Some of you may remember me...and not long ago I posted an update about my daughter but soon after things just went sideways (in a good way!!) and I wanted to come share here because so many of you were very helpful to us! This will get long - Hang in there and you will see why you all need to know this!
Background: My daughters list of diagnosis are as follows (and in order): Chronic constipation, anxiety, insomnia, ADHD, Dysphagia (swallowing) SPD, OCD tendencies, Dyspraxia, Visual Processing Disorder, Central Auditory Processing Disorder, Gifted, Vertigo, Low B12 and low Iron. And a host of cognitive issues like processing speed, memory etc.
As a young child she had some sensory issues and anxiety, but aside from that she was very typical and always in the top of the class. She was always a picky eater but all of a sudden at 10 she was no longer able to swallow food. That was when the nightmare started and after that we just kept getting diagnosis after diagnosis layered on. I have always considered her as SPD and most of these issues were just symptoms of that diagnosis. Her Auditory Processing Disorder was really bad. She only had 40% processing in one ear and 65% in the other. She wore an FM system and without it could literally hear nothing. She was also VERY sensitive to light and sound. Always clamping her hands over her ears and grimacing in pain. Her sensory issues had the greatest impact on our lives.
Her chronic fatigue has been debilitating. She has barely been able to attend school this year. Her brain fog is so bad that for most of the year she had no idea what day of the week it was and a simple sentence like “Do you want chicken for dinner?” was too complex. By January 2017 she was basically a zombie. She just slipped away and we were basically a family of 3 with a girl who never spoke to anyone and just sat in her therapy swing for hours upon hours zoned out.
I mentioned on here in my last update that 3 months ago I put my daughter on a GF/DF diet (and some supplements – Probiotic, Inulin, Omega 3 and Magnesium citrate) and the difference was literally unbelievable! Within no time her issues just melted away and she no longer had severe sensory issues or chronic fatigue. It was like she just woke up. She was a new person. When I put her on the diet I was hoping to resolve some digestive issues and maybe alleviate some fatigue etc. So I was SHOCKED when the most noticeable improvement was that she could hear EVERYTHING! Her hearing was restored 100%.
Then boom one day a few weeks in I noticed some sensory stuff happening again. The next day things were worse and it snowballed. We lost EVERY success. Without warning or explanation.
I was GUTTED. And confused. I knew that we had begun to allow her to "cheat" a bit with dairy so I got strict again and took it all away. Sat and waited for the improvements to come back but nothing. In fact as the days passed she got worse. Naturally I assumed that she must also be intolerant of other foods and I needed to figure out what they were.
Out of desperation I went to a Naturopath who suggested a Paleo diet and explained that a Paleo diet contained no inflammatory foods and that once we got her sorted we could consider adding things back in and see how she reacted. She also asked about what the supplements were that we were giving her and made some minor adjustments. Off we went full of hope and expecting things to improve.
And there was a VERY slight improvement over the next few days. But slight. Her energy did seem to improve but it was NOTHING like the almost 100% recovery we had already seen. But we figured she just needed time to heal so we waited it out. And we waited. And waited. Then it went from bad to worse. Within 2-3 weeks she was back to being bedridden, sensory issues through the roof. Severe stomach pains etc. THEN she got vertigo again! It was super awful. She was basically non functioning again.
We went to the Dr. for the vertigo (my suspicion was that she had an inner ear infection based on some things that I noticed) the Dr. looked in and confirmed that she did. Said she had fluid in one ear but that it was not bad enough to warrant antibiotics. Instead she prescribed a steroid nose spray. She said the steroid would reduce the inflammation (this is VERY IMPORTANT for later in the story!) and allow her ear canals to shrink back and let the fluid drain out of her ear.
Off we went.
So now I start researching. I begin to wonder if maybe it isn't something she is EATING - but rather something that I am GIVING her?? And I know that her body (her ear anyway) is inflamed but that she is on a diet free of anything that causes inflammation?? I also know that everyday she is getting worse, that her stomach is in agony. I start to think that it is stomach related - and constipation was the first issue that she ever had. I uncover something called SIBO (small intestine bacteria overgrowth). I read up and it makes sense with what I am seeing. As a result of reading up on this I stumble upon some info about a Dr. in Arizona named Dr. Nemechek.
He is currently garnering a LOT of attention over a blog post he wrote claiming he can reverse Autism. In fact he can reverse MOST childhood issues. He was given a grant to research HIV/AIDS and that research led him to realize that Autism is the result of SIBO. Bear with me while I explain in a VERY oversimplified manner:
He says that SIBO is when the bacteria in the COLON migrates up and starts to spread throughout the small intestine. This bacteria is not BAD (it does a great job in the colon) but I am going to refer to it as BAD moving forward. The bad bacteria overgrows in the sm intestine and in fact takes over reducing the number of good bacteria that are meant to live there. This bad bacteria releases something called propionic acid and excessive levels of this acid are harmful and in fact has a bit of a sedating effect on the brain. It interferes with the brain functioning properly and can result in developmental delays. Studies have shown that the tissue samples of Autistic kids contain high levels of this acid. Second this bacteria is responsible for increasing the level of inflammation in the body. And the WORST thing you can do for it is feed it probiotics. Well guess what?? On of the supplements I put my daughter on was a very high quality probiotic!! Right before she lost all her symptoms!
OK - following?
The CRAZIEST thing about all of this (and again why its getting so much attention) is that his protocol to reverse Autism is DEAD easy. You need to use daily Inulin (a prebiotic) - this kills off the bad bacteria (actually it doesn't directly but I am trying to keep it simple) and restores the natural gut flora. Once the bad bacteria dies off the propionic levels drop and the brain "awakens" this awakening allows the brain to return to typical functioning and catch up developmentally. You also use Omega 3 Fish oil to reduce the inflammation in the body/brain.
How does this relate to you?? (all of you??) because according to Dr. Nemechek this condition (SIBO) is behind almost all childhood disorders. ADHD, SPD, OCD, Anxiety, depression, etc. It is ALL resolvable via this protocol.
As I read through the literature I realized that in fact when I "cured" my daughter I was in fact following his protocol and just did not know!!! The naturopath told me to drop the inulin when we met! Then I was a dumbass and added in the probiotic and caused the entire situation to spiral into chaos.
I am telling you all this works!! And it works for an unbelievable number of issues! the belief is that 75% of the population have SIBO but that many might not have symptoms. But many "common issues" gluten/food intolerances, carpal tunnel, depression, tics, stuttering, dyslexia, aggression etc can all be resolved by this simple all natural protocol! He has recovered many kids (severe cases) and there are many people claiming it worked for them also! He makes no money off of this info and he will respond to every question people ask!
So now we are following the protocol to a T and finally starting to see the same results again! It is cheap, has no prescription or bad side effects and works!