sbgrace
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Posts posted by sbgrace
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We have life insurance on both of us. Should something happen to me hubby believes he would have enough with a combination of the policy and social security to go part time at work. Between he and my family I think we could still homeschool and keep things pretty stable for our boys.
Disability is more likely here given my known condition and we never thought of that so we don't have disability insurance. And now I wouldn't be able to get a policy. Hindsight...
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I remember being very concerned about them "specializing" at that age. When they played a computer game, the same kid always manipulated the mouse, one directed the screen and the third shouted out the answers. I was so worried that they would never learn how to do the other two parts - silly to think of it now (they are 15,15 & 14).
My kids specialize too...right down to who builds the train track and who tells him what it should look like. Good to know it doesn't matter long term!
I wanted to mention. My kids can now take turns answering questions. It still works better to split them over-all for those particular subjects.
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My son runs low and it drives me nuts when we (occasionally) have to see a pediatrician and I try to explain he's really running a fever.
Is your thyroid ok? My sister ran low with low thyroid.
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For handwriting, math (we're doing rightstart A as well), and some language arts stuff I am finding it easier to split my twins. I do introductory stuff together when appropriate. But one on one is working well apart.
That said, I don't think I could have split them at 3.5. Actually, I know I couldn't. At five going on six they find taking turns with mommy a lot easier than they did at 3 or 4. You could try working the checks for understand in throughout the day (say pull four trains out and whisper your question to twin A).
We still do a lot of school together--bible, read alouds, science, history, etc.
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We're doing HOD and it's going wonderfully. I am using a different math (RightStart), HWT for handwriting and will be using my own phonics as well. But it's easy to sub out those boxes.
We've got Little Hearts and I'm using some of that along with the bible from Little Hands. We're doing two Little Hands units a week and will start Little Hearts fully in January. I just really loved the bible in Little Hands and didn't want to miss it. It's been a great decision here.
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About every three hours. Actually, very much like your experience. Typically it's (varies by a half hour either way often):
7:30
10:30
3:00
6:00
I'm actually glad to know my kid isn't the only one. I really think his brother could eat three meals a day but the other child seems to need frequent smaller meals or snacks. The frequent eater does have a fast metabolism and is skinny. He also eats smaller meals compared to his brother.
Yogurt is a good snack here that seems to sustain energy, especially with crackers or some other carb. Smoothies can be good too if they have a protein source. Protein is needed and so is fat. Fat keeps them feeling full longer--it slows digestion. Protein keeps blood sugar stable/sustains energy. Carbs give immediate energy. So balance is important for a snack to keep on sustaining.
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All of my pre-3rd grade school memories are negative ones. There aren't many but the few are cemented in my mind.
I don't think the really young kids retain a lot of specific memories but I still think their experiences shape them. For example, I believe most kids in school have formed visions of themselves as competent or incompetent learners by K to 1st grade that are hard to change. They form visions of themselves as persons too from adult response and interaction (parent and other significant people in their lives).
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Cats track litter on their feet as they come out of the box. All ours have--long hair/short hair, big/small, old/young--it doesn't seem to matter. I'd hate to have litter on my kitchen floor. Cats do carry parasites and bacteria in their feces. I'd locate it in a bathroom or living area instead.
My parents kept ours in the kitchen too. I think it probably wasn't the best idea.
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May I ask what this condition is? Was it discovered at birth? I am still trying to figure out ds and never know how far to take it. [intervention wise that is]
Sure, I'm happy to share. My son has a probable/clincally dxd. mitochondrial disorder. A study found signs of mitochondrial issues in 25% of autistic kids tested (though it was a small sample). It's clearly significant. He made a huge improvement in autism symptoms when we started him on the "mitochondrial protocol" simply because he felt better and so functioned better. For a little while I thought he was no longer on the spectrum. He is and always will be but he is so much more capable now. I think autistic kids have autistic brains--it's genetic. And part of those genetics include certain underlying conditions for certain kids.
I made a link about when to suspect underlying metabolic and/or mitochondrial issues in special needs kids on another board. I'll try to link it here. If it doesn't work feel free to send me a pm and I'll send the link. But I want to note that many, many metabolic and genetic conditions include autism symptoms as a component/co-occurance with the underlying issue. My son has one of many of them.
Oh, we discovered that he likely had a metabolic issue affected fat metabolism at 3.5. After lots of tests we found it was likely mitochondrial at age 4. He was diagnosed with PDD-NOS at 2.5. I just knew there was something going on with him and I really felt it was diet related as it seemed food affected him. As it turns out he can't metabolize fat but I never read about or suspected that! None of the typical autism diets did any good for him and, in fact, one in particular was a disaster for his health. I've met other parents with kids with my son's condition with similar stories. The commonly suggested autism interventions were unhelpful or even harmful for their children.
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You may already know this but check vitamin D levels (25 OH D specifically) and supplement to get them in the 50 range if they aren't there already. If they are in that range supplement about 500 to 1000 IU per 25 lbs. to maintain. The average adult needs almost 2500 IU to maintain good levels. Obviously a person needs far more if their levels are deficient.
Good vitamin D is not only flu protective but has long term ramifications for your baby's future health (as well as your own). So it's worth the trouble of finding levels for sure.
The vitamin D council website might be helpful to you.
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My kids haven't met one they didn't like. Jerry Muskrat is the favorite of one of my sons. I really wouldn't know which to pick for the other.
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Jean, if you continue to react I think a few days of oral steroids will stop your reaction in it's tracks.
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I think a lot of it comes from how she portrays autism in a negative light. There is a strong neuro-diversity community that wants that perception changed and those people seem to be the most vocal opponents to J. MCCarthy.
My issue isn't that. My issue is that it over-simplifies autism and brings a sense that if you do xyz your child will respond like hers. The cause isn't a few select things and you address those and get certain improvement. For many if not most it simply doesn't work that way.
And in the case of my son his underlying issue and improvement was from an area (a metabolic condition) that you don't hear much about and isn't mentioned in anything from her I've read. Yet it's very common in autism. So it frustrates me to see that people are led to believe that there is a particular set of solutions. What happens when those don't "work"?
Beyond that, I don't think there is an autism "cure" anyway. My son made dramatic improvement with treatment for his condition because he feels better. But underlying issues are still there--just not as obvious. Based on my reading of her story and about her son, I dare say her son is the same way. It's just that his underlying issues were different than my kid.
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I do benadryl with my son for immediate reactions. Zyrtec can help with continuing ones at least with skin reactions/hives which is his issue. If things continue on consider prednisone--we had to do that once with him. This is a one body system reaction, right? If not, you may need an epi pen.
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Did the doctor tell you that the test has a significant false positive rate? In my mind the low positives are suspects rather than certain allergies. I'd pull them (and northern and anything else unsure) first. Do safe foods. Let his skin get cleared up. Then add them in (northern beans and any others unsure without true positives) one at a time with time between them. Look for skin reactions. If you don't see it assume it's safe even if he was a low positive on the test. They aren't likely all allergens.
To answer your question I don't think there is known cross-reactivity between his allergies and white beans. And the allergy itself would be rare. You can google white bean allergy and find lots of cross reactivity information. Avoid anything on his list that is highly crossreactive to peanut or tree nut. I know walnut (my son is anaphylactic to that) is cross reactive with coconut. And a tree nut allergy to any tree nut is considered an allergy to all. I mention because otherwise coconut milk and flours might be suggested. I wouldn't use them in your case because of his nut allergies.
I would not feed him nor eat nuts or peanuts unless he has another negative test at some point for those because of the high anaphylaxis risk. Eggs are high allergens and that is likely (and he very well may outgrow that one if you avoid). I'd continue to avoid garbonzo and lentils as they are peanut cross reactive I think. The other common allergens on his list are the wheat and soy. So leave those out too for a while at least before you trial. Seeds are more allergenic than some other things.
Don't eat dairy if you're allergic if you can help it. He may respond to your allergic reaction. There are rice and potato milks. Just looking at your list and knowing you're vegetarian I see you've got a major protein problem so I can see why you're tempted to do dairy and need the beans. Trial in the Northern when his skin is cleared. I suspect you'll be ok with them. If you can you might rotate the safe foods so you're not eating anything more than every three days. That may prevent a new allergy and keep you from getting tired of the same thing all the time too. Quinoa is a high protein grain you might look into. It's corn cross-reactive I think but I don't know of other cross-reactions to it and corn isn't on your list. Corn is an absolute nightmare allergy so don't eat that day after day. You don't want him sensitizing to it. Add fat to your diet directly (say oil on salads and such) because that will help you get calories and feel full. Fats themselves are low allergens (not nut oils of course) s the protein is removed. Even my coconut allergic child does ok with coconut oil.
Consider (allergen free) probiotics for him and yourself too if you can. There is evidence of connections between intestine issues and food allergies.
:grouphug: I know this is hard.
There is a website (pay unfortunately but a low yearly rate and I do it) called kidswithfoodallergies It might be helpful both in answering your questions and also in getting ideas for foods. They have a recipe database and lots of people dealing with multiple food allergies. It's good not to feel so alone in this.
Oh, did the doctor suggest an epi pen for him? I'd want that becuase of the peanut and tree nut allergies. My son had anaphylaxis on his first known walnut exposure. There is so much cross reaction that even if you carefully avoid (and especially as he's eating his own food) there is a risk.
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I saw a pubmed (medical journal) study of Hawaiians with significant (average 30 hours a week) sun exposure. This included people of a variety of skin tones and nationalities. More than half in the study were vitamin D deficient. That means they were below that insane 20ish mark that is way low. In reality many more were likely in the 30's range which is also deficient.
Clearly there is more to vitamin D than just sun exposure for many people. In reality, skin wise, those with pale skin who don't tan probably make more vitamin D than those who easily tan given equal time in the sun.
My mom who spends tons of time gardening and actual has had several (non melanoma) sun cancers was extremely (and surprisingly) low. So I think it's good for everyone to find out their levels. I suspect a lot of people need supplements instead of relying only on sun. You wouldn't know unless you test.
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Congratulations!!!
Thanks. Also, I was low on progesterone with my 2nd and that was almost 7 years ago. Is it okay to use my natural progesterone cream until I get to the ob/gyn or midwife?It probably depends on how low your progesterone is (if it is even low this pregnancy). Usually progesterone causes issues very early in pregancy. It did for me. However, if you discovered it during pregnancy last time you aren't dealing with what I was. In my case pregnancy progesterone issues weren't corrected with natural creams. I'd give the call now. Surely the midwife would call something in for you?
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I do think this is learning style.
I've got to see something to remember it. It never held me back in college lecture courses though. I took good notes. So if it just doesn't come naturally to a child there are ways around the issue.
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Hits close to home here too with my son. I'm praying for Olivia and her family.
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Her lack of rest may be a huge part of the issue in terms of her immune system. I'd consider trying melatonin with her (smallest effective dose...start with .5 a mg even if you need to cut a pill or divide a capsule). She needs rest. If that doesn't work I'd look into other solutions. Is the insomnia new?
The best immune system boosting supplement in my mind is vitamin D. Do you know her vitamin D levels? The test is 25 (OH) D. Give her at least 2000 IU of D3 per day. She may need more particularly if she's deficient.
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All kinds of things eliminate you from target group samples. In this case I'd think they are looking for people who are sending snacks to school...so you wouldn't fit that target group. I think it's that simple (and legitimate).
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You take a probiotic 3 hours after each dose of antibiotic. It's nearly impossible to repopulate the intestines with good bacteria when you have an overgrowth of bad going (or of yeast) and so the probiotics between doses prevent the bad from taking over until you are done with the probiotic and can repopulate.
I like Culturelle with antibiotics. It's widely available and good with the really bad bugs that heavy duty antibiotics can bring. One capsule three hours after each dose. Then do one or two (split doses) a day for two weeks after the antibiotic is over. Then you can rely on your regular probiotic or yogurt to take over and repopulate.
I've never had an issue when I've done this with antibiotics. But skipping probiotics even three days into the antibiotic has made for a losing battle here. Take them from the outset and keep going after each dose.
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Fatigue, nerve, muscle then. That was me too. Hugs to you.
Things we considered (and many found) in me:
Lyme (are you in a lyme area?)
MS (are your eyes ok...did she look at your eyes?) I suspect they will do an MRI.
Vitamin D levels (get this done; you want 25 OH D)
Carnitine and coq10 levels. These are not normally run because doctors (and even too many neuros) aren't aware but there are several relatively common adult onset metabolic conditions that cause what you're describing that can cause low levels of either of those. Get these levels if you can. I had very low coq10 and two other adults I've talked to that had similar symptoms to you had the same finding. Nerves, muscles, and energy are often affected.
B12, B6, Magnesium though I don't suspect any of those would cause all of what you're describing. You would want thyroid and CBC too and it sounds like she did that.
Parathyroid disease can do lots of damage..that would cause an elevated calcium level (10 or above). But it's rarer than the others and I've not heard of the nerve stuff in connection to it.
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I'm glad you're seeing a neurologist because you're describing nerve related issues. And it sounds like muscle involvement too given the pain. Something similar happened to me and it took a while to sort out as there are lots of things that affect nerves. Any fatigue? Can you find out what they tested and what the results were. Did they check vitamin D (25 OH D)? B12? Any metabolic labs? I might be able to suggest further tests (in addition to lyme which should be done if you're in a lyme possible area).
Care to help me with a survey for Health class?
in General Education Discussion Board
Posted
1. What is your greatest source of stress? Fears over my son's health.
2. What approach do you use to manage your stress? Pray, research, remind myself it is the daily moments and eternal that ultimately matter.