We just found out that my 3yrs old son and 14yrs old daughter has seizures. My husband of 8yrs just enlightened me that his sister has seizures and shes 48 yrs a mess with seizures. We don;t have any connection with his family so I was in the dark about all that.
Anyways my 14yrs old is diagnosed with Juvenile Myoclonic Epilepsy and she also had an MRI showing left mesial temporal lobe volume reduction and left mesial temporal lope sclerosis. She has had two falling bouts and as of the last couple of months extreme forgetfulness ie memory problems and not always understanding what she is saying.
Unable to focus. Takes a long time to get anything done: school work and chores
Wandered around the house a lot. Stepped in front of a car. She says she has deja vu events several times a week. Feels tingling and numbness on her face, stomachache sometimes. I just see her staring out into space or at the computer screen with no work being done. I knew something was wrong when I knew she was my most conscientious child and she was just messing up and I was getting frustrated and had to take a step back and really thing is this her or not and that puberty can't be impacting her this badly. I got more ammo to have her tested after getting my younger son;s seizure risk test positive and family history infor from my husband who forgot to tell me the last 8yrs. Maybe he has seizures.
She is now on Keppra and decided to medicate as she is close to driving age and is more independent now and needs to focus well on school work preparing for high school work next year. She takes the Keppra with B6 too to deal with Keppra Rage
My three yrs old has complex partial seizures.
He was prescribed Keppra but decided not start as we don't see anything that would disrupt much.
He is under our constant watchful eye.
He has been prescribed diastat emergency rectal meds.
Now we are in the process of testing all the kids. Her twin has 80-90% chance of having the same as well as her 12yrs old sister I think has 75% chance. I have seen symptoms in her 12 yrs old sister who has overall spaciness and just seem not of this world. Lots of staring into nothing land. Not a whole lot with her twin but increased spaciness compared to before puberty started.
Anyone else homeschool kids with seizures and how do you deal with their memory issues?