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CuriousMomof3 last won the day on February 6

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  1. We watched Palm Sunday mass online, and then played around with different things to substitute for palm fronds in making the traditional crosses. I feel as though strips of construction paper might work the best, but we don't have any at this house. I'd love any other suggestions on what to try. Other than that there's been a lot of cooking. So far I've overseen making rice krispie treats and red beans and rice for 35 people, Now, I'm with a sleeping child, and his brothers are helping make brownies for 70, and peeling and cutting potatoes for 70.
  2. Could you ask the assisted living? I looked at an assisted living places a few years ago for my mom, and they had an entire room full of tables that sat four. It was used for bridge (lots of bridge in assisted living) and then for things like Easter brunch when they had overflow from the dining room. It may be that the place has unused tables that they'd be happy to lend.
  3. I have read a little bit about nutrition specifically for autoimmune, because there's a lot of overlap between autoimmune and autoinflammatory conditions, but the general idea I have gotten is that issues like celiac or FODMAP sensitivity involve the adaptive immune system, and don't apply to my kid, and that other than that we just don't know what applies. We ended up just trying to make his diet as varied as possible, with as many whole foods as possible, but not supplementing because there were too many unknowns. However, while it's tempting for me to make the leap to thinking that since the sickest patients with COVID are experiencing cytokine storms, we can extrapolate from what we know about kids with disorders that fall under the umbrella category of cytokine storms, it's a big leap. So, I wouldn't take any advice from me. My best guess, and what I'd probably do if we had a family member with an autoimmune disorder, is what we're doing for my other relatives with health conditions (kid with mild asthma, elderly family member with some heart issues), which is to do the things that we know are best for their preexisting conditions, on the assumption that if their body is in the best possible condition when they get the disease, they'll be in a better position to fight.
  4. I don't know why my posts keep appearing twice. Sorry! Also, I'll use this space to add that I don't really know much here, so don't take what I wrote about as advice, more as just me wondering aloud.
  5. Here's something that I wonder. The cytokine storms that they are seeing in the sickest patients are an overreaction by the innate immune system. I know with my kid, whose innate immune system is very problematic, we've been told to avoid things like elderberry which "boost" the immune system. We haven't received the same advice for things like turmeric, garlic, ginger etc . . . and when he was taking more food orally we continued to feed them to him in normal quantities, but I wouldn't use them at the level of a supplement. I'm not saying not to eat these things, but it does make me wonder if supplementing past the level normally seen in food might not be a good thing.
  6. That's a good idea. I think I'd need to find a quieter one, does anyone have one they like that I could order?
  7. We're doing OK with the cooking part. Like I said, we have HEPA filters, UV lights, open windows, and his room has doors, even if the rest of the first floor is pretty open. We usually cook when he's asleep in his room, which helps, and we've been grilling a lot, and avoiding things like super garlicky food. It's the smell at the table that is the problem. I'd love for him to be able to join us when we eat, and he wants to too.
  8. We have a couple HEPA air purifiers and UV lights in the ducts, and they do mean that even with a relatively open floor plan, the cooking smells don't spread much. Plus the weather's nice so the windows are all open.
  9. I should add that the onion, garlic, ginger thread is what made me think to ask here.
  10. Sweet stuff, in general, has been better. For example, today we're baking a lot of brownies, and he's tolerated that smell well. Meat has been hard, so we've been grilling a lot, just so the smell stays out of the house. Serving the food cold is a good idea.
  11. Monopoly is good. I used to do a math unit at school where everyone played Monopoly and we talked about place value and money in that context. Since I taught multiple periods of math, each kid had a white board made of a page protector with a piece of paper with a graphic organizer to keep track of their money, properties, where their pieces were etc . . . At the end of the period, they'd fill out the graphic organizer, and pack up the board and all the pieces. The next class would come in, get out their graphic organizers and resume play. I think that the process of setting up and taking down the board was probably as educational as playing the game. Anyway, when we've been separated as a family, we play Monopoly the same way, just filling out the graphic organizers as we go. We did use two boards, because we happened to have two, and just moved pieces on both sides, but we didn't bother with the paper money, or the properties we just wrote down what we had.
  12. Sitting down to eat as a family is important to us, but my DS10 has become increasingly bothered by food smells, to the point that we've been eating when he's asleep, which means two people are missing from the table. We have had some success with having him come to the table for dessert. Ice cream in particular, doesn't have a smell that bothers him. So, we'll eat dinner, then wake him up and all come back together for a bowl of ice cream. I'm wondering if we could put together some whole meals without foods that smell. Any ideas for foods to think about? I know I've posted before about DS10's food restrictions, but that's no longer an issue. No one else in the family has restrictions, and we don't have any particularly picky eaters.
  13. I don't think it hurts, but I doubt that an illness hitting China and Italy this hard is vulnerable to ginger or garlic.
  14. Ventilators are built with many possible settings built in. I didn’t listen to that and think we need different vents but that we need to program the existing vents differently. That programming is done at bedside. Auto inflammatory conditions may be the closest match to what they are seeing, and they are relatively rare. The specialists who understand them are rare too! It doesn’t surprise me that ICU doctors, particularly adult ones, haven’t seen many cases like this before.
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