Made a large part of dinner, Talked w dd2 who discussed her coming surgery that I will also probably have - -- carpal tunnel - and she said surgeon told her it is a ten minute surgery on local anesthetics and almost immediate use of hand. She also warned us we don't want to go on a certain cruise line we have been on twice before and liked.

Good morning! Celebrating Reggae Month! Which reminds me I need to get dh to download our gigantic music library to ,my 1T Sim card I got in 2022 on my phone. Done Weighed myself Shower Stripped bed - unfortunately To do cal pharmacies re generics of clonidine and potassium chloride ( i need yellow or some color other than white for clonidine and purple capsules for the potassium) Make lots of medical calls- doctors, health advocates, insurance, Figure out driver's license Start calling carers Figure out gynecologist appointment time Figure out retinal specialist appointment time Set up online counseling Skim text of awful Senate bill Laundry More later maybe

Good evening! Really tired now. Got up at 6am, but it took a long time to get going. Done Made and orange Yogurt slushy which will last me a few days Folded my clothes that were in the laundry watched church Prepared lunch and ate it Had a lot of digestive issues again Went with dh to dd1's home and she took me to Publix Both of us were too tired to go to Fresh Market today Put away groceries Ate pizza dinner w dd1, dsil2, and dh Dealt w transfer of money to my credit Union account Made back pay,ent to Tunell to Towers and restarted automatic payments. Also called them because website is having bad problems- thinking US people are in Phillapines and want to pay in Philippine money. as my dh said, with WW3, lots of cyber attacks are happening Talked w dd2. She is very happy that my rheumatologist will almost certainly take her as a patient. She is caling tomorrow to see what tests she needs her primary to order and send. She also has carpal tunel problems like me and just like me, neve conduction study showed no problem but steroid shot provided total relief for a while- which is the same thing that happened w me. To do put away washed clothes Put dishwasher on Read Maybe watch YouTube talk by Jordan Peterson Maybe watch something w dh

Fortunately, nothing like that. Just likr what I thought s bad LSD trip would be like. I knew i was hallucinating- so didn’t actvon it. And my kidney function was fine because w the meds I take, I have to be checked every 3 months or even sooner.

We originally wanted 4. We hadcdiscussed that afte number 1 child. My kids were spaced 4.5 and 3.3 years apart. We were trying almost a year for #2, but#3 happened whenI discussed w doctor about how much better I felt when pregnant - my autoimmune mostly go away. Got pregnant that month. But because I had high need kids, and my RA, AS,lupus, etc got worse and an awful pulmonologist gave me an incorrect death disease diagnosis which I kept from my family, plus my age (33 at last birth), no child #4. My dh was traveling somewhere that my youngest was so happy when we were stationed in Europe and 3 years we were actually living as a family al the time. My parents both died in their ear) sixties and I didn't want either of us to die before the kids were out of college. So far, so good. All married, 1 bio grandson, 2 step gds, and a gs from child 2 com8ng in March or April. And my diseases have gotten worse but I am still alive and sentient.

I didn't get to call pharmacies. Laundry sorting and prep took a while. Then even longer w stain rwmover until I realized I was in a lot of pain sitting on my couch. Althouhh it was a bright sunny day, lo5s of rain is coming tomorrow and litscof joints hurt. Changed air filters which were so very dusry due to kichen remodel but opened the wrong sized one for the ibe that needs changing the lleast office. So I had to do Instacart order along w m8re yogurt, that dh used and I had bought to make virgin pina colada. Made most of dinner soup Attemded a very interesting lecture about CAR 2 therapy online and thrn did quiz they use on the test subjects caysecyou have to be severe anc anyond w above a 10 is severe. I got 54. I guess I am doing very poorly. Then ate tasty soup and got ready to go to the planetarium show Dh is doing on Sirius.

Bupolar 2 is autoimmune also

Good afternoon! Dh woke up super grumpy- tha we weren't going to breakfast as he said last night and we can't do anything fun. I Left him alone to do hit's morning shower, dressing, etc. and greated him cheerfully. He always gets very irritable when he is very anxious and he is a perfectionist like the rest of us and has a new planetarium show about Serius. I gave him a series of choices of what we could do, and he agreed to breakfast and also trying a new place nearby us that has indoor putt-putt, Done Morning meds Having a nice discussion about A Canticle for Lebowitz, the Maslow triangle and it's meme (I don't agree w the triangle because it puts morality at the top, which led to Yuel Harari, How much I disagree with him including his latest talk at the WEF. That led to DH discussing all the people in hiis Sunday school class who agree w what any so- called expert or speaker says , even if completely contradictory. Next a difficult putt-putt game only 6 holes but it was in the dark, and hole 6 was basically impossible To do d do one load laundry Keep up w meds Make chicken hearty soup for dinner Call local al pharmacies CARE for pain Go to astronomy show

We went out to lunch after the post office. So that was our main meal. Wonderful grilled cheese w pulled pork. Spent almost all day calling medical and insurance and pharmacy. Did manage to get a lab test at 18:40, last appt of the day.. The door was locked into the building and I had to call the emergency and they sent security almost immediately to let me in.Just as I sat down in waiting room and openedd my book, I was called in. The fastest seevice I ever had- I have to go weekly unless anc until I get strips or a home medical nurse to come in each week to get blood, help w vmedications,etc. Been home for acwhile, having mushroom truffle glar bread heating in oven. And listening to funkadwlic music.

I understand. You had heart and lung issues which made up a lot of that crippling fatigue. I have never had heart problems but have had pneumonia that made me very tired. I was referring to diseases LIKE RA, LUPUS,and many otherc autoimmune diseases.

No, there have beem cases here in US where they wait acfew days and are dying w strep. Just last week there was a report of a man who waited a weekend and died. Jim Henson died of strep too. But he should go first thing in morning since I know it is already night there. I am praying for him.

Prednisone increases hair growth too.

,Since it is for an autoimmune condition,LDo Not Go From 40 to zero unless you want to get right back to the same condition or worse. Tapering needs to be done. I feel great at 40 mg. My youngest has real problrms w doses like that. Like angey, depressed, etc. It really depends on the person. And if you have some disease w fatigue as psrt of the problem, ylu probably will be amazed how much better you feel even if you are moody. As to diet, one of my diseases is lupus. There are various things that supposedly can cause a flare- garlic being one. It doesn’t affect me. However no person w autoimmune diseases should be eating elderberry or carreganen. Elderberry boosts your immune system and carreganen definitely is a no no. It reqlly ups inflammation in all of us autoimmune patients.

Good morning! We had a cold night But it is gonna warm up to sixty five today. Done Shower Enbrel shot Weighed myself Chose clothes for today. To do Call remote Inr place and set up Inr strips delivery Go get passport photos Maybe get my driver's license renewal Attend online session about promising new therapy for Lupus w/ specialist from John Hopkins See if I can get a video appointment with my rheumatologist. I missed the appointment in engineering because of the bad weather. More later

I get that. It just a) as we get older, cycles become less predictable and wonder. Sciece and most doctors used to think peri- menopause was only a few years before menopause. Now they are realizing some symptoms start like 15 years before. And thinking back, I know some of mine like increased migraines , wonkier timimg of monthlies and mood issues were certainly appeared at least ten years or more years before menopause. And b, I have a friend who was nurse who thought She wouldn't get pregnant while she was breastfeeding especially in the first few months. She ended up with two children born in the same year,

Couldn't your husband wear a c*nd*m if it turns out you aren't? That was all we used after BC pills caused me to be misdiagnosed w ms and suffer from hemispheric migraines for 2.5 years after I stopped. So we used those only form of bc for 34 years until dh had to get vasectomy since I was going on methotrexate. No failures and 3 great kids

I trief Ambien once, like one day. Never again. I was hallucinating and it didn't even help my more unusual insomnia- waking in the middle of the night.

I never did that w 2 poodle muxes nor one purebread one. All of mine were white. Dh tried one time to do a trim with the first one and it was just too difficult. Poodles are probably one of the hardest to get right.

Why do you suspect Golden v Black Lab? I am just curious as a person who owned a black lab and fostered a golden? They are both retrievers, both are usually intelligent- but our.l Labbie was stupid, though. He didn’t rattkesnakes ( like my dh had to save him) or hares and the only thing he was good for was telling me whi was in the yard.

done Breakfast and lunch meds done Undid dishwasher Dried yesterday's 2nd laundry load Didn't argue w dh Texted doctor re what hemotologist said and wrong diagnosis. Not all the wrong ones which I will correct later. Made salad, side, and dealt w lemon for dinner Drying disaster load to do Eat dinner Make bed Take bedtime meds

I had a really bad morning because 9f really bad stomach issues yesterday. And dh ordered wrong kind of underwear too so disaster happened even w 2 super pads in that underwear and even though I had drink at my bedside table and he could have given me one or 1/2 of 1 4 mg Medrol. He blsmes me, of course, even though I was asleep I didn't get up until about 12 noon. He says I don’t love him because of I do things likr this abd spill things,and all the other stuff I can't do right. TO DO Keep relaundering the two barriers and blanket by spraying pet oder eliminator on them then laundry detergent w fabric softener. Call coymadin machine people Make my portions of dinner Keep track of meds and phone alarms, etc to make sure no more disasters. This disaster was also because w multiple bouts of d, I had to take loperemide which makes me sleepy so didn’t set phone correctly plus my electrolytes may have been off too. Listen to upbeat music while doing drwad laundry.

I am sorry you are having such a tough week.

I completely got one load of lsundry. I also went to Trader Joes and Publix. Had a nice chat w dd1 on phone. Unfortunately, I have been suffering from diarrhea since this afternoon and apparently do has dh. He thinks it is the pork chops he made last night. I thought it was my resumption of one particular medication. I have taken loperemine a while ago and hope I can sleep soon.

I have bewn taking trazadone fo insomnia for about 10 years. And atctge dosw I take, 50mg, you don't have withdrawal dodek effects.

Had lunch. Going back to work on pre laundry work.