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Posted by ktgrok on 20 March 2017 - 08:01 PM
Posted by Quill on 27 May 2015 - 11:30 AM
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Posted by Catwoman on 24 January 2016 - 09:15 PM
He did incredibly well and the new liver seems to be an excellent match so far. The doctors and nurses said he is one of the most highly motivated patients they have seen. He did everything they told him to do and then did extra. He was so determined to get well quickly. He said he was doing it for our family but also for the person who donated the liver to him and that person's family. He also said he knows that the liver he got could have also saved another person if he hadn't gotten it, so he feels obligated to take the best possible care of it for that reason as well.
Anyway, he's not out of the woods yet and won't be for a long time, because he has to be immunosuppressed and we have to pray that the anti-rejection medications work and his body doesn't reject the liver. We also have to watch out for any signs of infection, some potentially serious side effects from the medicines, and any signs of rejection. He also has a massive incision and we have to hope it heals properly.
Right now, it's all pretty overwhelming. There were so many instructions and explanations and educational classes, and while I'm sure we will get into a routine fairly quickly, I'm pretty nervous about it all right now. I keep writing things down and setting alarms so we won't forget to test his blood sugar and so we won't forget to give him the right medications at the right times, and I have to be super-paranoid about germs and food safety... and on and on and on! I know there is more than I'm mentioning here but without looking at my lists, I can't remember it all.
The plan for the next few months is that he has to see the surgeons twice a week for bloodwork, physical exams, and so they can modify the medications based on the blood results. Apparently the medicines and/or dosages will probably be tweaked a lot, so I think there may be a fairly big learning curve.
But overall, all that matters is that he is out of the hospital and on the mend. We feel so incredibly blessed.
Thank you all again for all of your support as we went through this. I would be lying if I said I wasn't scared out of my wits a lot of the time, but knowing that so many people were sending prayers and positive thoughts made a huge difference to me and helped me believe that things will be okay. I'm still worried because there are still so many things that could go wrong, but having him sitting across the room from me right now is all I want to think about.
Thanks again. Thanks aren't enough to tell you how much all of your posts have meant to me. I have read each and every one of them and I appreciate every word.
- chiguirre, Miss Peregrine, Jane in NC and 177 others like this
Posted by ktgrok on 30 January 2015 - 10:07 PM
Thank you ALL for your love and support! It feels like I'm dreaming, but in fact, Harlequin has offered me a THREE BOOK CONTRACT!!!!!!
Everytime I try to think about it my brain shuts down, lol.
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Posted by Catwoman on 20 January 2016 - 04:45 PM
Sorry I'm taking so long to post updates, but there is so much going on and both my ds and I are exhausted from spending almost 24/7 at the hospital with dh.
Some positive news! Dh had his second surgery, called the fascia closure, where they basically reopen the incisions to check on the liver, the grafts, the veins, and and arteries to make sure everything is working and that there is no bleeding, and then they pull everything back together (muscle, skin, etc) and sew, suture, and staple the incision (which is HUGE. They call it a Mercedes incision because it's the shape of a Mercedes emblem.) The surgery went very smoothly and the doctors say everything looks excellent.
Now our big concerns are infection (because they gave dh drugs to suppress his immune system) and reactions to the drugs he is being given. We also have to hope they are able to quickly find medications that dh can tolerate well, and that they are able to determine the best dosages without too much experimentation. It all seems quite overwhelming, although everyone at the hospital has been very good about explaining things to us and trying to keep us as educated and informed as possible. They also gave us a binder with all sorts of information including a big list of possible side effects to the different drugs, as well as other medical and lifestyle stuff, and reading that stuff was very helpful.
The hospital staff has been excellent, from the surgeons all the way to the housekeeping staff. This morning, the housekeeping woman came in to clean dh's room and when she found out where we were staying, she got a pen and paper and drew me a big map of places to shop and eat in the area. It turned out she used to live right by where we're staying so she knows the neighborhood like the back of her hand. It was so sweet of her to take the time to talk to me and to volunteer to draw that whole detailed map for us. We're seeing a lot of that kind of hospitality here, and it is very comforting when we're in such a stressful situation. I mean, our real estate agent showed up in the hospital surgical waiting area during dh's transplant surgery just to see how things were going -- I thought that was pretty exceptional!
I'll try to update more as soon as I can. I truly believe all of your prayers and good thoughts are doing wonders for my husband. As I said before, I will never be able to thank all of you enough for your support.
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Posted by MedicMom on 17 June 2015 - 09:02 AM
(We had expected discharge tomorrow or Friday, but not today at all.)
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Posted by Rosie_0801 on 16 May 2014 - 05:52 PM
The pursuit of watermelon
Posted by Catwoman on 18 January 2016 - 05:09 PM
One of the surgeons came in from his home twice last night -- even in the middle of the night -- to check on dh. I thought that was amazing. He is so nice!
Tomorrow, dh is having another surgery so they can do the final closure of his incision. It was supposed to be done today, but the doctors wanted to wait an extra day because of the issues last night. They said a day of rest would be better. I thought that was a good idea.
I'll try to post more later. You are all being so kind, and I don't want you to think I'm ignoring you!
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Posted by MedicMom on 17 May 2015 - 05:06 PM
....I think he was a pretty good one.
He's doing super. No more CPAP as of tomorrow; just a nasal cannula. His lungs are functioning wonderfully and he really doesn't need any assistance.
And he's up to 3 pounds, 4 ounces!
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Posted by MedicMom on 19 December 2014 - 01:36 PM
He did perfect. A little fidgeting but no meltdowns or shoving or anything. He sang with a big smile on his face. There were other kids who cried or yelled Mommy or sat down, but they are four. Who cares; it was adorable.
But to show you how loved my son is, my coworkers and the firefighters from DH's firehouse, all big macho men DS adores, came to fill the audience. They wanted DS to have a familiar and friendly face no matter where he looked, and they packed the auditorium. I had no idea that was going to happen, and it was literally the sweetest thing.
On our way out, DS shook the principal's hand and said, very sincerely, "You have a very nice school. But it is time for me to be homeschooled, so I can learn things."
The look on her face was priceless.
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Posted by Spy Car on 04 July 2015 - 09:56 PM
My family is out-of-town, my wife and son are enjoying a trip to the east-coast, so knowing I was home alone our dear neighbors (who are almost like a second family) invited me over to join them for a nice meal pool-side to celebrate the 4th.
Mid-meal I look up and see my neighbor starting to turn blue. She was clearly choking (but not really reacting). Her young grandchildren were there, but too young to help, and her husband (who is a retired physician) is elderly and has had some physical heath issues and is not strong...so I decided I better act fast.
I've never done the Heimlich maneuver before (and am not trained to do it) but it worked. It was all calmness on my end at the time, but now I'm having one of those "thank goodness I was there" moments. I'm not sure it would have gone well otherwise.
Heavy experience. Maybe a little post-traumatic stress.
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Posted by NicAnn on 18 December 2014 - 10:39 PM
Isaiah James, Ezra Kent, and Simon Daniel (Sy) were born November 10th, at 35 weeks! We are doing well, settled at home after 3 weeks total in the Nicu. Isaiah (baby C) was the smallest at 3lbs 10oz, Ezra (Baby B) was 5lbs 4 oz, and Simon (Baby A) was 5lbs 8 oz. All babies were born healthy-Isaiah and Ezra were in the Nicu for 2 weeks and Simon followed the week after.
We've been blessed with many, many helpers! The babies are good nursers/eaters and better sleepers than their older siblings.
Thanks for all the notifications I had when I logged in and I apologize for being away so long without updating!
- chiguirre, Chris in VA, Jane in NC and 140 others like this
Posted by Pamela H in Texas on 19 January 2016 - 02:47 PM
Last Thursday, Squishy was adopted...by US!
I had a little trouble getting my pics off my phone, but here is a link with several pics of him from the hour we got him through today (the broccoli wrap was today).
INTRODUCING BENJAMIN WYATT
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Posted by Murphy101 on 11 October 2014 - 04:45 PM
You know what happens when you give away your car seats and baby clothes?
That's what happens.
#11 due in 2015
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Posted by Catwoman on 17 January 2016 - 10:55 PM
The surgeons were able to solve the blood flow issue, but now there is a problem with his heart rate being too fast and his blood pressure being too high. They seem to have made progress on the heart rate, but the bp is still way too high. They seem to think it is an electrolyte imbalance issue and not a serious cardiac problem, but I don't think they are sure about it. It's scary to see them giving dh more and more medications and nothing working. I hope they are able to solve the problem soon because my dh is scheduled for the fascia closure surgery tomorrow (where they reopen the incision, pull all of the muscle and tissue back together tightly and staple it all up.) He is also scheduled for the first drug regiment to knock out his immune system. So tomorrow is a big day and I'm very worried about all of it, especially in light of this heart and blood pressure thing.
The doctors and nurses seem to think they will be able to fix everything but it's hard not to worry.
Again, I'm so sorry I haven't posted sooner. I am running on empty right now. If I'm lucky, I have slept two or three hours in the past few nights. I was hoping things would be looking up a bit more by tonight so I could relax a little, but no such luck. My ds and I are spending almost 24/7 in the hospital room.
I can't even begin to describe how I felt when I opened this thread tonight and read all of your posts. Every post means so much to me. I will never be able to thank you all enough for your hugs, support, and prayers. There are just no words to describe how grateful I am.
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Posted by BlsdMama on 21 August 2015 - 09:15 AM
Laugh with me. My husband uniquely solved a problem.
Many kids. One table.
Our table sat eight. That was already a problem.
You add in little kids with play-dough, manipulatives, kids doing "serious" work, my coffee, a laptop....
Then you have kids doing puzzles or playing a boardgame and someone who wants dinner served. We manage it and it's okay, but thanks to a local taco place doing a remodel, lol, we've solved our problem.
The only catch is my house looks like a burger joint. But, hey, it's only for a season, right?!
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Posted by Sarah CB on 08 June 2015 - 03:08 PM
I have my iPad back. They shipped it out very quickly. Also, they had a meeting to discuss hotel policy and they have now changed the policy. Owners will be contacted when something like a cell phone, laptop or iPad is left behind. If the owner cannot be found they will keep the item for 6 months and then destroy it so that the personal information cannot be passed on to someone else. I'm so happy that they have changed this policy. They have even reached out to five other hotels in their region and so far three of those hotels are changing their policies as well. And they're sending me a written apology (which I appreciate) and a gift (which I did not ask for and definitely didn't require, but will gratefully accept nonetheless).
I'm really happy to have my iPad back and I'm really happy they figured out the policy needed to be changed.
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Posted by Catwoman on 28 May 2014 - 05:11 PM
There has been so much bad news here on the forum lately, and I keep thinking things can't get any worse, but then they do. There have been terrible accidents, horrible illnesses, the death of a child, and now Moira has passed away. I can't even imagine.
I never told Moira how nice she was or how funny she was or how I thought she was a great mom, and I'm realizing that I've never told most of you how much your posts mean to me, or how I come here whenever I need advice or whenever I need a break from worrying about something in "real life."
So I'm thanking you now, because I guess we just never know what's around the next corner.
I'm not the type to sit around and pray over every little thing, but I'm saying a prayer for all of us today.
- tess in the burbs, Chris in VA, Snickerdoodle and 134 others like this
Posted by Chris in VA on 27 April 2015 - 09:10 PM
And with that, my ds is engaged.
I love his wife-to-be--she's lovely in every way.
Whew! That feels better! I've been dying to tell y'all!!
- chiguirre, NicksMama-Zack's Mama Too, Kfamily and 133 others like this
Posted by theelfqueen on 16 February 2017 - 09:01 PM
My 21 year old just got the news -- when he commissions next year -- HE HAS A PILOT SLOT!!!!!
This has been his dream FOREVER. I mean since he was a a small child - Air Force pilot!
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