Jump to content



  • Content Count

  • Joined

  • Last visited

Community Reputation

152 Excellent

About caayenne

  • Rank
    Hive Mind Level 2 Worker: Nurse Bee

Profile Information

  • Gender
  • Location

Contact Methods

  • Location

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Ok, that's good to know! It sounds like it's good to wait a bit on that, too! Isn't it weird how thinking about this stuff can make you feel like you're having a reaction? It makes me feel nuts, sometimes! 🤣 But so much of the POTS stuff, at least, is nervous system related, so I guess the nervous system triggers the stress, which triggers the inflammation, which triggers more stress.... 🙃
  2. I think that sounds like a good plan. If you're having a lot of pain right now, that stress can cause inflammation by itself. Since the Pfizer is scheduled for 3 weeks apart, you would only be at 4 weeks if you waited an extra week. I don't blame you one bit. When your immune symptoms are different every day, it's scary to think about intentionally introducing a major immune response to your body on purpose. Out of curiosity, do you not take Advil because of the MCAS? My doctor doesn't know a lot about it, but I take it most days. Do you react to it, or is it just a precaution? I'm s
  3. I saw that people were mentioning POTS, so I thought I would chime in with two anecdotal cases. My sister and I both have POTS (both cases thought to be "caused" by viruses. I may also have some mast-cell issues, as I had an episode 3 years ago which sounds awfully similar). My sister got Moderna and has had both doses. She did fine and did not experience a major flare, although she did have the typical second-dose 24 hour flu feeling. She is over a month out now, and she feels great! I have gotten my first dose of Pfizer two weeks ago, and I had no problems at all. I am very nervous
  4. I'll play! I've been trying to figure out which subjects need a shake-up and which ones can just be the next level of what we've been doing. DS15 will be a junior next year, and the plan had been for him to dual-enroll at our local four-year university like his big brother did. We have all been so happy with how that turned out, but the virus has thrown us a curve-ball (more like a million curve-balls!). DS15 has type-1 diabetes, and we are all more comfortable with him being home right now. He will (hopefully) get the Pfizer vaccine right when he turns 16 (at the end of May, he already qualif
  5. So I don’t know if you were able to check your heart rate out, but I wanted to tell you what has worked for me over the past few months. Your situation might be totally different, but none of these solutions are drastic or expensive, so it can’t hurt to try. But I think that going to the doctor or cardiologist is a good idea either way. For me, one of the biggest game changers has been Sudafed, 4-6 hour (pseudoephedrine). I get the store brand from Target, but you need the real stuff that you can only get from behind the counter. Back in the late spring and summer, I had to take it twice
  6. This is a fantastic article. I had a shorter one that my sister sent me that I was going to link, but this one is much better. Thank you!
  7. Yes! My husband’s massages are sometimes the only thing that gets me through the day. I often feel like my muscles are literally all knotted up, especially in my neck, shoulders, and back. Anything he massages (or even lightly touches), feels better as long as he is doing it. I sometimes want to cry if he doesn’t have time to do it, because the difference is that stark. Also, yes, dietary changes and vitamins are part of what have helped me feel better.
  8. The best way I have found is to just sit on the bed with my legs curled up near me. Just don’t let them hang off the bed, because that seems to raise the heart rate somewhat. And just try to stay still and breathe regularly.
  9. I have a tentative diagnosis and am somewhat better after making a lot of lifestyle changes. I just want busymama to tell me what she thinks before I write another novel! 😊But I will share what has worked for me here in a bit.
  10. I’m so sorry to hear that you’re still feeling so poorly! This is just a shot in the dark, as your symptoms sound so close to mine, but maybe you have developed POTS (Postural Orthostatic Tachycardia Syndrome). Although it is more common in teens and women in their 20’s, it can definitely come on in the aftermath of a virus. I was quite ill starting in late February of this year with some yucky virus, and although there was no testing then, I suspect it may have been Covid based upon symptoms and how long I was sick. I had major cold symptoms through Easter, and then I finally got better.
  11. I’ll share! I love my church! We attend Lover’s Lane United Methodist Church in Dallas, Texas. It’s a very inclusive church, with a really good mix of Liberals and Conservatives, and a very loving place. Our mission statement is “Loving ALL People into Relationship with Jesus Christ”, and they really do mean ALL people! The United Methodist Church is basically going through a split over LGBTQ inclusivity, and I’m proud to say that my church has helped lead the way on the inclusive side! Our head pastor is an incredible leader, and his sermons are always inspiring. His current sermon serie
  12. I agree! I will definitely share your post with my husband. My oldest son said something similar at the breakfast table this morning. I was saying that their Dad was going to practice teaching in a mask to get used to it, and he said, “The kids should get used to seeing Dad in a mask too!”.
  13. The air purifier we decided on is this one: https://www.amazon.com/gp/aw/d/B01M6YMWNA/ref=sspa_mw_detail_0?ie=UTF8&psc=1&th=1 The reviews are great, and it says it filters down to 0.3 microns. The HEPA filter also has an antimicrobial layer that says it kills viruses, bacteria, and fungi, which is awesome, because there are lots of those recirculating through school air systems even on a non-pandemic year. The masks we got are a bit expensive, but we’ve been very happy with them. They are called Sonomasks, and they are made by a cool startup company in Israel called Sono
  14. My husband is also a high school teacher (in Texas). His district will start school online (for the first six weeks), and he plans to wear a mask any time he is in a campus building, even when alone in his classroom or office. His district has not announced yet whether they will have to teach from campus or home, but we are fully expecting it to be the former. He plans to teach from either his classroom or his office (he is also the tennis coach) wearing a mask. He will likely have to teach live online, and he said that he will primarily teach using a whiteboard app so that his masked face is
  • Create New...