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BaseballandHockey

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About BaseballandHockey

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    Used to be CuriousMomof3

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  1. To me, this is one of the reasons that a lot of the work families do around feeding needs to start by targeting anxiety as opposed to repertoire. I think that a kid who sits at the table, staring at a food wondering whether they'll be forced to eat it, and whether they'll be hungry that night, is just reinforcing their anxiety about the food. On the 21st time it's presented they'll be more scared of it, not less. For my son, when he first joined us, he needed very clear cues about which food he was going to have to make decisions about. Before he came I served everything family style, w
  2. We don't mask on the fenced parts of our yard, if only people in our bubble are there. But we mask everywhere else. My kids do better with really clear consistent expectations, and if we model those expectations. So, just making it 100% seems to make sense to us. Plus DH and I have plenty of experience masking for longer periods of time.
  3. I feel like the question of distracted eating is about whether you're playing a short game or a long one. When my son first came home, and we were working with therapists who very much wanted him to be eating 100% by mouth and not using his feeding tube, they were big fans of distracted eating. We used distraction for other unpleasant medical stuff, and at that point, we treated eating the same way. Later, when we had a different therapy team who helped us embrace the feeding tube as something he'd have long term, and shifted our focus to decreasing his anxiety around food, and he
  4. As I understand it, Astro-Zeneca/Oxford uses a virus from chimpanzees that doesn't replicate in the human body, as the vehicle to get the spike protein into people's body and trigger an immune response. So, I guess the vaccine is live, but it's not the same as an attenuated virus. I haven't seen anything about whether this kind of vaccine will cause problems for people with immunosuppression.
  5. I absolutely agree 100% with this for all but kids with the most severe medical issues, and looking at food this way can make the task of feeding them seem much less overwhelming.
  6. I think that's a great thing to explore. If it were me, and I was exploring this with an 8 year old, I'd probably start with reading multiple versions of a category of story (American tall tales, Russian fairy tales, Japanese tales, trickster tales from the SW US etc . . . ) identifying patterns and themes and then telling or writing our own. If the interest continued and it lead to an essay or graphic organizer comparing and contrasting that would be cool, but I'd probably follow my kids' lead on that.
  7. Thank you @Arcadia and @Dreamergal Those were really helpful to me as I figure out what I want.
  8. I've had a fair amount of experience with kids with feeding issues, not just in kids with ASD, but most of it in kids who had some kind of disability, including students with various developmental disabilities, and my own child with severe medical issues. Because of my son's issues, I've also done a fair amount of reading about feeding issues. In my experience, feeding issues can be really difficult, and can lead to anxiety in both the parent and the child. For us, addressing that anxiety was key because it was impacting our relationship and my kid's development. I'm happy to sh
  9. My kid with auto inflammatory disease (not autoimmune but related) couldn’t take live vaccines, and so I have read a fair amount on it and I have never heard the suggestion that people with asthma avoid live vaccines unless they are currently on oral steroids. We were told by that kid’s pediatrician that it was fine. My understanding from my son is that the issue with vaccines and immune system is two fold. One is that for some people whose immune system is damaged enough the live vaccine may be still enough to cause symptoms. The other is that if someone’s immune system is comp
  10. We had an adjustable bed that was designed specifically to be used with a hospital bed. It was set at the height that we usually kept the hospital bed at, but it didn't go up and down. It did have some other optional features of a hospital bed, such as bed rails, and the ability to attach medical supplies, that you might not need. We didn't select it or buy it (a relative did and we reimbursed) and I can't tell you the company or which level of mattress we selected. The mattress seemed fine, but nobody was sleeping on that side most of the time. It just made the hospital bed big enough
  11. I think we are all seeing this through the lens of our experience. I was imagining it as a euphemism for more foot care. I was also imagining covid. Like, I might say to my mom "oooh let me give you a pedicure" because "hey I'm worried about your feet" wouldn't go over well with any of the elderly in my life. It sounds like none of what I was imagining applies.
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