes ago, KungFuPanda said:
I’m wondering if the decline in student function isn’t so much the pandemic effect but the fact that the kids who have had access to the Internet at their fingertips their WHOLE lives have finally reached college. It’s so bad for their attention spans. It’s no wonder they can barely stay focused long enough to cut and past an answer.
I agree this is most likely a factor for sure, but also, the COVID part of the pandemic gets largely ignored. This is a pandemic disease well known to affect brain function. A lot of the problems described fall under what gets colloquially termed as “brain fog” and is a very common post Covid effect. Same with mental illness.
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42 minutes ago, Scarlett said:
I think the thing that gets me from some of these responses is that he has had all of the help that has been suggested here and more. His mother has given him money, money, money and a place to stay and she has bought his medicine and she has sent him grocery orders, etc. She has filed for disability for him twice and he has been denied both times. She drives him to work when he has no vehicle. She picks up his medicine when he is capable of doing it himself. None of this has helped. Is it possible that he would be better off if he had less enabling?
None of these (other than filing for disability (but without a lawyer the second time)) could have been known from this thread until now. I agree that paints it in a different light. People can only respond to the information given. It's *possible* he could be better off if she had done less, but also possible he could do much worse. The things she does for him are very, very typical things for a parent of a young adult on the spectrum to help out with. Executive function can often be quite impaired, and they are likely to go without having their medication at all if someone doesn't help, which is worse. Same with food.
46 minutes ago, Scarlett said:we have a family friend who is on the spectrum
You know what they say about knowing someone on the spectrum, right? Every autistic person is different, and that's fantastic that your family friend is doing so well with his job, I'm just sharing that the job statistics, even for "high functioning" and very intelligent people on the spectrum are not good. My highly gifted young adult on the spectrum doesn't have any problems with drugs or anything like that, but does require a lot of these kinds of supports. Fortunately he is pleasant and not someone who purposely makes trouble.
36 minutes ago, SKL said:The way I'm reading it, this young man has had tons of notice, and lots of people care about him. They've given him tons of grace and help and offered to give him money to ease his transition. I don't see how you could possibly have read "no one seemed to care what happens to him."
It's only near the end of this thread that I'm learning anyone has done any of these things, other than that his mom has let him live in a trailer on the property, which is HUGE, but I was reacting to everyone else wanting him to leave immediately, and saying it was fine if he lived in his car because he did it before. The new information does change my perspective. Until now, I honestly just felt that he was considered a problem by everyone but his mom (and I think grandma?) and they just wanted him gone. I'm glad to hear that's not the case.
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32 minutes ago, Scarlett said:
These are all details not knowable from the posts. I’m sorry for such a difficult situation and that he hasn’t been able to take the help offered. I feel for his mom as well. I hope somehow things will change for the better for him.
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I want to add that I know it might totally be that there’s no kind of help this kid will accept and it may just be a helpless, sad kind of situation. My feelings of concern for the kid came from the sense that he was going to be made to leave on the spot with no notice and that no one seemed to care what happens to him after that and there seemed to have been little to no planning or help in place for a family member acknowledged to be disabled and stated to belong in an institution.
But beyond that, I realize that even if everyone had the best intentions and tried their hardest, it still might have an unhappy ending.
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WTF is up with the new Bluey episode???
in The Chat Board
Posted
I felt the same about that, but thought it was just me. I forgive them for it, but I think it was a bad call.
I hated the way they covered that as well! It was like, “hooray! This unusual predicament means we’re now legally allowed to put your life at risk! Yay!!” Maybe they just wanted to explain why he was up front, but they could have done it matter of factly and not like it sucks so much to have to ride safely in the car and now we can celebrate because we have an excuse for you not to.
But still I forgive them.