BlsdMama Posted March 14, 2017 Share Posted March 14, 2017 (edited) How do I count the ways?Oh, yeah, the neurology appointment with new neuro doc. Turns out I am in absolutely perfect health except for my right side. Apparently I have a beautiful brain, a lovely spine, and I'm in great shape. All of which was horrible news unfortunately. Very brisk reflexes on the right side, Babinski positive, clonus present, muscle in right calf diminished. (Atrophied.)All in all, a new EMG is scheduled for next Monday morning and ALS is now on the short list of possibilities and pretty much now the most likely. Sigh.I am going to be brutally honest, this sucks. My fortieth birthday was in January. My baby is two. Two! My first grand baby will be here in April. And somehow we are going to have to sort through what comes next. Our homeschool program (very, very large) has lost two moms in two years. I would have preferred not to be next.On the upside, because, it turns out I am shockingly skilled at dark sarcasm, I could get a really cool joystick to drive my van for a while.Feeling pretty horrible for my poor husband right now. He really had refused to entertain the thought of ALS. Edited March 23, 2017 by BlsdMama Quote Link to comment Share on other sites More sharing options...
El... Posted March 14, 2017 Share Posted March 14, 2017 Holy cow. I'm sorry! I hope that is not the case! Quote Link to comment Share on other sites More sharing options...
Catwoman Posted March 14, 2017 Share Posted March 14, 2017 Praying that they are wrong and that it's not ALS. Are you seeing the best possible specialists? 8 Quote Link to comment Share on other sites More sharing options...
Spryte Posted March 14, 2017 Share Posted March 14, 2017 Sending hugs. Lots of them. Quote Link to comment Share on other sites More sharing options...
AnnE-girl Posted March 14, 2017 Share Posted March 14, 2017 I'm so sorry. Praying for you and your family. 1 Quote Link to comment Share on other sites More sharing options...
BlsdMama Posted March 14, 2017 Author Share Posted March 14, 2017 Praying that they are wrong and that it's not ALS. Are you seeing the best possible specialists? Yes, for Iowa. We switched from the local neuro to the University. Once we have a diagnosis, Mayo is close enough for the second opinion. 16 Quote Link to comment Share on other sites More sharing options...
mumto2 Posted March 14, 2017 Share Posted March 14, 2017 Praying :grouphug: 2 Quote Link to comment Share on other sites More sharing options...
Angie in VA Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
maize Posted March 14, 2017 Share Posted March 14, 2017 (((Kelly))) Quote Link to comment Share on other sites More sharing options...
Guest Posted March 14, 2017 Share Posted March 14, 2017 I am so sorry. Praying for you and your family and that it's something else on the short list and not ALS. :grouphug: Quote Link to comment Share on other sites More sharing options...
eternalsummer Posted March 14, 2017 Share Posted March 14, 2017 I'm so sorry :( Quote Link to comment Share on other sites More sharing options...
jjeepa Posted March 14, 2017 Share Posted March 14, 2017 I'm so sorry :grouphug: Praying it is not ALS! Praying for you and your husband and family as well. 1 Quote Link to comment Share on other sites More sharing options...
Selkie Posted March 14, 2017 Share Posted March 14, 2017 Many, many hugs for you and your family. I hope it is not ALS. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted March 14, 2017 Share Posted March 14, 2017 That sucks. I'm so sorry you got bad news. I second a second opinion. And I'm praying for you like crazy :( Quote Link to comment Share on other sites More sharing options...
Catwoman Posted March 14, 2017 Share Posted March 14, 2017 Yes, for Iowa. We switched from the local neuro to the University. Once we have a diagnosis, Mayo is close enough for the second opinion. I'll pray for you, Kelly. :grouphug: 1 Quote Link to comment Share on other sites More sharing options...
Storygirl Posted March 14, 2017 Share Posted March 14, 2017 Praying for you and hoping the short list turns out to be wrong. :grouphug: 2 Quote Link to comment Share on other sites More sharing options...
creekland Posted March 14, 2017 Share Posted March 14, 2017 Sending prayers and :grouphug: . Are there other options? Quote Link to comment Share on other sites More sharing options...
Twigs Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Heatherwith4 Posted March 14, 2017 Share Posted March 14, 2017 I'm praying that it's not ALS. :grouphug: 1 Quote Link to comment Share on other sites More sharing options...
jewellsmommy Posted March 14, 2017 Share Posted March 14, 2017 Prayers said! :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted March 14, 2017 Share Posted March 14, 2017 Hugs and prayers. Quote Link to comment Share on other sites More sharing options...
Junie Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
PeterPan Posted March 14, 2017 Share Posted March 14, 2017 That does suck, wow. Can you get hooked up with a counselor? It's time. If the answer is no ALS, then you just dump them when you're done. And get somebody good, not somebody inexperienced or local. Maybe the hospital or the doctor can refer you. Just go ahead and do it. Go with your dh BEFORE you think you need it. Sounds like you'd already benefit from it. 8 Quote Link to comment Share on other sites More sharing options...
Scarlett Posted March 14, 2017 Share Posted March 14, 2017 I am so sorry, This is very upsetting. I pray they are wrong but a friend of mine had it and there is so much help available. I don't want to be a bummer but I really am sorry. 1 Quote Link to comment Share on other sites More sharing options...
school17777 Posted March 14, 2017 Share Posted March 14, 2017 (((Hugs))) Quote Link to comment Share on other sites More sharing options...
Scarlett Posted March 14, 2017 Share Posted March 14, 2017 We are in a OK. My friend went to KC for a definitive test. Where can you go for a definitive test? Quote Link to comment Share on other sites More sharing options...
zoobie Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
goldberry Posted March 14, 2017 Share Posted March 14, 2017 Hugs and prayers... Quote Link to comment Share on other sites More sharing options...
zoobie Posted March 14, 2017 Share Posted March 14, 2017 (edited) Double post, so more :grouphug: Edited March 14, 2017 by zoobie Quote Link to comment Share on other sites More sharing options...
Guest Posted March 14, 2017 Share Posted March 14, 2017 Prayers ascending. (((K))) Quote Link to comment Share on other sites More sharing options...
lauraw4321 Posted March 14, 2017 Share Posted March 14, 2017 I'm so sorry. Quote Link to comment Share on other sites More sharing options...
Annie G Posted March 14, 2017 Share Posted March 14, 2017 I'm so sorry. I hope it's not ALS and that you have that answer soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
Garga Posted March 14, 2017 Share Posted March 14, 2017 Oh, that's frightening. Let it not be ALS. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted March 14, 2017 Share Posted March 14, 2017 I am sending every good thought your way. Quote Link to comment Share on other sites More sharing options...
Anne Posted March 14, 2017 Share Posted March 14, 2017 (((Hugs))) Anne Quote Link to comment Share on other sites More sharing options...
edelweiss Posted March 14, 2017 Share Posted March 14, 2017 Many, many prayers for you. Quote Link to comment Share on other sites More sharing options...
Barb_ Posted March 14, 2017 Share Posted March 14, 2017 Oh Honey, that's not what I was expecting to hear. I'm sick for you. 1 Quote Link to comment Share on other sites More sharing options...
Mabelen Posted March 14, 2017 Share Posted March 14, 2017 I am praying for you and your beautiful family. Quote Link to comment Share on other sites More sharing options...
MercyA Posted March 14, 2017 Share Posted March 14, 2017 Praying that it is not ALS. Huge :grouphug: :grouphug: :grouphug: . Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
happi duck Posted March 14, 2017 Share Posted March 14, 2017 (hugs) Quote Link to comment Share on other sites More sharing options...
Starr Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
RioSamba Posted March 14, 2017 Share Posted March 14, 2017 (((Kelly))) I just prayed for you, your DH, and your family. Quote Link to comment Share on other sites More sharing options...
Sugarfoot Posted March 14, 2017 Share Posted March 14, 2017 I'm praying for you. :grouphug: Quote Link to comment Share on other sites More sharing options...
hopskipjump Posted March 14, 2017 Share Posted March 14, 2017 (edited) Oh dear. Prayers that it's something else - almost anything else - on that short list and prayers for your family as you muddle through this. :/ Edited March 14, 2017 by hopskipjump Quote Link to comment Share on other sites More sharing options...
Mama Geek Posted March 14, 2017 Share Posted March 14, 2017 :grouphug: and prayers for you and your family. Quote Link to comment Share on other sites More sharing options...
lovinmyboys Posted March 14, 2017 Share Posted March 14, 2017 Praying for you. Quote Link to comment Share on other sites More sharing options...
Just Kate Posted March 14, 2017 Share Posted March 14, 2017 Praying for you now! (((hugs))) Quote Link to comment Share on other sites More sharing options...
mom@shiloh Posted March 14, 2017 Share Posted March 14, 2017 So sorry to hear this. We'll pray. Quote Link to comment Share on other sites More sharing options...
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