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Mrs Tiggywinkle

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Posts posted by Mrs Tiggywinkle

  1. 1 hour ago, brehon said:

    No suggestions for the kidney stones. Ugh! Just horrid. 
     

    Intractable vomiting — y’all carry droperidol? Works wonders for my patients when nothing else will. And has the added benefit of being a slight sedative at low doses. 

    We don’t, we only have zofran. He got zofran, phenergan and then droperidol in the ER which finally worked. 
    I offered to give him a liter of fluid and some zofran IVP and see how he does but if it’s obstructing I am really hesitant to pour fluids in. And since he now can’t urinate and has bilateral upper quadrant pain I’m kind of thinking that’s where it’s headed. 

    they did prescribe flomax and gave him a strainer but so far he can’t keep meds down either.

    I want to take him to the bigger hospital a half hour away that actually has urology but he’s a man and doesn’t listen. I even offered IV morphine for the trip down if he’d get on my stretcher. 🙄🙄

    • Sad 5
  2. 3 minutes ago, cintinative said:

    So horrible! I am so sorry.  He must be in so much pain.  =(

    Have they analyzed the stones to see what type they are? Sometimes by identifying that, they can make suggestions about what dietary changes might help.  My 15 year old had a kidney stone last year and they told him to go off carbonated drinks entirely. I don't think that is true for everyone because my husband has also had kidney stones and they didn't tell him to avoid carbonated drinks.  Anyway, all that to say, ymmv on which dietary changes might help.  For my son, they did a 48 hour urine collection that was sent off to a company to evaluate for causes for kidney stones. I found this:  https://kidneystones.uchicago.edu/24-hour-urine-collections-are-not-avoidable/#:~:text=The only way to find,are to form new stones.

    Thank you for the link! This is only his second one ever, but they’ve both been within the last 3 weeks.  The first one was so small that it passed within a few minutes of him getting morphine and they didn’t collect it.

    I am going to ask his primary about a urine collection.  If there’s some way to prevent this we need to find it.

    • Like 1
  3. DH has wound up in the ER twice in the last three weeks for seperate kidney stones.  He has never had any in the past and this last one wasn’t big enough to obstruct but is making him really sick. Urology is a six month away appointment unless he gets an obstruction.

    Other than increasing hydration, any suggestions?  He is gluten sensitive and not always great about avoiding it(he goes in spurts; he’ll stop eating gluten then go back to it after a while because he gets tired of gluten free products, but then feels crappy so stops eating again) but no other medical issues. He was in the ER all last night and is still miserable and vomiting today after discharge. I’m working and he’s actually in the bunk room at work trying to sleep but I’m half tempted to toss him in my ambulance and return to the ER because he is constantly vomiting.

    • Sad 10
  4. We had an incident a year and a half ago where the police responded to a mental health crisis at school involving my then ten year old son and he wound up handcuffed, which was completely inappropriate and escalated the whole situation. I was less than impressed and started talking to everyone and anyone who would listen. Long story short I wound up doing a ton of education for local LE and I now teach mental health topics at our law enforcement academy.  I find repeatedly that the police officers do want to know what to do, but they’re getting only the barest bones of education, and then add in a potential weapon and it’s a disaster.

    But these are people who are trained to their core to control a situation and figure it out later.  It’s a huge shift mentally to switch to what a mentally ill person needs. 
    We do have a crisis team of social workers here that is supposed to go out to a situation with a mentally ill person and diffuse the situation or determine the best course of action.  Unfortunately, due to liability or short staffing or whatever, they always wind up requesting police and EMS presence.  And we—police and EMS—have next to no training on any of this.  Police want to control the situation for safety; paramedics want to fix what they can medically and take the person to the ER, where the staff will be frustrated yet again because there’s no beds for medical emergency patients, much less psych patients, and now they have to scrape together a 1:1 sitter from somewhere to stay with the person because JCAHO came in and said they have to, and there’s no inpatient psych beds anywhere anyway. 
    It’s a wrecked situation from start to finish, but the solution require money, so that isn’t going to happen. Nobody wants to fund appropriate mental health care, education, staffing or beds.

    • Like 5
    • Sad 3
  5. My DS12 has his heart set on Cornell right now.  He’s in seventh grade but his grade point average is high—however, he’s in a special needs school.  His academic work is not modified and all at grade level, but that may hurt him.  If his heart is still set on someplace like Cornell in two years I may homeschool high school for him.  He is acquaintances with two of Cornell’s history faculty who love talking about ancient history with a bright and obsessed seventh grader, so I really don’t know.

    DD10 has wanted to be a teacher since she could talk.  She wants to go to a Christian college, and I doubt that will change either.  My alma mater has reduced tuition to 2001 levels, and it’s possibly something we could afford if it’s still low tuition, but I want to encourage her to reduce loans because teaching is not well paid.

    my youngest’s goals will likely be independent living.

    I am not very interested in the college race.  Neither will my kids, especially DS12 who is autistic and not interested in extracurriculars.  DH has an associate’s; I have a master’s; neither of us work in a job that requires a college degree.  Education is hugely important to me, but it comes down to are you going to college for education or for credits-degree-job?  If it’s education, go where you can get the best one.  If it’s a job, go where you can get the degree for the least amount of money.

     

    • Like 5
  6. 34 minutes ago, ktgrok said:

    It sounded like people were using child care vouchers (provided to people under a certain income level usually) to pay for "after school care" at these schools. But the schools were actually using it to pay for part of the school day, or something. Also money for lunch program. It does not sound like they were getting direct money for actual academic stuff. 

    Okay, this makes a lot more sense. They were talking about special education programs, and that confused me—but I don’t know a lot about private school funding and it’s also possible that the schools I am familiar with just opt out. I know the Montessori school here does not receive any federal funding, they do pay for a SPED teacher but it’s not through government monies.

  7. What kind of public funding was the school getting?  My daughter attends a Christian school in NY and the only funding I’m aware of is that the state helps subsidize the cost of having a full time school nurse on campus.  She’s a district employee. Other than that, all funding comes from tuition and some church support. I asked a friend who’s admin at one of the Catholic schools here and they also are not getting public monies.  What money are these schools getting?  Do they have to opt-in to something where other religious based schools in NY have chosen to opt-out?

    • Like 1
  8. 13 minutes ago, ktgrok said:

    I’d give the judge slack if he hadn’t spent time berating her for her “bad decisions “ that led to being trafficked and raped. Victim blaming a teen who was raped by a 37 yr old!

    I didn’t see that part in the first news story I read. I did see she was homeless.

    I wish there were more resources for homeless teens.  It’s a big issue in the city I work in and the last homeless shelter just shut down due to losing a grant to cover security(and they truly had a need for security 24/7).  They wouldn’t take teens anyway, but now there is just nothing.  Everyone’s attitude is that homeless teens are homeless by choice, because they could go home or to a foster home if necessary or even a group home—despite the fact that teens leave these options due to abuse for the most part. So nobody cares about alternatives and things like sleeping in a hallway and going with the first guy who seems nice happens.

    Its raw for me. I feel like I deal with this once a week(homeless or transient teens and assaults) and I only work two days now.

    • Sad 5
  9. I love experience gifts for situations like that.

    I gave a relative wine tour tickets about an hour from her home complete with a limo rental for her wedding. They’d lived together 20 years and didn’t need or want any household items.

    • Like 5
  10. 1 hour ago, kbutton said:

    Is that when they were trying to diagnose you with something else permanent on top of vEDS? I am sorry that it ended up being a dissection. 

    They initially said POTS because the dissection didn’t show up on the first CT. But pots doesn’t cause left side weakness and when that didn’t go away in 24 hours they decided to do a CT-angiogram and found it. It forms a little flap and throws clots till it heals on its own from what I understand. But it was causing intense dizziness and neck pain.

    Sorry to hijack the coversation.

  11. I wonder how much of this is based on the OP and her husband’s dislike of BIL.  I feel like it all keeps circling back to that.

    And it is very hard to try to understand someone else’s family, especially not being there.  In my FOO, MIL getting mad and even yelling and leaving wouldn’t be considered “bad” or even too unusual. People get angry, blow up, leave to cool off and once they aren’t overstimulated or frustrated in the moment, everything is fine.  In my husband’s FOO, that would have been unthinkable. 

    I would frankly expect MIL to spend more time with her own son than grandchildren.  if they’re by themselves in her bedroom, it’s probably BIL feels unwelcome and just wants to hang with his mom. I would also yell and leave if someone told me they didn’t want one of my children there on the last night.  None of this is unreasonable to me at all—but that is where having a thorough understanding of the family culture comes into play, which we obviously don’t have here.

    • Like 6
  12. I do some advocacy works for vascular EDS. Mostly education related—so many first responders and ER nurses and doctors have only the vaguest knowledge.

    I haven’t posted it but three months ago I was in the hospital with a vertebral arterial dissection which has left me with some one sided deficits.  It sounds scarier than it is but afterwards I did double down on my educational and advocacy efforts—but I also started to turn down some speaking engagements, writing assignments, etc because it would take too much time away from my family. Veds is not usually a disease that ends well, and I weigh every overnight speaking engagement opportunity against losing that time with my kids. Or date night with my husband. Or even, honestly, a hot bath with a book because that may eventually be something I can’t have.  Am I going to regret not taking one more hot bath vs regret over missing out on a traveling speaking engagement? I think I will regret not taking that bath.

    Am I wrong in that? I absolutely do not believe so.

    Advocacy is great.  I want this disease to go away. I want some genetic modification cure. I hate your disease.  I want it to go away. I want a cure for you today.

    But at the end of the day I will regret missing time with my kids, missing that sunset over the hill in front of my house that I someday may not be able to see, miss moving my leg next to my husband’s while he sleeps. Those are things I’m likely to lose.  And I weigh every choice I make with that in mind.

     

    • Like 17
  13. I love funerals. But all four of my grandparents were from the same small town with three of them having roots hundreds of years deep there.  Funerals are still community events with very little actual mourning and a great deal of joyous memories, reunion with loved ones rarely seen, and food.  Lots and lots of food from the small clapboard UMC church ladies.      My great grandmother’s funeral stretched over three days and was exactly the glorious send off she’d planned(she was 98 and spent at least 70 of those years planning and adding to her funeral).  There was nothing sad about it, just the way she had hoped.  It started with her stellar hot pink casket and ended with whiskey toasts at the lowering of the casket(where a second cousin actually fell into the open grave after a touch too much, which would have very much delighted her; she had a wicked sense of humor). 

    I had an uncle who had a catholic funeral that was a very different atmosphere. That one I didn’t like. 

    • Like 12
  14. 14 hours ago, dirty ethel rackham said:

    I have a Freestyle Libre 2.  I've been looking at Amazon to see what other options I have and saw that.  So, how do you use the underlay?  I thought it was for a reaction to the adhesive on the GGM device.  Can you use them with a cover?  

    I had to stop using the freestyle.  They changed the adhesive in 2020 and it turned my skin green, my skin bled, crusted, it was really nasty.  This is a known problem with them but apparently it doesn’t affect enough people for them to change it.  I never found anything that really worked underneath it.

  15. By the way I read this to contractor husband and he said go with House A, even if you do renovations before moving in or just live with it. His reasoning is that House B sounds like a crappy house flip. He said if it was a thorough well done house flip he would expect the roof and the trees to have been taken care of already.  
    If nothing else he strongly advises you get two different inspections done by two different people and look very carefully at the quality of work, electrical wiring, etc.

    • Like 6
  16. 8 minutes ago, ktgrok said:

    We found that many mortgage companies wouldn’t do a mortgage on an old roof. 

    This was a big problem when we bought our last house.  We had a large enough down payment that we had some leeway but we finally walked away from one house for that exact reason. 
    Check and see how far out roofers are booking. It’s 9-12 months here right now. Trees are the same way.  
     

    I would take the first house, but that is because my husband is a contractor and we can do the inside ourselves. I would never buy a house with an existing pool unless I was immediately going to put the money into getting rid of it.  Pools tend to have problems and I don’t want to inherit someone else’s issues. We have a pool now but should we ever sell, we’d get rid of it before selling on our realtor’s advice.

    • Like 1
  17. When we bought our first house, it was in a nice street in a nice village with relatively decent, nice and quiet neighbors. We built a fence and enjoyed our quiet backyard.

    But tourism there exploded and we couldn’t even park on our street from April to November anymore.  Air BandBs became huge and proliferated before the village government realized this and stopped new ones.  By then it was too late. The nice, quiet elderly people in the houses around us had passed away or gone to a nursing home and their houses became short term rentals.  Too much traffic, too much noise, too many people.  What was good for the local tax base in sales tax was miserable for us.

    We wound up moving.  The area had changed too much and we weren’t going to change our likes and dislikes with it, so we moved farther out into the country.  Now I live next door to a barn that has cows a few months out of the year and can’t see another house(there is one a quarter mile down the road but in 12 months we’ve never met them and it’s hidden by trees).  DH hates cities beyond any reasonableness, even visiting or driving through them, but he’s very happy surrounded by hay fields.

    • Like 1
  18. It sounds like this is a private pay only facility? If so, then no, no one employed with them/by then will accept insurance because that opens up a can of worms as far as Medicare is concerned.

    IMO private pay only facilities tend to operate on a different set of rules. So what I’m familiar with at facilities who accept insurance will be wholly different than what you’ll experience there.

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