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Jansley

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  1. Dear puddle jumper 1 Just seen this old post and wondered how your daughter is getting along now. We are at the same point as you were when you first posted this, just been diagnosed with biomechanical joint pain with Amplified Pain Syndrome and am in a state of worry and confusion after a good 18 months of severe flare ups and quiet periods of increasing joint pain. Numerous a and e visits and my daughter being crippled and unable to walk. We have had previous reactive arthritis diagnosises and her immune system does seem weak, low white blood count. Gluten intolerance has been an issue and they are investigations coeliac again, previous negative biopsy..... We are under a paediatric Rheumatologist and started phsio and just about to embark on amitriptline treatment as well as getting a referral to a pain management clinic. Just wondered how you were doing a couple of years along the line, really hope your daughter feeling well..
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