Jennifer132 Posted June 17, 2014 Share Posted June 17, 2014 I think I've shared a little bit about my dd2 before. Long story short, she was diagnosed with dyspraxia, but we weren't satisfied with the diagnosis (we felt it didn't touch on all her struggles) and so we saw a neuro. He said maybe CP, maybe just Dyspraxia, and he'd let the MRI decide. We then saw a second neuro and she said definitely CP, regardless of MRI outcome. So we had the MRI, and it was (according to the first doctor) unremarkable. Unfortunately he spoke to my dh, so I didnt get to ask any questions. From what I gathered though, he didn't really say it was or wasn't CP in his opinion, only said that with therapy we should see great results. I haven't heard from the second doctor yet. I was just wondering if anyone else has had a negative MRI result and still had CP? Quote Link to comment Share on other sites More sharing options...
srs Posted June 18, 2014 Share Posted June 18, 2014 If you have questions, can you call back and leave a message for the doctor for a return phone call? My daughter with CP had an abnormal MRI. I do know it was one of the diagnosing factors, but not the only one. I know the neurological exam matters too. Quote Link to comment Share on other sites More sharing options...
bethben Posted June 24, 2014 Share Posted June 24, 2014 Have you checked her Chromosomes? My ds has both hypotonia and hypertonia which they call CP without an MRI just because of how his muscles are behaving. Even a small chromosome issue can have a lot of weird side effects (like curly hair even...). Beth Quote Link to comment Share on other sites More sharing options...
Paige Posted June 24, 2014 Share Posted June 24, 2014 My DD has CP w/ an abnormal MRI but our Dr told us before she had it that it was definitely CP no matter what the MRI said. She is very mild- most people would never suspect she has CP- but she had a few tell tale signs that the doctors picked up on. MRIs can confirm but not rule out CP. I'm in a group for parents w/ children w/ CP and many of the kids have clean MRIs. I've also seen kids who were told they had clean MRIs that were later determined to be abnormal by a more skilled surgeon. Quote Link to comment Share on other sites More sharing options...
Tiramisu Posted June 28, 2014 Share Posted June 28, 2014 We've had two brain MRI's for other nerve issues, and we were warned that an MRI won't pick up everything. Quote Link to comment Share on other sites More sharing options...
Jennifer132 Posted July 7, 2014 Author Share Posted July 7, 2014 Op here--I spoke with our second neuro, and she stands by her diagnosis of CP, regardless of the MRI result. We do have a follow up scheduled with the first doctor, and I intend to ask all my questions at that time! Quote Link to comment Share on other sites More sharing options...
srs Posted July 15, 2014 Share Posted July 15, 2014 Good! I'm glad you got a second opinion. Quote Link to comment Share on other sites More sharing options...
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