prairiewindmomma Posted May 18, 2015 Share Posted May 18, 2015 1. developmental coordination disorder....... If ds had a previous MRI to confirm a cranial nerve palsy/rule out BT, would cerebral palsy have shown up then? I know DCD is a diagnosis of exclusion..... 2. I know there is some rule of thumb about stanines....when scores are all over the board, some things become an issue....should I be looking at those wide gaps? 3. Has anyone not had a valid working memory score? I have the actual results from the tests, and I had a lengthy discussion with neuropsych, but some actual scores he believes to be invalid for certain reasons. 4. I don't know that we are in a different place of knowledge and understanding than we were pre-testing, but independent corroboration of the stuff I'm dealing with at home is a good thing, right? I don't have the final written report yet, and I'm trying to let it all sink in, but even the (well-respected, at this for 30 years, guru) neuropsych admits ds is a puzzler after 5 testing sessions. We have some working theories we are going to run with for a bit and see what happens, but I called it when I said we'd be adding a lot of various therapy appointments to the mix. I wish things were clearer. Quote Link to comment Share on other sites More sharing options...
Ottakee Posted May 27, 2015 Share Posted May 27, 2015 1. developmental coordination disorder....... If ds had a previous MRI to confirm a cranial nerve palsy/rule out BT, would cerebral palsy have shown up then? I know DCD is a diagnosis of exclusion..... 2. I know there is some rule of thumb about stanines....when scores are all over the board, some things become an issue....should I be looking at those wide gaps? 3. Has anyone not had a valid working memory score? I have the actual results from the tests, and I had a lengthy discussion with neuropsych, but some actual scores he believes to be invalid for certain reasons. 4. I don't know that we are in a different place of knowledge and understanding than we were pre-testing, but independent corroboration of the stuff I'm dealing with at home is a good thing, right? I don't have the final written report yet, and I'm trying to let it all sink in, but even the (well-respected, at this for 30 years, guru) neuropsych admits ds is a puzzler after 5 testing sessions. We have some working theories we are going to run with for a bit and see what happens, but I called it when I said we'd be adding a lot of various therapy appointments to the mix. I wish things were clearer. I am not an expert, but I think that often Cerebral Palsy is more of a working diagnosis based on symptoms. I know that all 3 of my kids carry that diagnosis and it does fit, but only 1 has an abnormal MRI of the brain. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted May 27, 2015 Author Share Posted May 27, 2015 Thanks, that's helpful. Quote Link to comment Share on other sites More sharing options...
Jennifer132 Posted May 31, 2015 Share Posted May 31, 2015 Forgive me if I am missing some background information on your kiddo. Your post reads like you've talked about this before, but I don't frequent the SN board much anymore and can't recall your details. CP can be diagnosed based on symptoms alone. My dd has a dx of mild cp, and her MRI was clean. MRI technology can only do so much at this point and time. Prior to the cp diagnosis, she was diagnosed with developmental coordination disorder/motor dyspraxia. What made the difference in diagnosing cp was the fact that she has right sided weakness, which doesn't fit with dcd. To tell you the truth, she gets the same therapy regardless of her diagnosis...so it hasn't made much difference to now have the co label for us. Quote Link to comment Share on other sites More sharing options...
mommy5 Posted June 20, 2015 Share Posted June 20, 2015 I don't know about your child, but my oldest was diagnosed with CP and then later with CP along with autism and sensory processing disorder. His eval showed wide gaps, too. His working memory wasn't good. I'd have to pull the eval out and look at it again (it was done about 3 years ago). I know that his gaps pulled his score way down, too...Lower than his therapists and I thought it should be. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted June 20, 2015 Author Share Posted June 20, 2015 Thanks for all of the replies. We are still trying to get stuff sorted out but now I can ask better questions! Quote Link to comment Share on other sites More sharing options...
AngelaVA Posted August 7, 2015 Share Posted August 7, 2015 I can't comment on all the parts, but my child has had both DCD and CP diagnosis. DCD was first diagnosed just before she turned 3, CP at age 5. She has one leg weaker than the other and that foot and leg tends to turn out some involuntarily. She also has seizures that come from the corresponding side of her brain. Despite all that, they can not find anything on her MRI which is really frustrating. She also had hypotonia. My opinion is that CP is a better diagnosis, every doctor we see has a differing opinion on this. We have not had neuropsychologist testing done yet but I know she's a slow processor and I think it suppresses her IQ score. Sent from my iPhone using Tapatalk Quote Link to comment Share on other sites More sharing options...
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